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ramakentesh

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Everything posted by ramakentesh

  1. Well since my mother had an overactive thyroid, the hand tremor was similar to that. But i was/am cold all the time rather than hot and sweaty like with an overactive thyroid. I also had thyroid nodules, but my TSH was never below 0.5 and my t4 was only high on two of the five occassions it was tested, and then only slightly. My thyroid scan was normal. Im starting to put weight on again. My strategy has been to avoid processed foods, and concentrate on eating vegies, fruits and lots of fish which seems to help. When i lost weight i lost it the same way - my upper arms and legs just dropped off - and my face looked so skinny and sallow - i went from 78Kg to 66 in about a month or so. My arms and legs are still skinny now, but my stomackh is comign back. In short, my main symptoms are palps, tremors, dizziness, lightheadedness, balancing problems on standing worse inthe mornings, vitreous floaters, and a whole load of other stuff.
  2. Has anyone else been told that their symptoms seem very much like an overactive thyroid? My tachycardia and my trembling hands were so similar and when i was losing lots of weight when this was at its worst, they thought i had an overactive thyroid. But my levels were only slightly abnormal so it was ruled out by a professor. This guy even commented on how similar my body was acting to an overactive thyroid. Is this a common thing? Also, my worst symptoms is dizziness - when i sit sometimes, but especially when im standing in the morning or walking around - it get better usually as they day goes on, then at night i get the cold hands and feet and palps = my heart is racing while i lie in bed some nights. The other thing is when i stand and i focus on nothign with my eyes - just sort of stare blankly, i can actually see my heart beating in my eyes - i can hear it in my head too - at night or when im standing or if i get stressed (i have much less stress tolerance now)-----------
  3. i too get very tired periods where i can barely keep my eyes open and also no matter how long i sleep in on the weekend - after dragging myself outof bed every day for a week for work - i still feel really tired. Once ive eaten though im much better. My biggest tip for fighting that tired cant keep my eyes open feeling is an apple or orange juice.
  4. Dont tell me you have slightly elevated bilirubin and Alkaline Phosphate as well?? Mine is unexplained - but is assumed to be the reult of a virus that i picked up and that may have triggered my POTS
  5. indeed! Id almost argue that caffiene brought my POTS on - well that and excessive exercise for a week before hand! But when i used to get the slight symptoms i got at the start i always just put it down to caffiene intolerance as it always made things worse for me - worse tremors, weaker body, but fidgety and could keep still. After i got full blown, i had a sip of weak tea and i was wired and anxious for hours. its a no go for me.
  6. yeah im feeling much better, but it was a strange reaction - primarily because it came on a day after the actual event. I felt so spaced out and weird, and all my symptoms were really enhanced. Thanks for all your replies. During the event i did feel slightly more disorientated after one drink, but after another i felt great. On the way home apparently my body was trembling -although i dont remember this, and then the next night it all came on. I now know what to chiefly avoid. I was also wondering whether people get these tired moments every day where they can barely keep their head up?
  7. I recently attended a party for a friend who is moving overseas and with0out really thinking for once, i consumed a large amount of alcohol. This was pretty much the first time ive even touched alcohol in nine months. I awoke the next day with a bad hangover, but i recovered from this by that evening. But at around 11:30 it as if my body went into overload. My heart began to pound, my skin was cold and clammy to touch, my usual tremors were ten times worse - my whole body was shaking, I was anxious and out-of-it, double vision, pale, my usual standing dizziness was much worse and for the next day and a half i couldnt think straight and my sleep was very bad - light and full of dreams and my heart rate was too high - making it uncomfortable to lie down. Can anyone relate a similar experience? Im more confused than ever.
  8. The vitreous flaoters all arrived within two weeks or so and at my worst they were so bad that it was like looking through curtains all the time. I recently also made the mistake of drinking too much at a party and a day later i felt the worst ive felt in ages - out of it, tremors, cold, light sleep. I have a doctor now who is quite knowledgable, but its just a relief to realise your believed!
  9. Im new here and have been diagnosed with POTS. I had a terrible time getting diagnosed: nine months of being treated like a loonie. Originally my first doctor thought it might be my thyroid so sent me for tests - my thryoid hormone was slightly higher than normal and i had some nodules so he told me it was my thyroid and put me on inderal (beta blocker). The problem was i was so terribly dizzy, lightheaded and out-of-it unless i was lying flat in my bed that the inderal made these symptoms worse while getting rid of the palpitations, breathlessness and tremors. Initially my symptoms were waking at night with a pounding heart beat, termors, and double vision - then my hands would tremble and my chest would ache. I got vitreous floaters all through my eyes and my nipples were swollen. When the endo said that it was not my thyroid, but had to be 'anxiety.' i felt so angry because i knew that i was not going mad. I went to two more endos and one suggested hypotension upon standing, but because i got higher blood pressure and hreat rate upon standing i was told that it 'couldnt be that - and must be psychosomatic.' I went to my old doctor from childhood who suggested that i was a 'speed addict - its obvious from your tremors and weight loss.' I went to naturopaths who told me i had reactive hypoglycemia - which was sort opf true as my blood sugar was dipping low, but my adrenal response was over the moon - tremors, confusion, chills, dizziness (more than usual!) Every time i went to the supermarket or a the plaza, the neon lights and crowds woiuld overload me and i woulkd be so dizzy, weak and spaced out that i could barely keep my eye lids open. I would go home, loy down and then be fine ten minutes later. My fingernails started to get ridges and my eyes were full of vitroeus floaters, i couldnt deal with any stress and had the odd panic attak - which was hard to accept for a rational person like myself. Then i went to an alternative doctor who suggested chronic fatigue complicated by thyroid abnormalities, then it was gilbert's disease, then a host of other obscure diagnosis - although im sure all the doctors thought i had anxiety - every specialist i saw jumped to that conclusion and i could tell that my GPs suspected it as well. Then i found POTS on the internet, copied the details and took it to my doctor. He instantly asked me to lean forward and whether i felt my heart punding in my head - i said yes - off to a specialist who confirmed POTS. FInally a diagnosis after months of fear, trauma and doubt... Now what do i look for to treat these problems? Lots of salt? My blood pressure is 140 over 80 standing. Or should i try midodrine?
  10. Im often hyperactive - so much so that they thought i had an overactiev thyroid. I find that inderal helps as does a tea of valerian (safe herb) and if i even touch caffiene im so dizzy and spacy that im on a different planet.
  11. ive got POTS witha slightly overactive thyroid, but still feel cold all the time. My hands and feet are often freezing - and this is from a guy who used to wear tshirts in winter and ride on a bike in the wind to school!
  12. Im new here and have been diagnosed with POTS. I had a terrible time getting diagnosed: nine months of being treated like a loonie. Originally my first doctor thought it might be my thyroid so sent me for tests - my thryoid hormone was slightly higher than normal and i had some nodules so he told me it was my thyroid and put me on inderal (beta blocker). The problem was i was so terribly dizzy, lightheaded and out-of-it unless i was lying flat in my bed that the inderal made these symptoms worse while getting rid of the palpitations, breathlessness and tremors. Initially my symptoms were waking at night with a pounding heart beat, termors, and double vision - then my hands would tremble and my chest would ache. I got vitreous floaters all through my eyes and my nipples were swollen. When the endo said that it was not my thyroid, but had to be 'anxiety.' i felt so angry because i knew that i was not going mad. I went to two more endos and one suggested hypotension upon standing, but because i got higher blood pressure and hreat rate upon standing i was told that it 'couldnt be that - and must be psychosomatic.' I went to my old doctor from childhood who suggested that i was a 'speed addict - its obvious from your tremors and weight loss.' I went to naturopaths who told me i had reactive hypoglycemia - which was sort opf true as my blood sugar was dipping low, but my adrenal response was over the moon - tremors, confusion, chills, dizziness (more than usual!) Every time i went to the supermarket or a the plaza, the neon lights and crowds woiuld overload me and i woulkd be so dizzy, weak and spaced out that i could barely keep my eye lids open. I would go home, loy down and then be fine ten minutes later. My fingernails started to get ridges and my eyes were full of vitroeus floaters, i couldnt deal with any stress and had the odd panic attak - which was hard to accept for a rational person like myself. Then i went to an alternative doctor who suggested chronic fatigue complicated by thyroid abnormalities, then it was gilbert's disease, then a host of other obscure diagnosis - although im sure all the doctors thought i had anxiety - every specialist i saw jumped to that conclusion and i could tell that my GPs suspected it as well. Then i found POTS on the internet, copied the details and took it to my doctor. He instantly asked me to lean forward and whether i felt my heart punding in my head - i said yes - off to a specialist who confirmed POTS. FInally a diagnosis after months of fear, trauma and doubt...
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