Angela

vodka ginger ale and cucumbers lol

well, tapering off as of today. Wasn't doing anything for me and have been feeling worse lately. Didn't help with the smoking at all either:(

http://www.ticktalkireland.org/biofilms.html

more interesting stuff on biofilm. you can also google autism and biofilm and get alot of info.

hey, have note kept tabs on this post but cinnamon is super yummy with vanilla, tea and a little honey.

Unknown connective tissue like disorder runs on my dads side. Everyone is above 6ft, with major vision problems (they have all had eye surgery!), skin elasticity problems, heart issues, etc. Not exactly eds or marfans, but not really sure.

Now on my moms side, short stature is a issue. Most of them have been diagnosed with a anxiety disorder. My brother also has aspergers (and has a autistic son), and I am certain my mom can be placed on the asperger spectrum also.

I guess I am not made up of the greatest genetics, lol

me and you racer...no one is made of the perfect genetics..that's why people buy sperm but ctm they dont exactly know what they are getting into, whether it's the doner or themselves that are the issue long term! or maybe just the combo of genes, ya know?

gypsiesoul, i have had a tough week too. but our symptoms are so similar to ms, and the lowfat vegan diet is proven to expand the lifespan of ms. so that's why i wont give up. hasn't cured my pots....doesn't cure ms....just preventive maintenance.

I took it again and it said enfp this time.

I go to Phx Neuro Associates and see Dr. Saperstein. They can do autonomic testing too at their facility

i have a 3 yr old and my bf has a 11 yr old part time (well, off and on as ex's go) anyway, my 3 yr old is full of energy but I got him the fubu nabi 2 for christmas, best 200 dollars I ever spent. don't pay for apps,only upload the free ones, and it is a solid ipad and he loves the puzzles and drawing and letter/math games the best. awesome for days I am totally crashed out.

ditto katie.

i would check out some lyme forums and mcas forums as well. I think one is the elephant theory, phoenix rising, and arizona lyme. symptoms are very similar to POTS.

all my neuros have tested me for ms, think cause my big sis has it. all my tests come back negative. 2 mri's and the crazy eeg one but, at the same time pots can present worse/more dehabilitating symptoms than ms, depending on the patient.

so lets just take all more drugs ctms that are proven to cure pots please tell me that there us a cure, besides bb's and florenisef. don't seem 2 b cures. just bandaids.

I think my issues are lack of blood to brain

The Myers Briggs doesn't test those other kinds of things- it's only for personality. But when I have seen various professionals, I've been told more than three times, that the POTS "type" is typically a female, who is a high achiever, perfectionist and we are usually tall and thin with pale skin and a lot of us are dancers, models, gymnasts, or otherwise creative types (I play several instruments with significant classical training and I was a dancer and a model.) Professionals love to group and find types, of course there are always exceptions.

I'm an introvert, will always been one and always have been one. My very extroverted best friend in college laughed when I told her that I had finally realized I was introverted. She said, you were always introverted. Now it makes sense why you tried so hard to do social stuff that you hated. You thought you were extroverted. The relief I feel understanding my personality is really awesome. It has allowed me to take a lot of pressure off of myself and that has helped my anxiety and stress. Which benefits my symptoms!

Weird results can be common- 1% typically means that you are close to the middle on those characteristics. I'm nearer to the middle on the S/N and T/F but my I is solid and definitive and my J is very strong. Hope that helps understand my post a little better!

yeah I always considered myself more of an introvert too, especially when I was younger I was super shy. However, there were a few questions I would have answered differently prepots

what, music? the test I took didn't ask those questions, just a bunch of others and than gave me my results with the percentage and my results were weird, E 1%, N, 6%, f, 50% and G 1% don't get it. also, some of the questions I had to answer in "pre-pots" thinking such as being in the middle of a crowd or enjoy going on walks by myself. so, don't know if I even did it accurately.

but, I have and always will luv music! and am pretty tall-didn't see any question that related to either?

I never thought we 'disagreed' on anything.

I don't'hate benzos, I just hate their effects on me. Same with florinef. If others find certain meds helpful, I'm perfectly fine with that.

gotcha. thought you had something out against one of the only things that have helped me from some previous posts. totally agree, we all respond differently to different meds. my preference and strong opinion is the less the better. like salt loading, i dont get it and yet other's would certainly disagree as it makes them feel better. I got over my first flare which was BAD with no pills whatsoever. but last time just couldn't do it! My dream is to be cured and med free, hope that happens one day soon

Alex - CTM (chuckle to myself) just needed something new from lol....yeah, jalepeno poppers....cheese....yum. don't mess with me right now, I've been vegan for two months!

ha ha I get along with Rama as far as I know quite fine, I just know how much you hate benzo's so I was talking about you!

yeah, i get anxiety symptoms/adrenaline issues just from work emails too/slightest stress anywhere and I know you are a dude but for me things get so much wackier a week before my cycle. I'm sorry I didn't read thru all 4 pages of this post but have you tried klonopin? that was the only thing that worked for me... other than maybe a shot of low sugar liquor or a beer will calm you down (not trying to turn you into an alcoholic tho). personally, medical marijuana would totally aggravate my heart rate and paranoia sensation, but I guess that things work differently for everyone.

well, i mean no one invented ccsvi i just got a little carried away. "laugh out loud"

she never invented ccsvi nor came up with the theory so how can she copywrite it. and if she has pots truly she wouldn't be trying to hide information from others who suffer. that pure craziness.

sweet.....we finally agree on something ha ha:)

i wonder if pots started for me when my first son passed over 10 years ago? not sure. I mean, I didn't feel as horrible as I do now but going thru the trauma of loosing a child, I think it's a possibility that I could have triggered something then and didn't notice my symptoms cuz i was too numb? I was a waitress and was back to work in 1 week and a half after 7 months of pregnancy, and 1 month of that complete bed rest. no major symptoms right away when I went back to work, I would say within 2 years i slowly developed dizziness/almost blackouts/stars in eyes but nothing that scared me too bad. almost 10 years later is when I got major pots symptoms.

I am so sorry. I totally can relate to how you must feel loosing a child.

not the same video but the same dr though.

vimeo.com/28400815

the original video

vimeo.com/44422241

on jugular dysautonomia was removed as a result of Dr Driscoll's claims that the material was infringing - it was a good watch though

Alex

on what claim, she didn't discover ccsvi.