lattegirl

Hi Katybug, Do you space out your salt intake during day ? I am finding I get headaches if I am pushing salt too close together - do you ever find this? Thanks

Thanks yogini, I started florinef but felt terrible so stopped and have been managing non medication things.I am seeing cardiologist Monday after 5 months of trying to suss it myself so hoping for helpful advice!

Hey dancer65 I can identify with that I too often feel very emotional .I have a hard time convincing myself that I am ok ! much appreciated!

Hi Tachy Matt, That makes sense thanks for the thought.

Thanks dancer65, I'm still on a steep learning curve, what you say makes alot of sense I have started backing off and not doing alot if I feel very symptomatic. Do you get a feeling that something terrible is going to happen, and feel anxious?I wake with this and feeling hot and it seems to coincide with falling blood pressure . Lg

Thanks statesof, Really helpful to know others always have symptoms and I can identify with what you say.Each day is different sometimes better sometimes worse.Still have no idea of my limitations , do you ever suss it ?? ?

Thanks Elish, Good to know I don't have to eliminate all symptoms to be considered as managing! ?

Hi I have vasovagel syncope, early days of treatment. I lost my job because of symptoms not knowing if they were controlled or not.My GP couldn't advise me at all. I am salt loading plus fluids and compression socks, elevated bed.My question is do you continue to have daily symptoms despite all the above but it is of a more controlled state or do the symptoms mean I haven't got the balance right.Any thoughts on this would be appreciated as I am trying to find work again but terrified in case everything gets worse. Many thanks

Great, thanks will have a look.

ok thanks for the tips will try this out before I see the consultant.

That sounds great , on what site will I find this app ? Thanks

Hi Kaitlyn, Thanks for the info really helpful, I will give it a go ?

Hi, new to this.I have vasovagel presyncope , I still have sudden events and can't explain a trigger.Wondered if a bp diary would help and when is the best times to monitor- am as I wake up flat or sitting or standing and evening laying down or sitting etc . Advice would be great .Thanks