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lattegirl

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  1. lattegirl
    Hi do people get spikes for low blood pressure from just taking salt and some caffeine? I was supposed to try midodrine but was too scared because of the spikes and confused if I take tablets regularly would it make the spikes much worse .Anyone else worked thru this ? Many thanks
  2. lattegirl
    Thanks Missy M, I always have a coffee in the morning and that works but I can't then have another later in the day.
  3. lattegirl
    Thanks interesting I will persue this
  4. lattegirl
    Thanks, Sorry it was no good for you.Interesting to know about the diuretic effect.
  5. lattegirl
    Hi Has anyone tried using Butchers broom just when you get up or as and when needed during the day . Wondering whether it kicks in within 30 min like midodrine and how long effects last Many thanks
  6. lattegirl
    Thanks corina, Blood test would be one way to find out the cause .
  7. lattegirl
    Hi, Does anyone know if there are differences to determine if you are suffering from random sweats and chills caused by menopause or dysautomnia? I have NMH and have been experiencing symptoms for afew weeks now. Many thanks
  8. lattegirl
    Many thanks will look into that.
  9. lattegirl
    That's rough for you.No hadn't thought of sleep apnea . I don't know what my O2 levels are but had vaguey thought of buying a night mrasuring oxomiter.I generally lie down on my back first then roll to one side.
  10. lattegirl
    Interesting.It's the same whichever side I lay on.
  11. lattegirl
    Hi All, I am struggling to work out whether there is a point at which low nocturnal blood pressure becomes unsafe. I have ncs . I am a side sleeper and often wake every night with queasy stomach, feeling like I am struggling to breathe normally , quickening pulse . My bp is around 79 over 45. Whereas on my back it is 100 over 60. Any thoughts would be very welcome.
  12. lattegirl
    Thanks , no specific concern just airing thoughts .
  13. lattegirl
    Definitely! Do speech issues ever happen as a symptom on its own with alot of fatigue ? as I have experienced this with and without other symptoms and wondered if it is presyncope or something else??
  14. lattegirl
    Yes me too, reassuring to know I am not the only one !
  15. lattegirl
    Kaitlyn, I get tremors in my left hand which like you get worse with stress, fatigue etc.When I have had bad episodes I my legs are trembley, my speech stutters and slurs .Are speech issues a general symptom of OI ?
  16. lattegirl
    Kaitlyn, Thanks really appreciate your thoughts. Do your tremors affect certain limbs or entire body trembling as I have experienced hand and legs. Takecare
  17. lattegirl
    Hi Kaitlyn, Yes I wear compression socks.Ended up resigning from job with all the symptoms you described ! Now more fatigued and experiencing more palpitations, tremors, hot sweats, light headed ,foggyness.Scared myself when I felt so out of sorts I couldn't open the car door , couldn't remember how to .Also experiencing some weakness when doing things and leg cramps .Am going to contact cardiologist as I don't get what is going on .
  18. lattegirl
    Interesting thanks, my symptoms have increased especially irregular heart beats since resigning from the job .I will certainly get I touch with my cardiologist.
  19. lattegirl
    Yogini, Yes I am salt and fluid loading.
  20. lattegirl
    Katybug - early days for me then on florinef! I make my own gi flapjack which is slow release energy and non refined sugar so doesn't cause blood sugar spikes and therefore affect blood pressure changes. I was under the impression that florinef changes potassium level , lowering it a bit so it is good to add potassium like a banana.
  21. lattegirl
    Yogini, Thanks, I haven't yet noticed much help from florinef , does it take months to know if it is beneficial? Have been taking BP and HR am and pm with no significant changes. Katybug, really helpful information, I do find sugar levels make me rough , always reaching for a banana or gi flapjack. Can changing potassium also give you symptoms?
  22. lattegirl
    Katybug, interesting, kind of sounds like fatigue is something you learn to balance with dysautomnia issues and not something you can eradicate.
  23. lattegirl
    corina, I will check my pulse to see .Thanks. Shan1212 I was gardening for family twice a week and had similar fatigue etc but on a less scale.
  24. lattegirl
    Interesting, yes I was becoming gradually more symptomatic and sometimes suddenly worse as time went on Thanks
  25. lattegirl
    Been on florinef for 3 weeks, started new job, 20 hours , 5 hour shifts on my feet after 2 weeks I had to quit.So fatigued couldn't function at home and struggling with nausea, high feelings , poor concentration , headaches, feeling faint. I am sensitive to drugs in general, does this sound like florinef is not agreeing with me or something else like exercise intolerance ?? Any thoughts would be appreciated, thanks .
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