Weyland

Pink1975 , I have pots and recently been having asthma type breathing problems lately . Did you get diagnosed with asthma after you had pots ? What kind of doctor diagnosed your asthma ? What kind of meds did they give you for it ? Thanks

Are you taking any beta blockers or cardiac meds for your tachycardia ? I haven't found one that my body likes so far. ...

When I was diagnosed with pots at mayo clinic ,my heart echo results said left ventricular remodeling. Then I had a second heart echo at a different hospital and didn't say anything about remodeling. So who knows ,guess I will get a third opinion someday lol . My advice would be to get a second opinion to make sure you have these abnormalities. Age and heredity also factor in ..

Some beta blockers can cause breathing problems . I've had side effects from beta blockers where it felt like I had asthma and I have never has asthma in my life . I have also started having breathing problems lately and I'm not on any meds currently. Not sure if it's from pots or deconditioning or what . I know how you feel ....

I have not recovered yet , I'm still trying to find what I can do to try to fix my body. But don't give up your fight , if you recovered before you can do it again . I hope we all can . How did you recover the first time ?

Yes I get these sort of weird beats with my heart also . I think it's pretty common with pots. If these are scaring you and causing you to lose sleep ,just go get an evaluation from a cardiologist to help set your mind as ease... Something about pots makes up more hyper aware of our hearts. Before I got sick I used to never even think about my heart or be able to feel it like now....Pots is a strange thing...

What sort of symptoms was your daughter having that led her to testing by the hematologist ?

Has anyone had testing for a mast cell disorder ? What kinds of tests are involved ? What type of physician did the testing ? I'm fairly confident I have more than just pots going on in my body ,and I'm interested in getting tested for this....thanks

Marcus99,, I was diagnosed with pots in December . It has caused me to be way less active and not able to work . So yes is the answer to your question . I believe my pots has worsened because of not being active enough and not exercising. I just dont feel well most of the day. Been trying different meds but none of them have really worked for me . So exercise is the next plan for me ..

Wow that's great to hear . I am in the same boat ,my hr is about 80 seated and 150 standing .it drives me crazy . I haven't started exercises yet because I feel like garbage all the time . I will most definitely will start soon . How long have you had your POTS ?

Wow ,great food prices over there . Here in the usa that many sandwiches would cost a lot . I would just do a basic blood panel to see how your kidneys and liver are working on your current diet. But if you feel good ,probably not much to worry about . Is your exercise program helping with your POTS symptoms ?

You really eat 30 sandwiches a day ? That must be expensive . Why are you eating so much ,are you into bodybuilding? I would say do whatever makes you feel the best . If your worried about eating such low fat diet ,just get regular blood work done. You don't need a doctors order anymore to get your own basic blood work done .

I was diagnosed in Oct with pots ,and life has gone down hill ever since.. I'm very deconditioned now and have muscle loss . Every time I get up and around my hr goes up to like 150. It's hard to do anything . I've become short of breath because of pots . Does anyone else have this ? Anyways I've tried a few beta blockers ,but my body doesn't tolerate them well . My cardiologist is at Mayo and he treats pots patients . He says I really need to start exercising, and I know I do . But with being short of breath and the high hr it's hard . I'm ordering a recumbent bike to start things . The main question is ,are any of you having luck exercising ? and has it helped your pots symptoms ?

I have a bar stool in my kitchen ,only way to go if you have pots and want to cook .. I cook waaay less after getting pots . It sucks....

I had high hopes for ivabradine . Did not work well for me . I felt more short of breath than I normally do ,and my heart didn't feel right. I've also tried propranolol ,and atenolol. Had bad side effects with both . The seach continues for me ..If you feel good on the propranolol ,just stay on it . The grass isn't always greener lol

I have a fitbit 2 ,and found the hr monitor way off the mark. It couldn't keep up with my pots . I use my finger pulse ox seems to be pretty accurate. If you really want accurate buy one of the Bluetooth chest straps.