Annamaus1977

Thank you all so, so much for your helpful replys!!! Best wishes Andrea

Hi, my cortisol was testet a second time and it was higher then normal. Maybe the situation is stressing me and my body...Finally I'm afraid every day.

Hi and what side effects did you have? I felt much more anxious, insomnia, restless more pain in my neck an so on... ah, and after I took them I had to go to the toilette... (you know what I mean?) I'm afraid, that SSRI can make my symptoms worse and then the symptoms dont get better no more. Since I had took them, I feel worse than before. At first I took Mirtazapin since 3 month in the evening. At Monday last week till Wednesday I took just Zoloft in the morning, Mirtazapin I let off. And then the nightmare begins...

Hi MomtoGiuliana, I try Zoloft, I think it is an SSRI? But it makes my symptoms worse, it was terrible. I took them only 3 days... Now I take Mirtazapin... I dont know if this is the right way... I take them since 3 month. I can better fall asleep. Best wishes, Andrea.

Thanks gjensen for your reply. I have a question, how you give that salt you need to your body? I mean wich salt you take and can I make it into water or something? Oh its difficult for me, to ask with the right words... I hope you understand what I mean. Best wishes, Andrea.

Hi momandmore, thanks for your reply. Do you do all at home in the sit? I feel all days also unwell, when I sit. Have a painful neck, headaches and weak arms, when I sit. :'-( Best wishes, Andrea.

Hi, Yes of course, my bp is normal... or the same like every vorher day. But you're right, now my heartrate is 130bpm, it seems like it's very different. The systolic bp is very low when I'm upright 95/78 pulse 128. Anyone else here with such strange bp? Best wishes, Andrea.

Hi at all! I got a question: How high or low is your heartrate, when your upright? My heartrate is just 80 today, but I'm feeling bad like every day... Best wishes, Andrea.

Many thanks, momandmore!!! Hug you... <3 best wishes, Andrea

Hi at all, thanks for your comments! I already took magnesium and vitamin d since 2 weeks. I dont know, wich time is taken cortisol. It was 2 weeks ago and I cant remember... At the moment I dont feel better, in spite of supplements for vitamin d and magnesium... Wish you all these best! Andrea

Hi Pot Luck, I think we have something in common, because I feel better after a shower too. I also can stand for a long time in the shower, it makes me feel good, if the hot water run over my painful neck. I think, my neck is badly irrigated, if I'm standing. I always feel a tingling sensation on my head and in my neck. I had a medical examination last week, they looked at my capillaries with an microscope. They had seen, that the little blood vessels are constricted. So, thats the greatest problem I got at this time, because it makes me feel very bad... I also feel dizzy and have many other symptoms. I dont know, wich medicals can help to opens the blood vessels? Wish you all the best! Andrea

Hi at all, my cortisol is higher then normal. In magnesium and vitamin d I have a deficiency. Is this in common with PoTS or dysautonomia? Anyone else here with such deficiencys or with an higher cortisol? With warm regards Andrea

Hi girls, they had made an MRT from my head, a chiara Malformationen they would have seen. Im also havent hypermobility joints. But thanks for your ideas. I have to correct something: I CAN take a hot shower, I love it. It makes me feel very good!!! :-) And my venes are oright. I have constriction blood vessels... kapillary. You all have purple feet, because your venes arent constricting, thats another problem like mine. I dont have a Polyneuropathy, the test was ok. The nerve are ok. And I meant an MRT from my neck and cervical spin. I thank you, youre great!!! ♡♥♡ Andrea

Hi, many thanks for reading this and for your understanding! I dont have a diagnosis. They just tell me, that my capillarys are constrict and my heartrate is to fast when Im upright, thats all. Dear Lyla, your blood vessels arent constricting and this is typical for Pots. But mine constricting, it calld microangiopathy I think. And this isnt typical Pots. I drink 2-3 l the day. They send me home tomorrow. I have Beta Blocker and compression socks. They told me, they think it would getting better. But what about my neck and the other strange things on my head? I was so hoping, they can help me or they make a MRI or something. Hug you all!!!

Hi Corina, Yes I have told it often, but they have not responded. Thats not a symptom of Pots...at the moment it feels so hard, if I can not speak and sitting with my family... it is a nightmare!!! At this morning the half of my face was numb. But as I moved my head ist going back to normal. I have told it to my doctor, but she meant wrong located.

Hi at all, its a very hard time for me. You can see it on my many questions, them are always in my head. So I would like try to tell you about it a second time... Im so desperate right now, with all these strange symptoms and without diagnosis. I always cry... because I feel so sick. At the first moment, as I found this forum, I was so happy, because I had thinking, yes it is Pots whats making me so sick. But now, I dont know, wich desease I have. I was 14 days in the hospital for Neurology, and all what them found is, a fast heart rate and constriction blood vessels (capillary) in my arms, hands and my legs and feet. They make many tests, a sweattest from my hands, blood tests and so on... but these tests shows no typical Pots. So I have to go home tomorrow and I have no idea, how does it going on? I hope it is okay for you, when I wright down, all my strange symptoms. I would be glad if you help me and send me your ideas or you tell me what symptoms familiar to you, which of my symptoms you also have?! 1. I have a fast heartrate just when Im upright *but now my pulse is just 85bpm when Im upright, because the Doctor gaves me today an beta blocker like Metoprolol. 2. I have very strange pain in my neck and back of the head, if I speak, if Im sitting, if Im upright. 3. If Im sitting and talk, it makes me go dizzy, the pain in my neck getting worse. And I feel a tight belt around the chest ans weak arms. The same procedere if Im upright. Also if Im just sit, no talk. 4. If I just talk to someone, I get these neckpain and headaches in the back of the head, it makes me dizzy and I feel a strong tingling sensation on the head and face and all teeth hurt me. It does not matter, if Im standing or laying down. I feel also a tight belt around my chest and weak arms. 5. If Im standing, my legs, feet, hands and arms are red/blue. Just if I let my arms hang down, are they red and blue. 6. If I lay me down, my feet, legs, hands and arms have they normal color. 7. Most of the time I have cold feet, hands and a cold nose. 8. I can walk 1 hour, but it makes me a little bit dizzy and I have the feeling of the tight belt around my chest. Thats just possible without talk, if I woud speak I woud have the problems with dizziness and pain to my neck... and so on. 9. I can take a hot shower and it feels good to me 10. I have constriction blood vessels (capillary) in feet and arms, hands and legs. 11. I have a dry red tongue and it feels like I ate something sharp. 12. It also feels in my throat, it burns like sharp food... 13. Everytime I have a bit nausea Im sure, I've forgot something... I hope, you know what I mean, because it is very difficult to me, to say it in english. Please help me, I need you so much... Andrea :'-(

Hi MomtoGiuliana, thanks for your understanding. My problem is that I still have no diagnosis, but pain and so many strange symptoms. I cant find someone who hase the same... Can I wright a new topic? I would like to tell you about these symptoms a second time. I would like to do a list with all of them and I wish, that you answer me and tell me, wich symptoms do you have too? I'm at the end, I can no longer. Not knowing what is going on, makes me desperate and anxious. I cry all the time, I have that feeling, this ends my life. I can no longer sit at the table without extreme pain in my neck and without headaches back of my head. And dizziness when Im speak and to feel like I have a solid belt around my chest and my hands and arms change in blue. When I speak, it pains in my neck, have pain in my teeth, it starts on my scalp to tingle in the face and the jaw and with every word I say, I feel dizzy. My hole face feels like numb ore like muscle ache. As it would be tense... It is not to keep out... what can it be? To be continued... Please I need your help... Im so desperate! :'-( Andrea

Dear Corina, of curse I will wear them! Thats not really my question. I still hope they will help me... But I wonder, if there are more people with Pots, they also have constriction blood vessels. With warm regards Andrea.

Hi Goschi, maybe you have the same problem like me? My blood vessels, the little ones calld capillary, havent a dilation, but they have a constriction. It turns legs and arms also blue when Im upright. So I think, when I wearing compression socks, the blood vessels woud have much more constriction and it's getting worse. The most have problems with blood pooling in their legs, because their blood vessels dilate and so it helps to wear compression socks for constriction. Thats the reason, why Im need it warm or why I need warm showers, because it helps to dilation my blood vessels. Thats atypical for Pots. So the doctors calld my symptoms not Pots. They think, my heart beats to fast when Im upright, because the blood pooling in my arms and my legs bye the reason of constriction blood vessels (capillary). So have my heart much harder to work. But what about my other symptoms??? :-( They say, I'm supposed to wear also compression socks. But I dont think it works. What do you think, no Pots but positiv standing test??? Is anyone here with the same problem? Thanks for reading. With warm regards, Andrea.

Hi Bonbon, my friend with Pots had tell me, that she will be more symptomatic, when she had eating carbohydrates (I hope its the right word). But I dont know the reason why. With warm regards, Andrea.

Hi MomtoGiuliana, thanks for your help. I dont have Raynaud. It has been excluded. With warm regards, Andrea.

Hi, thanks Goschi for your explanation. :-) But got something new. I still have these circulatory disorders in my legs and arms. A specialist of blood vessels (sorry I dont know the english word for these doctors) said, it looks like a microangiopathy. :-( These disorders getting worse. Every time I stand up, my legs (under my knees) turns red and they are poorly irrigated, icecold and weak. Same procedere in my arms. When I talk with someone, my legs and my arms are still less blood circulation. I can feel it, when I talk, how they gets colder and colder and I have also weak arms and pain in my neck and in my left shoulder. So am I wondering if I have this microangiopathy also on my heart or anywhere else in my body?! I had read about it in another forum. There was another man, he had the same symptoms like people with Pots have, but later his doctors find out, that he had and have a micro-vascular heartdesease and it wasnt Pots. He was misdiagnoses with Pots. How can I be sure it is really Pots, with all these mystery things? I think, I do not have the right Potssymptoms. For example I can walk 1 hour and have just a little dizziness. The next, I love it warm, I need it verry warm, because my cold feet and hands. I can take a hot shower for a long time and its feeling good to me. Yes, I feel better, when I can stand under the warm water. I think it expands the blood vessels. I dont sweat more or at night. The only thing I have is the fast heartrate, when Im upright. Thats all I have with you in common. And this can be a symptom by another desease. I have one more question. When I eat something, I start to freeze!!! My hands and my feet are verry cold, but much colder, when I had eat something. And in the evening, when I lay in my bed, I have still cold feet and hands, but also my nose is so cold, it hurts me when I breathe. I hope,you're not angry with me, because I ask so much over and over again?! With warm regards from cold Berlin, Andrea.

Hi Nymph, dont know if I have made “the standing test“, do you mean the “Schellongtest“? I had a Schellongtest for 2 or 3 weeks ago. with warm regards, Andrea.

Hi at all, look what I found: Some authors advocate the use head-up tilt table testing as a standardized method to assess an individual's response to a change in posture1. The patient is positioned on a standard tilt table and following baseline measurements of blood pressure and heart rate, the patient is inclined to a 70-degree head-up angle. Blood pressure and heart rate are then measured either continuously or at least every 12 minutes. The orthostatic tachycardia is often measured in a similar fashion to the standing test, with a similar threshold used to diagnose orthostatic tachycardia (an increase of ≥30 bpm)1. However, the physiology in response to passive standing on a tilt table (with the legs still) is not the same as active standing where the patient must support their own weight and maintain their balance. The latter requires use of the skeletal muscle pump and mimics real life, while the tilt table does not. For this reason Streeten et al. use similar criteria for orthostatic tachycardia (>27 bpm), but only with active standing18. In a recent study, we compared the orthostatic heart rate response of these 2 methods, and found that the tilt table test was associated with an increased orthostatic tachycardia in both patients with POTS and control subjects19. While both tests were sensitive for the diagnosis of POTS with a 30 bpm threshold for orthostatic tachycardia, the stand test had a specificity of 79% compared to only 23% for the tilt table test. http://www.ipej.org/0602/raj.htm What do you think about it? This week I will take the tilt table test. I hope it works good for me and shows that something is going wrong with me... a specificity of only 23% isnt much. Wish you all the best!!! Andrea