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Everything posted by Muon

  1. Option: You could Try Neuroprotek or PureLut, at least 2 capsules in the morning and 2 in the evening (build it up and could add 2 during mid-day if not strong enough) ) for a minimum of 4 weeks.
  2. I didn't know that. Do you have a source of this?
  3. Someone on the poiscenter forum had the same issue. He had elevated hBD2 in his stool and suspects it could be present in his urine as well. https://poiscenter.com/forums/index.php?topic=146.msg1344#msg1344 More: https://poiscenter.com/forums/index.php?topic=3739.msg39898#msg39898 Defensins in the Urinary Tract and Other Tissues
  4. In what way? Sensitivities, digestion or lack of blood supply to the stomach? I have seen people complain about cloudy urine elsewhere. Do you have any problems with ejaculation?
  5. Is postural orthostatic tachycardia syndrome (POTS) a central nervous system disorder? Same thread on Phoenix Rising forum Abstract Postural orthostatic tachycardia syndrome (POTS), a disorder of the autonomic nervous system characterized by a rise in heart rate of at least 30 bpm from supine to standing position, has been traditionally viewed as a dysfunction of the peripheral nervous system. However, recent studies and evidence from overlapping conditions suggest that in addition to being considered a disorder of the peripheral nervous system, POTS should be viewed also as a c
  6. Inflammatory Biomarkers in Postural Orthostatic Tachycardia Syndrome with Elevated G-Protein-Coupled Receptor Autoantibodies
  7. Low RR thread: https://www.dinet.org/forums/topic/31630-low-respiratory-rate-anyone/ Same here slow inefficient breathing.
  8. https://www.dinet.org/forums/topic/31630-low-respiratory-rate-anyone/
  9. "MCAS has been estimated to affect as many as 17% of the population with a severity ranging from mild to life-threatening." Ref On 11/9/2020 at 6:11 PM, KiminOrlando said: See Supplementary Table 4
  10. Thanks. Nice tab btw. https://www.dinet.org/links https://www.dinet.org/links/postural-tachycardia-syndrome-a-practical-guide-to-management-and-associated-conditions-r270/
  11. I placed it within a pinned thread on POIScenter. Ignore the POIS stuff, scroll down to other conditions, it's under the '1' next to POTS. It contains more useful links: POIS paper treatment summary
  12. I kept records of measurements. Sometimes it showed a HR change of near, but below 30bpm despite heavy symptoms. But taking many occasions into account of >30bpm within 10 min gives you a different view on the situation. I took measurements on healthy people as well as reference to check if the device kept working properly. Showed it to a specialist.
  13. No, did not do a sleep study. I don't have problems with sleep at this moment regarding breathing (I might idk, that's what the screening is for I guess). Had problems with sleep in the past when my POTS peaked, woke up every morning exactly at 5:00 am with a focal headache but that's another story. Also woke up once with a bell's palsy (woke up with my left eye open).
  14. Not diagnosed with MCAS but I suspect it's playing a role in my symptomatology: Case description No seizures though. One of the worst triggers is release of (pre)ejaculate.
  15. Once every 10 seconds for the last two days in rest (sitting), so it's ~6/min (if I'm using a stopwatch, very subjective, age=35 in 2020). This needs to be objectified by measuring devices and for longer periods though. Sometimes breathing just stalls and have to remind myself to keep breathing. Thanks for this thread now I know it's far below normal. There also seems to be something going on with my heart, not sure what.
  16. A potential new pathophysiology for POTS? Mechanism of choline deficiency and membrane alteration in postural orthostatic tachycardia syndrome primary skin fibroblasts
  17. I had episodes of these, though they are rare. No idea if this had anything to do with dysautonomia related symptoms or any of my other complaints.
  18. Check the guide inside the thread below and use the search function (CTRL-F) for terms like renin or aldosterone. https://www.dinet.org/forums/topic/31618-postural-tachycardia-syndrome-a-concise-and-practical-guide-to-management-and-associated-conditions/
  19. Very nice guide. Postural Tachycardia Syndrome A Concise and Practical Guide to Management and Associated Conditions Article has been placed in the link directory of the information resources tab: https://www.dinet.org/links https://www.dinet.org/links/postural-tachycardia-syndrome-a-practical-guide-to-management-and-associated-conditions-r270/
  20. Recognition and Management of Medication Excipient Reactivity in Patients With Mast Cell Activation Syndrome Mast cells are able to release Renin and Chymase which lead to increased Aldosterone. Could AT1 receptor antagonist be helpful?
  21. What is the gender ratio of male to female on this forum? And is there any asymmetry in gender ratio in POTS(any articles in literature provding a number?)?
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