Achilles2323

Thank you!!!!

Awesome to hear

PCP wants to start me on it.

What do you think ? Worth a try ?

Thank you so much

I am a little nervous about this scenerio

Dr blitzhyn seems to think I might have mito disease

I was jus wondering if anyone knew the specific blood test

To check for mito ? Besides the.muscle biopsy ?

If you were able to go to one of the top specialist associated with POTS

what would you ask ?

any ever have normal bp hr and still feel very lightheaded and almost off balance while walking or standing ?

almost swaying ?

Can a MRI test detect early Alzheimer's?

any 1 have any clue what the withdrawal symptoms are

on

midodrine and doxazosin ????

i was taken off doxa 2 weeks ago and midodrine this week

thank you so much

i have many Alzheimer's symptoms =/

Can pots cause Alzheimer's type symptoms ????

I am really scared I might have it...

A lot of people with pots ....do they wind up having g mito disease or is it rare ?

Oh OK

Is it rare ?

And does any 1 know the main symptoms?

Mitochondrial disease

any clue how to rule this out ?

can stress echo rule this out ?

or are there other tests ?

They are the worse ;/

wow and i am frustrated after 5 months =/

How many of you have never found the cause of there POTS ?

And how long has it been ?

For me 5 months no 1 can tell me what happened :/

I know people have been going on longer much longer

Well then I hope its not pheo :/

Really dunno what to do

These attacks are horrible

http://www.mayoclinic.com/health/pheochromocytoma/DS00569/DSECTION=treatments-and-drugs

really appreciate all the info and help on here

but doctors are not sure whats going on =/

they are gonna look into pheo

but i am not so sure my self

just know the feeling is awful

thanks for all the support

So last night i had to call the ambulance again....

hr went to 170

when i took my bp it was 170 over 105 with a 135 heart rate

my body was shaking like i was freezing cold

calmed down after about 30 minutes to an hour

i am not really sure what to do during these episodes as they are fairly new to me

i had 1 a week for the passed 3 weeks

i feel awful the next day as well....

and when it happens it feels like doom ...i know it sounds silly but its the worse feeling in the world

can any 1 help me with this ?

has any 1 ever had this happen 2 them ? and if so how do you cope with it ? doctors are looking into pheo and etc

until then i am not sure what to do i cant keep calling the ambulance =/

Silly question but I have to draw blood tomorrow for a lot of tests the doctor ordered. I have a 24 hour urine test and tomorrow as well will the drawing of the blood effect the urine test

Cortisol and catacholomines urine

ok so its not just me =)

Has any 1 ever had a stress echo done ? And if so did it reveal much ?

thank you very much.

i will try the test out on some 1 without POTS