Annamaus1977

Hi MightyMouse! Thanks for your explanation. Wish you a nice day, Andrea

Hi, but when you diagnosed with POTS, is unfortunately fatigue a symptom of this desease. I had read often at the last time, that many people with Pots have this problem. Some of them drink coffee or energydrinks with electrolytes. Maybe it can help you two? I hope you get some more replys to help you. take care of you, Andrea

Dear momandmore, thanks for your helpfull comment. Its hard to me... even at this time I dont know, if this is really Pots. Im in an hospital for diagnosis, or to find out whats going on with me. But the last tests havent show an Pots. Only the Schellong-Test had shows my fast heartrate when Im upright. Everything makes me verry angry, because of these verry creepy symptoms and the doctors doesnt know what this is... Its like an nightmare. With warm regards, Andrea

Hi StillStanding, A warm welcome, nice to have you here. I dont have an heart failure, but I had breast cancer this year an after chemotherapy, I got Pots symptoms. I have a verry fast heartrate, most in the morning till afternoon 115-140 bpm. In the evening it can be much better. I feel dizzy and sick upright, I have also circulatory disorders in my legs, feet, arms and hands. They turns purple, just when Im upright. And many more Symptoms... At this time I dont know, if i really have Pots or something else. I can understand your situation and I hope it will be better for you. I also hope you can find a friend here, maybe with the same diagnosis like you. Sorry for my bad english, Im from Berlin in Germany. Send you many good wishes!!! Andrea

All the best wishes for Tyler's way!!! ♡♥♡ with warm regards from the cold Berlin, Andrea

Hi artluvr, Is this your pulse when you're upright or you're laying down? I think the pulse is not so fast, its normal I think. At this time I have a pulse about 140 bpm, just when Im standing. Maybe you feel so tired, because you're BP is to low??? with warm regards, Andrea

Hey, oh I think Im going crazy ... The next thing thats scary for me!!! Every time when I speak, it makes me go a little dizzy and I get that feeling like I have a belt around my chest and Im sweating much more and feel very tired. What can it be??? "in fear" Andrea.

Hi artluvr09, it happens mor often, that people who have Pots, also have another autoimmune desease like raynauds or sjoegren. But i dont have raynauds or something else, it is just a circulatory disorder and my arms and legs turn red when Im standing or when I walk. And they get verry cold, also when i eat my arms and legs get verry cold?! Hug you, Andrea.

Dear Praxxtor and Becia, thanks a lot for your help. Praxxtor, Im sorry, but what do you mean? "Your pulse pressure appears to narrow quite a bit, might wanna ask your doctors about that too perhaps?" I cant understand it, sometimes its still difficult to me. Can you explain it or say it with another Words for me? Becia, Im so sorry, that you cant stand for a longer time. I hope it will be better soon!!! ♡♥♡ Hey, you need to speak German? I can teach you. ;-) Have a nice day, Andrea.

Hi Praxxtor, thank you for your comment, They had made a Schellong-Test 2 weeks ago. So I have the result of my "selfmade-schellong-test" that i had mad in the afternoon: After 10 minutes lying down 103/70 pulse 76 After 2 minutes standing 100/72 pulse 106 After 5 minutes standing 99/76 pulse 116 After 10 minutes standing 91/76 pulse 132 After 15 minutes standing 90/70 pulse 132 And when I test it in the evening After 10 minutes lying down 100/74 pulse 76 After 2 minutes standing 96/85 pulse 96 After 5 minutes standing 98/78 pulse 101 After 10 minutes standing 97/83 pulse 98 After 15 minutes standing 98/79 pulse 98 much better pulse!!! I've never fainted and i've never felt so. Only a little dizziness. Sometimes I feel it more, sometimes I feel better without dizziness. Hug you, Andrea.

Hi MightyMouse, thanks a lot for your report. Hmmm, today the tests didnt showed it can be Pots or an dysautonomia. I just have the problem that my heart run when Im upright and the other things i told you. But my tests are negativ. I cant understand it... Im so sad, whats going on with me... Hug you ♡♥♡ Andrea

"Guten Tag", how we say in Germany ;-) I'm in a hospital now, to find the reason of my sickness. I had tell you in my last topics. So they had make some blood-tests, but i dont know wich tests they make. I will ask later. Also they had make tests, if i can feel warm and cold and pain and touch on my hands and feet. Furthermore they tested if i sweating the right way on my hands, when they stimulate it with a little electric shock. I hope, its the right explanation in english and you know what i mean. All these tests are allright and they cant find a problem. My question to you is, how had they diagnose Pots or Dysautonomia on you??? Which tests had they make for? Is it enough to make a tilt-table-test and how high or low are your BP and your pulse/heartrate??? Many Thanks for awnsering... it will help me so much!!! ♡♥♡ With warm regards from Berlin, Andrea.

Hi at all! I'm back here... I'm so sorry for my many questions! Do not be angry with me. :-( I have a few more strange symptoms. I would like to know, if you have them too? When i walk, i have a feeling like as if i have a belt around my chest and both arms go weak. When i speak i have the same feeling... at next i feel dizzy. I'm going crazy... with warm regards, Andrea

Thanks TCP... ♡♥♡

Hi Goschi and TCP, Is'nt nice to read, that you have also bad times with Pots. I wish you all the best, i hope it's getting better for you soon!!! ♡♥♡ It's hard to think positive for me. Since i had breast cancer, i have so much panic in me with all these bad feelings and i have to be afraid disappointed, if the docs not found a reason why. I dont trust them and at the monent i dont trust in a diagnosis names "Pots"... I hope it is Pots, why Pots doesn't kill me... please forgive me, but for me its better than cancer or metastases or something else that can be dangerous to me... i hope you understand me. Give you a hug. With warm regards, Andrea.

Hi girls and boys, Dear Goschi thanks so much... i sent you a message. Here my results of the "Schellong-Test": laying 95/62 pulse 66 standing after 2 minutes 107/75 pulse 91 after 4 minutes 98/80 pulse 96 after 6 minutes 95/70 pulse 109 after 8 minutes 96/77 pulse 103 after 10 minutes 94/75 pulse 106 I dont think its so abnormal... What do you think about it? At home i tested my boyfriend and he had almost the same results... when he was laying down his pulse was 80bpm and upright 98bpm till 100bpm. And he has no problems and feels good. But i feel, i have so many problems. What can it be?! Hug you all... Andrea.

Hello! I still search for people here with circulatory disorders in arms, legs an hands, feet. When I'm upright, my legs and my arms turn blue or red. My feet and my hands most of the time cold like ice. Also i have blue heels and it turns blue under my feet, but just when I'm upright!!! After a little while, my arms and my legs so weak. And it feels like tingle, so if its not perfused. Its so difficult to me, to describe it in English. Oh and speaking makes me dizzy, whats that?! Maybe there some girls or boys, they have the same problems like me? I would be happy, if you write me! with warm regards, Andrea

Hi girls, you're so nice to me, thanks. This morning i had a heartrate by 130bpm, just when I'm upright. So it is still like the other days before. Maybe it is going slower in the afternoon. Often i had at the morning a faster heartbeat than in the evening. Today i spend some blood for tests. I hope they can find something to help me and that its going better. It can be POTS, but I'm so anxious it is still cancer or something that kills me... :'-( I give you a hug. with warm regards Andrea

Dear Corina, I'm so sorry. I'm not "angry" i meant "anxious"!!! But "angry" sounds like "ängstlich" this is the german word for "anxious". It can be verry funny for you with my "super" english. ;-) Kind regards, Andrea.

Hi Katie, many thanks for your answer!!! :-) My hands and feet dont turn blue from cold, but just when i'm upright. At this time i'm in a clinic of neurology. In the tests the neurologist have seen, that i have an polyneuropathie on my legs on both sides. I had no reflections. At morning they start some searches what the reason is for my symptoms. My heartrate is the third day normal and the dizzy is much more better than the last times. I think the reason is an drink of vitamins and "omega 3-pills". I took them for a week and its going better, maybe its helping me. I hope so!!! But i still feel sick and tired and i have nausea every time and these circulatory disorders on my arms and legs... I hope everything will be fine. I wish you all the best!!! Kind regards, Andrea

Ups... regards to nehterland! :-)

Dear Corina, many thanks for your answer. But I still think, pots is not the right diagnosis, because i can take a hot shower and it feel good to me, I feel better with warm water on my body and feel bad when its cold, because the cold trigger the circulatory disorders in my feet and my arms... and this makes me go dizzy. Actually my heartrate is just 76 bpm upright... It can be dysautonomia, but i dont think its Pots...maybe an autoimmune disease? Sorry, i'm so angry. Andrea greatings to netherland!!! :-)

Ups, I forgot something... I always have a verry red and dry tongue. I have a cold nose also at verry warm temperatures. When i breathing it hurts me in my nose.

Hi Liz, thank you so much for welcome. Do you think they are dysautonomia symptoms? Sorry for my bad english ;-) I hope its not a "Dr. House - Story". No doctor can help me at this time and nobody knows which disease it is... :'-( With heartly regards Andrea