Achilles2323

has any 1 ever seen her ? or heard how she is ?

i finally made an appointment and i am hoping she can put it all together for me =/

Thank you

tryptase in blood, N-methylhistamine in urine, heparin in blood,

chromogranin A in blood, or other specific mast cell mediators such as Prostaglandin D2 or leukotrienes

That looks like the last test

Will ask my doctor

OK what I have gathered so far is

1.24 Hour Urine N-Methyl-Histamine Test

2.tryptase blood test

Anymore that can help ?

The only reason I make my own posts is because when I use the search bar it doesn't work....my phone is rewlly old ....

All I need to know is the name of the test to diagnose mast cell

Thank you

Whats the name of the 24 hour urine test ?

how do you diagnose MCAS ? i understand its complicated but are there tests for it ? besides tryptase blood test ?

What test is used to diagnose mast cell issues ?

has any 1 ever tried neurofeedback ?

not sure if i should do it or not ?

what do you think ?

help me out

i saw a neuro today

he did an SSR TEST Sympathetic Skin Response

he wants to do a 2 day EEG

he is ordering a xray on cervical thorac and lumber spine

he told me he wants to do neuro feedback ? is this any good ? is it dangerous ? and does it work ?

any help ?

thank you so much

i am on

atenelol

midodrine

doxazosin and

klonopin

never took florinef

but my potassium is always low for some odd reason even tho i eat bananas and drink Gatorade every day

i have had POTS for 4 months so i am not sure as what caused it because it just came on out of the blue

but i kind of hope its not hyper because i heard its harder to treat and will not have a chance to go away

as pots with no underlying condition can go away is what i am hoping for

but this blood cat test should do it..

30 min rest take blood

and then

30 min standing up and take blood correct ?

mmm bananas interesting i eat 2 a day lol

guess i should stop before the test

ok thank you

would being on meds effect the .catecholamine blood test ???

What are the symptoms between hyper pots and regular pots ?

I don't have the money :/

Trying my best to find out wuts going on

Hospital told me I have orthostatic hypertension the other day

I am trying to find out if I have hyper pots .....so lost at the moment

No 1 has found the cause and I suspect I I have hyper pots with the increase in bp upon standing

I need a pots doctor in NYC

so the only way to diagnose hyperadrneic POTS IS

with a plasma catecholamines test.

?

is there a print out i can take to my PC doctor so i can tell him i need this test?

plasma catecholamines test

NE/catecholamines test

when i did my TTT they did not take blood and had me on my meds =/

not sure it came back rite

ok so lay down for 30 min then take blood

then stand for 30 min and take blood again?

is this the only way to diagnose hyper pots ?

i dont have the luxury of doctor grubb =/

so there is POTS & Hypergeneric POTS ?

what other types of POTS are there if any?

So 24 hr urine cannot diagnose this ?

how do they diagnose Hypergeneric POTS ?

How do I go to that 1 week program ? Where they look for whats causing your POTS??? Anyone have any idea ?

A number ?

Any 1 know of any good Genetics doctors in the area of NYC ?

I am so thankful for all the help on here my fiancé and mother took a video of my heart going from 60 to 110 just upon standing and they also said j think that I have ortho hypertension