wheni was diagnosed at MAYO with POTS/autonomia/tachycardia.. they told me basically they would just have to "bandaid" the symptoms as they came up..problem is we suffer from so many different symptoms and everyday is different that i only treat the symptoms if they are severe or i would go crazy deciding on what meds to take and what to do to help the symptoms each day..i rarely leave the house becasue if i think i am feeling ok and try to go to Walmart i find out in 10 minutes i cant stand any more and have to go home..so i never go anywhere by myself..it does get depressing you feel trapped i felt that way at first....and like you said for people to look at us they think we are ok..i have a handicap plac for my car and i rarely use it because of the looks i get when i get out of my car..but if they could trade me bodies for one day i know in about a hour they would be begging to switch back..you have to constantly be thinking about everything you do..the way you stand,lean.bend,sit,walk,turn,what your eating,drinking,just everything and the minute you let your guard down you fall over (that is me anyway) .. i think for doctors they are so overwhelmed due to lack of knowledge about this and there are so many varibles ..that finding the correct diagnosis for most of us may never come..i never make plans because as soon as it gets close i cancel them so i dont get to town to see my friends any more and really dont do much do to the uncertainty of how my day will go..plus i feel like i have to keep up and i over due and then i suffer worse for a few days..so i find it best to stay home where i am actually content i have to say..most people would not be..i guess it is less stress on me just to stay home ..i hope you find out what is going on and a GOOD doctor to follow your care..best wishes..