smarti54

Statins can cause rhabdomyolysis. It is rare but usually starts as muscle cramps and can cause severe kidney problems also. Usually once the drug is stopped and you are treated the symptoms go away. You may want to mention that. I hope they find an answer. Those symptoms aren't benign. Good luck.

I have experienced dystonia (in my feet) but no where else. I hope this gets better for you.

As long as you are medicated the epi has a very short action locally imo. If you are concerned you can simply tell them you have POTS and request no epi in the local. The epi is used to help 1) prolong the action of the drug 2) decrease bleeding at the sight due to vasoconstriction. It can be done without it but you may have to have more than one injection to provide adequate anesthesia. Good luck! Brw most places say that general anesthesia is contraindicated by POTS. As long as you anesthesia provider is educated on POTS I feel it can be done safely. Some aren't because it is not focused on it school. It helps to say autonomic dysfunction... Which is taught.

I have hyperpots and have had it for as long as I can remember but with the diagnosis last year. I have been tried on almost everything and find that the best combo for me is betaxolol 15 mg every day and midodrine 10 mg three times a day with the birth control pill. The thing is..... It is affected by everything... Stress good and bad, food, sex, standing, sitting, etc. just like traditional pots. The surge of norepinephrine can be overwhelming sometimes. There are days that are ok and days that are awful. Anti anxiety meds (ssri, anti, etc) all made my symptoms worse and I only became better when they quite trying to treat it like anxiety. Best of luck. Trial and error takes time.

With Myelodysplastic syndrome... My platelets, RBCs and WBCs are low. I have frequent infection and bleeding. With myeloproliferative disorders there is an excess of cells types. They are very similar and are both bone marrow disorders. The anemia does not help with tachycardia and the shortness of breath for me. Thanks for your input.

I was diagnosed with hyper Pots in May, but have known for years that I had adrenalin surges. I have even joked for years that I had a pheochromocytoma. Last July I developed urosepsis (due to MDS...a blood cancer) and my pots went hay wire. I was turned down by Mayos autonomic clinic. I go to Vandy the fist week of November. Do I need to get copies of all my TTT, holter, etc sent to them? They have me scheduled to see Dr Muldowney with a plasma volume study and Autonomic function test. Any info you can provide would be great.

I have been told by my EP there is a connection but I'm not sure what it is. I will ask next month.

I was told Hyperadrenergic pots with questionable neurogenic component.