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About Miqual

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  • Birthday 04/15/1973

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    Berkeley, CA

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  1. Hi, Miqual! I am hoping you still ae able to view these messages...

    Have you found the cause for you elevated N-Type Ca+ antibody? I had a highly unusual N-Type Ca+ antibody on my paraneoplastic panel from the Jacksonville Mayo clinic,  that it caught the attention of two Neuroimmunologists at the Rochester Mayo. All other blood work, PET SCAN, CT,echocardiogram, MRI and Lumbar Puncture were negative. I am to continue to follow up to check for any changes in diagnostics. I have Celiac Disease and wonder if anyone else out there with this antibody has Celiac as well...looking for some sort of correlation. Thanks!

  2. Natops - may I ask what your diagnosis are? I myself test high on the N-calcium channel antibody, and I know in my own attempts to research that, don't come up with much. I've been given a diagnosis of autonomic hyperactivity of suspected central nervous system origin, and they've given me the general over-reaching term of "calcium channel disorder". They also tacked on atypical trigeminal autonomic cephalgias
  3. My Dr's assistant mentioned that particular Autoimmune antibody is often found after people catch Epstein Bar and the Dr isn't reading into the test result much yet. He wants to do all the Autonomic Neuro testing first and pair it all together. When I had my first appointment with him after fighting to get my old GP to get me to see a Dysautonomia specialist, I suspected there would be an autoimmune component found given my family history and asked the Dr if that could be investigated. On my Dad's side, one aunt has Lupus, another aunt had Graves Disease and had her thyroid removed, my g
  4. Hi everyone, after a detour to being fully medically prepped and literally days away from surgery to remove my adrenal gland even though they had no MRI/CT evidence to match the mIBG scan and hormome levels, an outside Endo stepped in and said it wasn't Pheo. I'm back in the Autonomic Neuro direction for diagnosis. My Autonomic Neuro specialist at Stanford had sent my blood off for the Mayo Autoimmune profile and the results just pushed to my patient web account so I could see. It's showing the presence of "Calcium Channel Binding Antibody, N-type." It says "This profile, in the proper cl
  5. Hi everyone. I finally got into the network of Dysautonomia Dr's this spring and thought I'd finally have an answer to my 20+ year medical mystery and drama. I saw Dr. Jaradeh, the Dysautonomia specialist at Stanford's Neuroscience clinic, and he immediately thought my previous Dr's assessment at UCSF was wrong and that I did in fact have Pheo and ordered an mIGB scan. The scan lit up both my adrenal glands and I was referred to the Pheo surgeon at Stanford. His follow up MRI however did now show any evidence of tumors. I previously had a CT a year ago in which they did not see a tumor.
  6. Actually 2 MAJOR outbreaks in 20 years. I've been battling symptoms the whole time in between, a lot of them quite difficult. After basically having my late teen years taken away from me due to this and they told me back then there was nothing they could do for me besides the blanket "hyperdynamic autonomic nervous disorder" diagnosis, as things settled into being more livable, I basically ran from everything and just dealt with them rather then using Dr's. My GP's I moved amongst as I was an adult and moved out of my parents house during that time had no clue, and to my own fault, I didn't
  7. I was a lifetime bicycle commuter, 5-6 day a week exercise type person mixing weightlifting with cardio and spin classes, and a hardcore downhill skier in the winter before this second outburst this last 2 years. Went through the standard deconditioning at first as I was down to doing nothing. Started getting back first through daily stretching and light walking (as much as I could handle before getting too dizzy). But started doing mostly floor based Pilates as I started feeling a bit better. Had seen here on the board in a previous exercise posting a link to the Blogilates pilates channe
  8. After 17 months into the second "outburst" of what was deemed a medical mystery and possible "hyperdynamic autonomic nervous disorder" 20 years ago, I finally got into the Dysautonomia Dr. network after some initial appointment rejections, and had my appointment with Dr. Jaradeh at Stanford yesterday! My GP had basically given up last April and I basically self-diagnosed and drove her until she got me this appointment after discovering the board here as well as other Dysautonomia support information online. Have posted a few times and exchanged messages with some of you and it really helped
  9. Kelly.. This outburst came with a dual whopper of a summer: knee surgery under anesthetic followed shortly by emergency root canal surgery with anesthetic. I had knee surgery and went under anesthetic in May of 2011 and that summer started feeling worse and worse. I thought it was due to the intense physical therapy making me more tired, but by the end of July, I started getting scared because it started feeling like my childhood bout all over again, and that was my worst nightmare. (I had been basically trying to block out my childhood experience as a defense mechanism for survival, and fo
  10. Still waiting on SLOW referral process as well as non-cooperative/confused primary care Dr. to finally get diagnosed after a year of dealing with the second outbreak in my life of what in my teen years 20 years ago during the first outburst, was diagnosed by a neurologist after 2 years of traveling to different Dr's as an observed symptom pattern he called "Hyperdynamic Autonomic Nervous Disorder" with blood vessel control loss. He told me they didn't have an actual understanding of the disorder back thena nd after trying beta blockers that didnt work, basically I healed with a few years time
  11. Thanks for the words and suggestions everyone. Seeing my primary physician tomorrow and bringing some more information to her. Over the last 2 months I've started following a lot of the dietary and lifestyle change suggestions from here and some other Dysautonomia sites and finding they are helping take an edge off of things, especially since I dove hardcore into heavy salt-beverage intakes. Fingers crossed here. I've got the childhood records with the "hyperdynamic autonomic nervous system" diagnosis over to her already. Mayo has turned us down saying they didn't think there was much the
  12. Hi everyone. Started following this site recently after the re-emergence of a previously unsolved medical mystery that arose 20 years ago in my teens. I was diagnosed back then as having "hyperdynamic autonomic nervous condition relating to blood vessel control loss and hyperactive adrenal gland" but was told back then not much was known. I spend the best part of my high school years being shuttled amongst specialists and to Mayo twice before they gave that diagnosis, and after a trial of beta blockers not working, was told there was nothing they could do. It improved as puberty settled an
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