Achilles2323
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Posts posted by Achilles2323
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sounds silly
but my heart rate goes from 66 to 84 just drinking water or gatorade ? like 3 big sips ?
and comes back down within 5 minuetes ...but is it normal for that to happen ?
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Originally they put me on 12.5 once a day
But it would wear off by the next morning so they cut that in half
Sometimes I run 40-49 hr
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Can't tell you what to do
But I can tell you in the hospital my hr went from 70-140 upon standing
And I am on 6.25 atenelol twice a day
Morning / night
It has helped me
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yea i hope so 2
so tired of this =/
thanks for all the help
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has any 1 ever watched the secret on netflix ?
if so what did you think?
if not watch it and let me know what you think ?
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Over active adrenal glands ?
Something i suspect
I am going to and endo this week
Hopefully he helps
Mind you this is on a lot of medication
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Raglands Test ????????
Laying down bp and hr119 over 69
56 hr
standing up rite away
132 over 80
hr 80
could it be my adrenal glands ? -
yea i had this happen yesterday and i dont understand whats going on
it feels like your heart will come out of your chest =/
happend twice in two weeks and i am on meds
not so sure as in what to do.
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worse feeling in the world =/
how long does it take until it goes down?
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Any 1 just laying down ever have there heart rate spike like crazy ?
had a really bad episode last night hr went from 80 and climbed to 160 came back down to 110 and stayed there for a bit
then i took an extra dose of atenelol and it went down to 90 and i fell asleep
has any 1 ever had this happen just laying down not doing much ?
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ok the Mayo Clinic said to have my PCP call in and they are willing to help find a diagnoses
they said to call and ask for a POTS specialist.
my question is ...who is the best POTS doctor in that specific hospital ? so i can tell my doctor to ask for that specific person ?
if any 1 could lend a helping hand it would mean a lot as you know how hard a diagnoses is =/
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thank you so much
have an appointment the end of next month
really hoping she can help
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congenital adrenal hyperplasia
Sounds like you have to lack cortisol and others
I just have high dhea
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OK let me see if I can find anything on the search
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Ohhhh mmmm OK lol
Was hoping to find a cause but if that's the case then I have to reset
Thank you for your input
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I have not been able to find a cause for my POTS ...received blood results today and my dhea was high...normal limits 31-701 and mine was 1163
Problem is I have no clue what this means .....does any 1 know why dhea levels might be high ? Hoping this can lead me to the cause of my POTS
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Mighty your not old =) dont worry
old is 90 and above
e soskis which one were you unimpressed with ? just out of curiosity...i am sorry you had this happen and i hope you get the care you need from your hometown hospital.
tachy no problem at all, we are all in this together
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great =)
thank you so much for all the help
just hoping its worth the 10 hour drive.
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thats awesome i really hope Vanderbilt can help you.
Please keep us updated on how it goes...
yea john Hopkins isn't to far from me either thats why i ask
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I know mayo keeps you for about a week
Not sure about the others
And I heard they do repeat test the deem necessary
Its fine we are all helping each other
Just posting because I want to eventually get to the best 1
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Go ahead and chime in and vote.
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any idea how good they are ? dealing with POTS ?
i know the ideal situation is to go to Minnesota ...but its a 6-8 month wait
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i am hoping to hear from some 1 that has went to her =/
thank you so much for all the support badhbt =)
i really hope we get answers in june as well because my Wedding is in August
just wanna enjoy that day!!!! cant do so unless i am back to my normal self
i will keep every 1 informed
i am also on the waiting list for the Mayo Clinic in Minnesota so between Blith and Mayo i should get the answers i need within time
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oh i have watched it =)
when i was first diagnosed 4 months ago
i really hope she can bring me and my family answers
gonna make the 10 hour drive there.
Normal For Pots Heart ?
in Dysautonomia Discussion
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heart rate is fine moving my arm...its drinking any kind of beverage it goes up quite a bit
yea i wonder if this happens with people without POTS ?
but weird enough when i hold my breathe it only goes up 5-8 beats, but when i drink anything it goes up 10-20 beats ???