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Posts posted by Muon
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I haven’t seen a dedicated thread for Methylene Blue. I wonder if anyone on this forum trialed it. Info about MB can be found via the link below.
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On 8/29/2023 at 8:00 PM, lschwartz408 said:
What did they do for you? How did you get it better for yourself? A problem with the brain stem- as in brain damage? I am able to go to sleep though so if it was a problem with the brain stem I don’t know how I would ever wake up. Have you ever gone to sleep? Do you know what this is related to? Thank you for your help.
I didn’t get help. It became better by itself over time. It only peaked for 1 summer season where, like you mentioned, the signaling just stopped. Winter season improved this symptom until the next summer it struck me again but not as intense as before. POTS also improved gradually over the years.
I could not fall asleep with this symptom. I slept barely.
I get the impression my body has a problem with multitasking specific functions or lacks some kind of power. If it’s digesting food in the stomach then it may disrupt the respiratory rate, like a waterbed effect. Bowel movement can disrupt autonomic breathing as well.
I have problems with sexual triggers btw, triggering clusters of symptoms and can feel the same middle part of my head when this happens. It probably excites the same system aside from potential immune problems.
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Yes I have this symptom, you will have to breath manually. Heat is perhaps the largest trigger. I can feel the middle part of my head as well, I think it’s related to the brainstem (that’s also where these oscillator nuclei are located). It’s better now than it was in the past when the autonomic system went haywire and had a compete loss of autonomic breathing. I haven’t found a remedy (doctors don’t take this seriously). The state I’m in now is that the autonomic breathing doesn’t work optimal but isn’t close to being shut-off completely like in the past. I went to an emergency unit for this specific symptom.
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On 12/11/2021 at 5:03 AM, KiminOrlando said:
@Muon I had multiple biopsies of my GI tract. What does that test for?
To detect mast cells in biopsies via binding to the specific CD117 surface molecule on mast cells, it's more accurate than other methods of mast cell detection. Did they find anything unusual in your biopsies?
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Did anyone on this forum had a biopsy of the GI tract done with CD117 staining?
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Are channelopathies associated with POTS or dysautonomia? What channels have been mentioned in literature, if any?
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What types of adrenergic receptors are over or under expressed in POTS and in what tissue/cells? What are the findings in literature?
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Thanks for sharing.
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Neuroprotek shows the best effect out of all MC stabilizers I have tried. No other MC stabilizer had significant effect (anthistamines, montelukast, cromolyn). When I eat blood is being drawn away from other parts of the body (head for example) to the stomach and can lead to increased dysautonomia (blood pooling, breathing disruption, decreased digestion etc). Neuroprotek counters this and can just finish a meal in one-go. Food sensitivity improved. Increased resistance to stress in general. Diaphragma is easier to move during breathing. Didn't have flares of anxiety. Need less sleep. Slightly less pressure in lower part of spine. Been 3 weeks on 2x1 capsules and 10 days on 2x2 capsules so far in that order (will probably bump it up to 3x2 capsules in a couple of weeks). I started to notice a difference in symptoms ~1.5-2 weeks in.
Side note: I'm having low blood pressure 61/96 (supine) and resting heart rate ~70 bpm (got this before taking neuroprotek). Never had low blood pressure in my life as far as I know. Got problems with vasomotor disturbances as well. These government lockdowns weren't good for my health either.
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Option: You could Try Neuroprotek or PureLut, at least 2 capsules in the morning and 2 in the evening (build it up and could add 2 during mid-day if not strong enough) ) for a minimum of 4 weeks.
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8 hours ago, KiminOrlando said:
It is a symptom of dehydration and since many of us have hydration issues, it could be related to that.
I didn't know that. Do you have a source of this?
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Someone on the poiscenter forum had the same issue. He had elevated hBD2 in his stool and suspects it could be present in his urine as well.
https://poiscenter.com/forums/index.php?topic=146.msg1344#msg1344
More: https://poiscenter.com/forums/index.php?topic=3739.msg39898#msg39898
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1 hour ago, Bobby said:
Have a hard time eating
In what way? Sensitivities, digestion or lack of blood supply to the stomach? I have seen people complain about cloudy urine elsewhere. Do you have any problems with ejaculation?
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Is postural orthostatic tachycardia syndrome (POTS) a central nervous system disorder?
Same thread on Phoenix Rising forum
Abstract
Postural orthostatic tachycardia syndrome (POTS), a disorder of the autonomic nervous system characterized by a rise in heart rate of at least 30 bpm from supine to standing position, has been traditionally viewed as a dysfunction of the peripheral nervous system. However, recent studies and evidence from overlapping conditions suggest that in addition to being considered a disorder of the peripheral nervous system, POTS should be viewed also as a central nervous system (CNS) disorder given (1) significant CNS symptom burden in patients with POTS; (2) structural and functional differences found on neuroimaging in patients with POTS and other forms of orthostatic intolerance; (3) evidence of cerebral hypoperfusion and possible alteration in cerebrospinal fluid volume, and (4) positive response to medications targeting the CNS and non-pharmacologic CNS therapies. This review outlines existing evidence of POTS as a CNS disorder and proposes a hypothetical model combining key mechanisms in the pathophysiology of POTS. Redefining POTS as a CNS disorder can lead to new possibilities in pharmacotherapy and non-pharmacologic therapeutic interventions in patents affected by this disabling syndrome.
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21 hours ago, Viktor said:
Now I will try to explain it more clear: it's the feeling of inefficient breathing (breathing is slow, I never gasping for the air but just uncomfortable) it seems like the nerve impulses from the brain are too slowly reaching my respiratory muscles or organs, thereby not telling them to do its job right (and the signal is worse on bad days)
Low RR thread: https://www.dinet.org/forums/topic/31630-low-respiratory-rate-anyone/
Same here slow inefficient breathing.
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2 hours ago, RecipeForDisaster said:
I was breathing at 6 per minute for most of the test!!
https://www.dinet.org/forums/topic/31630-low-respiratory-rate-anyone/
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On 11/9/2020 at 8:01 PM, Pistol said:
hmmm ... odd! I keep hearing on this forum that doctors say MCAS is very rare
"MCAS has been estimated to affect as many as 17% of the population with a severity ranging from mild to life-threatening." Ref
On 11/9/2020 at 6:11 PM, KiminOrlando said:
I have Rheumatoid-arthritis. This is why he doesn't believe I have it.
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8 hours ago, Pistol said:
Thanks. Nice tab btw.
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I placed it within a pinned thread on POIScenter. Ignore the POIS stuff, scroll down to other conditions, it's under the '1' next to POTS. It contains more useful links:
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12 hours ago, Ashc said:
What did your specialist say?
That it's POTS.
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I kept records of measurements. Sometimes it showed a HR change of near, but below 30bpm despite heavy symptoms. But taking many occasions into account of >30bpm within 10 min gives you a different view on the situation. I took measurements on healthy people as well as reference to check if the device kept working properly. Showed it to a specialist.
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On 1/22/2020 at 7:55 PM, TCP said:
I have EDS 3
Is your spine hypermobile?
Methylene Blue
in Dysautonomia Discussion
Posted
No, that’s methamphetamine. I have placed a link to a book about Methylene Blue on the first page of that thread.