Radha

the only thing that helps my short of breath is forcing a yawn or at least a half yawn then i feel much better but only temporarily, and yes laying flat helps too, thanks for your input Radha

has anyone tried Spiriva inhaler for short of breath or chest heaviness? i do not have asthma but was thinking about asking doctor if i could try this since its not a steroid and seems to be safe to take, any input would be appreciated thanks Radha

i was wondering if its possible to have any kind of heart attack or ischemia or heart damage without having high blood pressure? any input would be greatly appreciated, and have any of you had a heart attack? and what was your bp at the time? what can really be done if you do have one? can it be stopped while you are having it? i know you can take nitroglycerine or aspirin, Radha

thanks so much for all your replies, all your input is so helpful, thanks again Radha

have any of you tried Spiriva for chest heaviness or short of breath problems? i know this is more for COPD or bronchitis which both i dont have, but do have lot of trouble getting enough air and breathing, feeling like i am suffocating most of the time even at rest, and i dont want to take anything that is a stimulant, thanks for any input, Radha

i would really appreciate what kind of symptoms you had that related to your gallbladder being removed, did you have bad sharp pain on the right side or any other specific symptom like vomiting? i have alot of trouble eating with bloating and sometimes nauseausness, but no real sharp pain, and wanted to know if my gallbladder might be involved, i know none of you can tell me for sure, but just telling me what kind of symptoms you had would help, thanks Radha

to waterbaby, did Dr. Boatman do anything other than diagnose you? i know that is a big deal but did he prescribe or do anything to actually improve your condition? thanks for any info Radha

i know all day is terrible for me, but first thing in morning is the worst after lying down all nite, and i think if there is any time i feel even tiny bit better, it would be after 11pm at nite! too late to really appreciate that little relief! Radha

hi Beth27, could you please tell me the name of the glyconutrients and the other one for the endocrine system? and where u ordered them? any info would be appreciated since i also have terrible fatigue and shortness of breath, thanks Radha

valerie, my bp also goes up the more beta blocker i take such as toprol or atenolol which is so unusual since beta blockers are supposed to lower bp, does your doc have any explanation for why this happens to only some of us, i would love to find out why its raising bp, please let me know if you find anything out, thanks radah

thanks for all your replies, i know i dont have celiac and these symptoms are worse at some times than others even with eating the exact same foods and so little food, so its strange, so many questions with this disease but no answers, its so frustrating! thanks again for replying, radha

thanks for your suggestion, yes i have tried gas x and it does help alittle but i wanted to know if any of you had any ideas what could be causing this, or just another part of POTS and blood pooling? i dont have any acid reflux or indigestion, just terrible bloating, gas and sometimes nausea, thanks for any help radha

i have been getting extra bloated and feeling like stomach is just going to pop, and sometimes nausea, was thinking gallbladder since i do get bad back pain too but i never eat any fat and pain is not just on right side, but whole tummy aches after eat so so little, do any of you know of any meds that would help bloating? i am not constipated, thanks for any help Radha

no i dont have asthma, or any abnormalities, just hard to get deep breath and chest heaviness, and since not really any bad side effects, i asked if i could try it, and have chronic sinus congestion so not seasonal allergies, i thought you had to take 20 mg, i am taking 8mg now, and wanted to know if thats too low, and if i should have felt difference by now, taking for a week, thanks so miuch for all your replies, radha

have any of you heard of taking ultram as an anti depressant? i got it for pain, for it doesnt help the pain, but i do notice that i get a little burst of energy mentally a little boost, have any of you felt better emotionally when taking it? thanks for any input, radha

for those of you who take singulair for breathing problems, like out of breath or hard to get a deep breath, how much do you take and did you feel better right away or did it take some time to see a difference? i am wondering how much i should take and how long i have to wait to feel better. at least i hope it will help! thanks radha

has anyone tried acarbose for postprandial hypotension, or bp dropping after eating? did it help you and how much did you take? just started this med and would appreciate any feedback, thanks radha

so happy to hear someone is actually getting better, i wish you continued improvement radha

whenever doctor takes my bp in left arm she has to take several time because she cant even hear it or get a reading, but on right arm it comes right away, no one ever gave me any reason for this, do any of u have any ideas why this might happen? thanks for any info radha

i was wondering, do any of you know if the bp should be the same or very close on both arms and if its different what does that mean? thanks radha

thanks sandy for replying, if you find out anything that helps or why this happens, please let me know, thanks radha

sorry to be asking about eating again, but this is just such a huge huge problem for me in so many ways, but specifically i wanted to know if any of you get colder and colder, and get goosbumps as you are eating, even only little amount of food? and of course so so hyper and shaky too! could it be that the blood is going away from the skin to the stomach so that makes you so cold? and i get terrible pressure crushing headaches, with pressure in my ears, in my neck sometimes, and upper chest too, but no kind of burning or esophagus problems. any input would be appreciated, thanks radha

thanks so much for your input and taking the time to reply, i never take anything on a regular basis and try to take just half tablet of the smallest dose, i did notice on first day of taking xanax i was much more moody and felt more angry, but not like that with ativan, maybe it was just coincidence but i am sure each med affects each person differently. Radha

if you took different benzos on different days, like one ativan one day and then 2 days later, a klonopin would that help to avoid any dependency since you werent taking the same one and not daily? thanks Radha

this is kind of hard to explain but any input would be appreciated, sometimes when i eat, at the end, i will have trouble swallowing like someone is choking me and not enough room in throat to swallow the food and then later the feeling goes away, i dont have any kind of acid reflux just painful squeezing and wondered if this might have something to do with EDS and weak blood vessels and changes in blood flow when we eat, i am too young to have blockage, i am only 30 and i really really doubt its that, and would any medicine help to open up blood vessels, but i know vasodilators lower bp more right? thanks again for any help Radha