cupcakemomma5

Xoxoxoxox

Thank you all for the responses!

I am going there on Tuesday with less weight on my shoulders.
I will post anything useful : )

Due to the fact that my body is having a very hard time absorbing Iron, I am being sent for an upper endoscopy. I have never had anything like this done, since I am a little bit scared, my ANS is kicking my anxiety into overdrive...lol

Has anyone had this done? And for this reason.

Hah, @relax, I thought the same but strawberries, lime,tequila....lol

Sending you positive vibes and lots of {{{{hugs}}}}

Keep us posted.

Interesting about the tramadol. I was given a mix of tramadol with acetaminophen to help with the headaches I was getting as part of my potsie symptoms. After when my doc wanted me on cymbalta I had to stop the tramadol mix, due to conflicts between the two. I never had issues coming off or anything. I found it didn't help with my symptoms other than headache.

Thank for the information on it!

I also learned from being in the hospital....we are fortunate. We are alive. Yes days can be cruddy. But hey we woke up and took a breath. OCD, Anxiety and POTS....the pity card came out often for myself, some days it still does.

I had to take a new outlook on life. Not to care what others thought. I had to place my health and happiness first. It's hard to do. Trust me, there are still days that I feel like I have let someone down,or hurt feelings, Or I am just failure! but then I look at myself (really in a mirror) and remind myself that I have been less symptomatic since I let go of all the crud and to keep going.

CupCakeMomma,

I just want to say that I love your outlook. You describe the situation so well. I'm still struggling with a lot of the points you mention, especially failure and self worth, but you've gotta face the clouds to find the silver linings. Keep on keepin' on! : )

Thank you for your comment : )

Hi there,

In the general discussion forum. We have been messaging bck and forth about what we are both trying

I don't know much about taking raspberry keytones and other vitamins.

I have also added a vegan protein powder that you can get at Walmart or gnc....

I typically add spinach,bananas, strawberries, flax seed, and some avocado to make it more smoothie consistency.

I am usually full after drinking this.

You can add orange juice if you find your sugars bottoming.....

Take care

Let me know if the kids give it a go...lol

Really freaked out about my kids....llol

My mom has fibromyalgia, and now me with this, it's unnerving to think we're they will end up.

Sending you peace calmness and always a huge (even virtual ones make a difference )

Try adding avocado it really comes out nice with the spinach.

My usual routine now is banana,strawberries, frozen mango,avocado,spinach and water. This one is nice.

I also switch out the mango for frozen blueberries. Also we can add some flax seed to ours.

I bought a vegan protein powder to add but having trouble with the taste....lol

I will have to learn new recipes for that!

Will have to try that one. Thank you!

Question...Is POTS induced anxiety not helped much from talk therapy? I get what feels like surges of anxiety/adrenaline/extreme fear/doom in my chest; a tightness in my chest. Does that adrenaline type anxiety even respond to "talk" therapy? It seems like a chemical issue here, even if it POTS induced. I honestly think a lot of my anxiety is because of POTS. Talk therapy (CBT and Exposure Therapy) has never helped me. I've tried those for over 2 years and also tried intensive-outpatient therapy and I feel worse off now than ever. Thanks.

I personally found that talk therapy was more useful for coping mechanisms, rather than ease the anxiety. Now, that being said, she did have me get a hr watch, this way here I was able to "see" rather than feel what my heart was doing, and if it was a POTS anxiety (hr would shoot through the roof) or if it was just normal anxiety. This did help.

As for marijuana, I found it made my anxiety worse...

Always worried about what others thought..."So just because she gets anxious, she is now a druggie.....hooked on pot, not like she has enough pills, but now she smokes dope all day "........lol

I have a tough family. Had to move 2 hours away to finally be sane...lol

I also learned from being in the hospital....we are fortunate. We are alive. Yes days can be cruddy. But hey we woke up and took a breath. OCD, Anxiety and POTS....the pity card came out often for myself, some days it still does.

I had to take a new outlook on life. Not to care what others thought. I had to place my health and happiness first. It's hard to do. Trust me, there are still days that I feel like I have let someone down,or hurt feelings, Or I am just failure! but then I look at myself (really in a mirror) and remind myself that I have been less symptomatic since I let go of all the crud and to keep going.

If ever you wanna pm me, please do.

I can always listen or rather read ; )

Thanks bebe! Will look up dr. Oz.

I have tried some juices on my own, and they haven't turned out that bad. Just more curious to see if anyone had some they found useful

Cheers.

I am so sorry you are in this boat.

I will talk from experience, I was at a point in my life (15 years ago) where the anxiety was so ridiculously bad I physically couldn't get out of bed. The thought of even going to the doctor would send me into such a tailspin, rushing heart, sweating, the feeling of either vomiting or worse....the other end : ( it was scary.

At the time I wasn't on any medications and was not diagnosed with POTS. So I had to do it on my own. I really got into meditation, yoga deep breathing....all that stuff...lol. Know what, did nothing for me...lol. I gave everything a try.

I was so tired of thinking I was crazy, till I found this one doc who realized that there was a missing synapses which triggered anxiety like symptoms. She put me on celexa and there I stayed for 12 years. Now after all is said and done. I ended up in hospital in Aug. With all the same crazy like symptoms and was finally dx with POTS. Put on proper meds and have been symptomatic free. Anxiety is still somewhat there, she upped my dose of cymbalta, and so far so good.

I don't know if any of my babble will help. Just hold on, there is always some forms of light at the end of our crooked tunnels (if they were straight,we'd be like everyone else......just a ittle boring. Sending hugs.

Just wondering if anyone has some yummy drink/smoothie recipes. With or without protein powder.

I find due to all my meds I am not hungry. And I am trying the smoothie thing in the morning to give me some nutrients!

Fingers crossed for you and your family : )

Maybe just not having done them in that long a period, put some spasms in your upper left quadrant....

Just a thought, when I was discharged from the hospital, if I did more than 5 stairs my chest would cramp, my arm tingle, actually thought I would stroke out....

That just my two cents

LOL...this is a daily thing for me.

wish I knew the reason, very frustrating to have your legs feel like jello for no reason.

Sorry for the rough day.

Hugs sent your way : )

@ rama. My QSart was diminished in lower extremities, and I had syncope within 6 minutes of the ttt.

So I don't know. I have an appointment on the 26 and hopefully my gp will agree with me and we will see another doctor.

The tech asked since when was i dx, and I told her Aug. She laughed and said oh you're new to the game.....what the heck!

Well now I am going to wait and hopefully someone else will have answers for me.

I see my gp within the next 2 weeks and cardiologist in a month. Maybe I should get a 2nd opinion with the doctor in my province...

Well back to square one!

Thank you everyone for responding : )

The first ttt I had, the one that confirmed my POTS diagnosis was completely off meds - I was told back then that meds would have interfered with the results of the test.

The second test - on meds - showed no sign of POTS. I know my dr wanted to see if the meds are working for me.

The other thing - from experience, anxiety does tend to play a role as well. I remember freaking out the first time I saw myself strapped to the table, so my resting HR was pretty high and I fainted 6 min or so into the test (and I never fainted before).

Was this your first ttt, or did your dr order a second test to see if the meds work - like mine did?

The problem with 'fake' info in the medical reports is something I've dealt with as well. I did mention the discrepancies to my dr and he seemed willing to make the changes - whether he did or not...I have no clue, the problem is - all the other drs I've seen most-likely considered that info as valid, so trying to fix these types of errors is a huge battle.

Sorry things aren't really working out yet...it's not like you - or any of us for that fact - can afford to waste any time. It's hard when you have to go through so much to get some decent answers.

Hugs,

Alex

I Alex, yeah it was my first ttt done, so I was expecting some issues but not like these. And he stated that fainting is not a POTS symptom.....so I had a great time with the whole kit and kaboodle!

Thx for the hugs : )

@ Enid, we saw the same and he stated to come in on my meds. Then the test were inconclusive because of them!

I was NOT a fan of him at all! He spoke to me for 3 minutes, arrogant bumm.....lol

Now I am waiting for hard copies of all the test etc and see where to go from there.

nd he questioned why I was not on midodrine which is the normal drug, and so I told him that midodrine bottomed out my bp and my hr went to 200. So while in hospital they had me come off it. He told me that great you'd have to be difficult case. No word of a lie, I left his office in tears just how blah I felt, and now for the best part, I am having a reaction to the solution they use for the QSART, and have hives from head to toe...

All I can do is laugh!

Just curious to see if when you had the ttt done were you off your meds or on them.

Was dx with POTS in Aug after numerous testing, and was put on atenol and florinef, and then was sent for QSART and TTT and Dr. Stated inconclusive results due to meds, and probably just anxiety!

I am soooo confused, he wanted me on the meds to see how body responded on them and Now I am back to square one.

He didn't even listen to my past history, I received his note he was forwarding bck to my gp and more than half of what is written is false information. Now what?

So my main question is if anyone was on their meds during the ttt or were you requested to be off them for 48hrs prior to testing.