Angela

Maybe a cause for some but not in my case, I was med free and had been my whole life when pots hit.

Angela, may I ask how this was dx'd. Is there something specific I can ask my Dr to do? I feel so bad when this happens. This is the one thing that REALLY scares me.

sorry i did't get back to you, abnormal brain slowing dx'd thru eeg, put on seizure meds for 3 months and then later reexamined by mayo epilepsy seizure spec. who said that it was not "true" seizure or epilepsy. we will see! however, someone else with pots who I recently have been in contact with is on seizure meds with the same explanation - lack of oxy to brain.

why were you taking ativan in the first place.?

That is interesting. I was considering checking with my neuro about an SSRI to wean off klonopin (currently on 1mg and it was a godsend for me) I started off on SNRI and klonopin but got off the SNRI didn't have a withdrawal but it did nada for me. Now I don't think I am going to mention the SSRI (which I was a little uneasy about regardless)

hey....was that cigar when your baby was born lol? cigars are a lot heavier than cigs heavier smoke and different ingredients.

Snowdrifter, I do think that smoking can deprive your brain of oxygen......I havn't done any research on the nicotine patch or nic. gums. That being said, I wouldn't advocate taking up smoking as it is not a cure for me. Only saying that it is calming for me, perhaps because my body is addicted to the chemicals in it so it turns into somewhat of a med for me.

I guess I look at it two ways, lotsa people with pots are/have been on meds that can cause damage long term to organs or are dangerous to come off. everyone knows the long term effects of smoking are not healthy so why start now?

but I would think trying the nic gum isn't going to kill you, see if it helps maybe if you are curious.

your eeg may have shown abnormal due to not enough oxygen to the brain, that's what I was told and someone else I with POTS got the same explanation from her doc.

Yeah, my bf gets crabby too:) I know he cares but he doesn't even like hearing anything POTS related and sometimes throws out there that he won't drive me to work if we are not agreeing on something. But he usually apologizes if I have to drive when I get home from work white in the face LOL.

he seems very postive as far as attitude and hope he hangs in there and doesn't relapse.

Niomi posted this on another thread about this awhile back

http://www.dynainc.o...iggler-crusader

http://articles.latimes.com/2013/jan/18/news/la-heb-sex-differences-autoimmune-diseases-bacteria-20130118

I know people without pots whose metabolism acutally increased with having children.

i smoke (wish I didn't) have tried patches and the fake cigs that are smokeless but can't quit. I am one of those long time smokers, since age 17, my parents smoked etc. I feel perhaps maybe I get a little more dizzy after I go out for my morning cig but after that cigerettes don't make me feel bad thru out the day, and at work it actually forces me to get away from my desk and walk around a little outside. I feel like it doesn't make me better except calms some sort of dopamine release? not sure. really wish I could quit, i venture i'll die one way or another tho. plus my bf smokes so that makes it harder to quit.

Ashkenazi jews - familial dyso. i wonder if that skews the numbers. russia (ussr) is not as big as it used to be. for ex. i am lithuania/estonia/latvia purely from my mom's side by her dad and mother. I don't know about my dad but probably will from 23&me. other new countries broke off but used to be part of russia too....that is where my question was coming from. New Russia or old Russia. not sure it matters...again.

so is it day to day with you all ?????(no offense please) or just long term?

and bahhh, facts.science. sounds like hyper species are on another planet, BTW, in case they didn't make it clear, salt loading if u do shoud be sea salt, not table salt, just cuz i saw too many people dumping iodonized crap on their food cuz they thought the had to "salt load".

LOL if this posted 2x. don't know why

what part of russia and from when?????????????sorry i may be to excited so to speak.

any parasite eradication using rife, diet or whatever can result in deadly inflammation. i think that is why it is so controversial, other than the antibiotics which Dr, Fry did not push me for whatsoever, he even gave me 3 herbals that he thought effective but he emphasized diet, no more than 20 fat grams per day. i still do not understand the adversity over this, but oh well. not many doctors are willing to take on that liability as what lyme/etc are doing.

i was dx'd with seizure activity when this happens. lack of oxygen to the brain is what i was told eventually....and seems to make sense.

not on a bb as it made me sicker but still have the sensation of forgetting how to breathe. if that's what you mean by labored breathe. ?

Fwiw ... I've noticed that in my celiac support group meetings, most people have no idea what the

terminology is for ataxia, dysautonomia, etc. And yet when I show it to them, many can relate or say that they

have family members who have this.

Very long bow im afraid - subjective symptoms are a long way from measurable clinical diagnosis. I have also noticed that people that suffer Ank Spond seem to report symptoms identical to POTS and autonomic disfunction - perhaps its just a result of autoimmunity in general? If you ask someone whether they have an illness and they say that they have doesnt really equate to that being a fact or having any scientific or credibile evidece to support it.

I developed pots when i got ank spond. I know there is a genetic predisposition to ank spond although no one else in my family has it. Do I think my diet and behaviours pre illness increased the likelihood that i would contract the illness? Almost definately. I ate a lot of crap and I realise that now. I drank a lot of alcohol at uni but so did all my friends and some had far worse diets than I did. Yet im the only sick one.

I think its all about genetic and epigenetic predisposition and then perhaps triggers in your life (diet, stress, early infections, other factors) that increase the chance of the illness coming on. Ank Spond is a good example - 90% of patients have HLA-b27 but only a small % of people with that gene develop ank spond.

I always say it and ill say it again. If you dont keep an open mind about the causes of illness your doing your self a disservice. its good to have a theory but rather than exclusively looking for only those facts that support it you need to apply science to it and test it at every chance and dont be afraid to doubt it.

" We all get our kids immunised and surround them with plastics from an early age."

nice Rama, and about diet. what changed your mind? and, btw, I don't think anything is truly "organic" anymore.

i guess i am going to go in on this....never experienced this. I have always been able to eat, and I eat constantly i believe I have a high metabalism for what I eat and the fact that I don't work out. never feel nausea. prior to my first major flare i had what I thought was irritable bowel, but it went away after 3 months. after that i think about 6 months later i started experiencing my most obvious dyso flares. but no, never even in my worst flares have I felt like i couldn't eat for longer than 1 day. when it's that time of the month, i am less hungry but i can still eat. I am dx'd hyper pots and not sure what the rest of you are but it seems more hypo pots has issues with this?????

going to add, i think it had to do with bad or good stressers tho is how my memory is.

i have amazing long term memory. i can remember back before I was even walking so probably like 1 or so. my sisters can't and they are kinda weirded out about it all but they know I am telling the truth based off of facts.

Just another point regarding the fact that Fry and other parasite docs are not able to get their stuff published, think on this:

In the 1950s, there was no proof that cigarette smoking caused lung cancer. The connection was as obvious as the layman’s observation that smashing your finger with a hammer would cause pain and even the town drunk knew it was true, but, to the medical establishment’s position was, “there is no proof.”

No one had ever produced lung cancer in animals by exposing them to cigarette smoke. In fact, my pathology professor, Dr. Jack Strong, had trained monkeys to chain smoke, and after years of smoking, none developed lung cancer. Yet, he was convinced that smoking caused lung cancer. Dr. Alton Oschner, founder of the famed Oschner Clinic in New Orleans, led the charge in proclaiming the link between cigarette smoking and lung cancer. It took almost another decade before the medical establishment was willing to admit that smoking caused most cases of lung cancer.

Almost 30 years passed from the time some iconoclastic men of medicine tried to convince the medical establishment that smoking caused most cases of lung cancer until it became generally accepted. The question that needs to be asked is: How many people died of lung cancer, the most prevalent cause of cancer death in the United States, during this time? Data from the National Cancer Institute estimated that in the year 2004, 157,000 people died of lung cancer. If 80% were secondary to smoking, that would be 125,000 dead. Over a ten-year period that would be over one million dead and, over 30 years, almost 4 million people would have died from a preventable cause of death that, at the time, was still being hotly debated by the medical establishment. Lung-cancer death rates were actually higher during that time period.