hippychic258

I to was told to raise my bed and I did and it made me so much more symptomatic. Then I had a phone consult with Pots specialist in New York and she said she didn't recommend it one way or the other. So my experience is didn't work for me but it may work for someone else.

Pam

I am so sorry your daughter has to go through this! But first of all.......all teenagers are not depressed and fatigued! I would definitely get another opinion and get a TTT for sure, that is how POTS is diagnosed. It could be Pots and it could be something else thats why you need the TTT.

I hope she gets to feeling better

Pam

I would think if it was adrenaline i would get tachy but I don't get that when this happens, I had my hormones tested in Feb. they were fine then but I don't know about now. Yes I tried the breathing techniques and they don't help, its uncontrollable like I am so over stimulated without the fast heart rate. I am so over stimulated it makes me so sick.

Ok can anyone tell me what is causing this and what helps it? Every time I have a conversation with some one 10 or 15 minutes into it I am shaking and trembling and get nauseated? then am sick for about an hour or so. Its not anxiety, so what would help this feeling? thinking abput ativan maybe? Will this ever go away? Any emotion good or bad sets it off, Could this be a sign of Addisons disease?

Thanks

Thanks I am just so nervous about this seeing how I got sick this morning from basically nothing. I am so sensitive right now, but this tooth has to come out.

So I had a 7am appt to get my infected root canal tooth pulled the usual husband carries me in they were alll ready for me took a couple xrays and referred me to an oral surgeon. So after 20 minutes in the chair started to get shaky and nausea, I didn't have anything done, I wouldn;t of been able to do it even if they could of done it. So tomorrow at 10am I have an appt at the oral surgeons not sure how thats going to go but I have to get this tooth out it is infected under the root all those toxins going into my blood stream wondering if that is what is keeping me so sick?

Anyone had a tooth extracted when they were in a flare, what reaction can I look forward to with the novacaine? Isn't it bad enough that I have been sick and bedridden for 7 months now this?

Should I take an ativan not sure how I would react to that either, doesn't that lower your bp?

On a positive I have been able to take steps to and from the bathroom about 6 each way every time I go, no tachycardia but I still get tremors, and so light and sound sensitive the more I get up the more head and ear pressure though.

thanks

Or wipe out entire months!!!

I think it depends on the severity of your illness me being bedridden I have went through these stages: Denial meaning I thought I was going to wake up and be right back to my old self and old life, When I realized that wasn't going to happen I went into mourning, I felt like I had basically died or should i say life as I knew it died , then the depression, then the anger, now I have accepted it but I still have the anger and depression along with acceptance.

http://healthfreedom...like-the-plague

Anyone who is thinking of having a root canal done or has any root canals.

Thanks

I am getting it pulled Monday morning, I hope I don't chicken out lol.

I just think my root canal brought on the flare along with stress. I am hoping getting this tooth pulled doesn't make me worse!

I am exercise intolerant and I to have several hour delay ( when i was able to exercise) I don't understand it I remember before I knew I had Pots and I would try telling my Dr about the delay and he said there was no way it was from the exercise, and anyone else i told thought I was crazy. But it is true and it happens. I have no idea why but I would sure like to know why. Kinda makes you scared to try anything because you don't know what is going to happen later.

Kelly: How long after the root canal did you get sick? And how bad was your flare and how long did it last?

MOM: That is great that is great that your mom is healthy, but from what I understand it would only affect people with weakened immune systems. My flare wasn't caused by the the actual procedure I was fine until about a month later. Most of the information I am getting is from dentists lol.

I for one am getting mine removed and never getting another one if anyone has time to research the idea and share what they think that would be great. I don't think it causes pots but if you have it I believe it can bring it out.

Thanks

Has anyone researched root canals at all? I just started because I had one right before I got sick and never got a cap put on now its infected I think. Anyways from what I understand when you get a root canal its basically a dead tooth with no blood supply to it so it can't fight of the toxins and bacteria even with antibiotics. All root canals have toxins and bacteria and it seeps out into your body and causes chronic diseases. Some people can be fine but others with weak immune systems it can cause chronic illnesses. I have read several people have an onset of Pots after a root canal, I am one of them, my last flare was also when I had gum disease I got better after it was treated. I was reading a woman had rheumatoid arthritis When she had her root canal teeth pulled she recovered??? Makes me wonder. My mom has never been sick she is in her 70s smoked all her life eats fatty foods no exercise etc. she is on no meds nothing great health she also has no teeth and has had dentures since her 20s hmmm makes me wonder. Also read 97% of people with terminal cancer have root canals.

Any thoughts and who has root canals?

Yes please I would like to know the same thing!!!

I had a root canal done before I got this flare and never got back to have the cap put on so of course the tooth is infected and rotting now so I have to go and get it pulled on Monday. My question is has anyone ever had a procedure like this done when they are in a flare I don't know what to expect, I have a tooth pulled before when not in a flare and it was fine but I am so sensitive right now to everything I don't even want to take the antibiotic. UGH!!!! I think having a Pots flare is bad enough why this to?????

My sister has had weird symptoms for years but nothing life altering but lately she has been getting worse. I told her to research MCAS it sounded like it to me.And she has about 80% of all the symptoms. So I am wondering do I have that also, is that causing my Pots? I have had some of the symptoms of MCAS but nothing major I have more extreme pots symptoms, she has more extreme MCAS. Are both hereditary?

Thanks

I agree Bren Sometimes it is the worst thing to do with Pots is to push through the symptoms. Hope you both have some better days!

Don't get discouraged before the flare I am in now I went through times where that happened to me exhausted with no tachy or fainting but it passed. I feel like with Pots so many symptoms come and go and then come back again. I also feel so much better after the sun goes down it is so weird because I am not ever outside. I gave up trying to figure it all out, it is going to be what its going to be I just take it day by day and hope one day I will be well enough to function again.

WMFD is a local news station, I think one of the girls called them!

The WMFD storie is mine, I own a salon and the girls did a benefit for me on Sunday a huge success I might add. And also my sister is a nurse and teaches nursing she makes all of her students to a research paper on Pots, she wants to help bring awareness to it. So hopefully one of her nurses will be working in the ER someday and someone will come in with POts and at least the nurse will know about it even if the Doctor doesn't.

Does ativan have the same effect as klonopin? Will anybenzo work or does it have to be klonopin? Also what doe sit lower blood pressure which is not good with people with low blood pressure? Does it relieve Pots symptoms?

Welcome to the forum!

Also what specific synptoms does it help? Does it help light and noise sensitivity at all?

My copper levels were low when they tested them. I have no idea what that means though.

WHat symptoms have ssri and ssnri helped you with? What is the difference between these two when treating Pots symptoms?

Has anyone had luck with any of these helping Light and noise sensitivity, body tingling and nausea? Also do they help with orthostatic intolerance at all?

Thanks