Abramelin777

Hi Josh. I know exactly how you are feeling. You could check out the cardiology videos on YouTube - YorkCardiology by Dr Sanjay Gupta. He explains all about different conditions & how the heart functions. I've found it very reassuring to know why my heart skips beats & speeds up at the slightest exertion. Have a look & see if it eases your anxiety.

I've been looking into MCAS but I'm a bit lost with all the information..so much to take in. What dose of Ivabradine do you take & has it helped at all & do you have any side effects?

Thank you Katie. At the moment I'm taking neither drug as I have concerns as to what they have been prescribed for...is it angina, is it PoTS, dysautonomia etc.

Thank you both for replying. I sympathise totally with you on this. I'm finding it almost impossible to deal with the constant anxious feeling, always aware of my breathing & heart beat & every other sensation. The smallest thing can set me off. Recently the hospital tests have been a major stressor even though they went well &n I find I'm worrying about health even more now.

Hi to everyone, This is my first post here & I'm very glad that I have found this site. It is very comforting to know that I am not alone in this situation. I've had M.E for 25 years now & I suppose I've always had PoTS symptoms, just that they've got worse the older I've got. I recently got a semi diagnosis of PoTS from a cardiologist after a tilt test (my bp & hr go up so I'm thinking hyperadrenergic). I've been taking a low dose SSRI & beta blocker but have been prescribed Ivabradine (took it a few times & felt very strange) & a calcium channel blocker which I am very hesitant to take. I have been very anxious recently especially when waking & when I'm alone in the house & my heart starts misbehaving. I'm now scared to even get out of bed & move around. I'm not sure if it's a generalized panic thing or part of PoTS. Can any of you share your experiences of your symptoms & medications. Thanks, David