hayley

1.Name: Hayley 2.Age: 20 3.Pots and EDs III 4.Age when dx ; 19 5.live; ,england 6. ~Symptoms at worst;bedridden , chest pain, very painful joint pain and aches,headaches,sickness,loss of concentration,weakness,extreme exhaustion,breathlessness,cold hands and feet,bowel problems,dizzyness,fainting. 7.Symptoms at best:fainting,tiredness,breathlessness, joint pain most of the symptoms above.but i can function a bit better. 8.meds that didn't work:only taken a low dosage beta blocker doesnt work anymore 9.meds that did work; beta blocker worked for a while. drinking water and lots of sleep.

thanx for replying its helped alot.i new right from the start that there was something wrong but doctors brainwash u so much that u begin to doubt yourself.if u werent crazy when u go into hospital u are when u come out because of all theyve said to u.i suffered depression in the past so they blamed it all on that.but i do have a diagnoses and i cant keep thinking back to the past ive got to move forward now.i got told by a phychiatrist that its the nurses own frustrations being reflected on me. thanx h

hey evryone ive just comback from holiday it was great but i had a lot of trouble in the car as there were lots of hills and it seemed to make me so much worse i think it was change in direction. any i just wanted to ask how do people cope with being told it all in your head. before i was diagnosed with pots i got told that so often and saw phychiratrists and i keep thinking back to it and it gets me down. im so weary of doctors now in case they turn round and say its all in my head again.im seeing a specialist in a couple of days so scared hope he can help me coz my beta blockers have stopped working and i wana go back to work havent been for 8 months.sorry about the spelling.

thanks for replying i thought i was a alone . i didnt think others had it .glad im not alone

hey everyone i was just wondreing does anyone faint but have slightly altered consciousness i have that sometimes,but not lose it fully. i suddenly fall to the ground like my body just wont hold me up and im not really with it.im so fed up today ive got so much joint pain it feels as if my ankles are swelling up and all my muscles ache as if ive over worked them.feel terrible.i hate pots symptoms.

hey everyone i was just wondering if anyone else had to eat at certain times.i do or my symptoms get worse and i faint at lunchtimes and dinner times if i dont eat at the right times.

i was just wondering if anyones symptoms get so much worse before your menstruation coz mine get so much worse and i dont no why can anyone help

thanx for the encouragement i think pots has changed me i now realise that u cant take things for granted and in someways has made me a better person.

does anyone else feel like there life has changed so much.i just woke up and realised that a year ago i had my own flat a car and a job.i have none of that i now. I had to sell my flat and move back to my parents house.Then again it has changed my perspective on life its health and happiness that matter not what uv got and what u havent. I had a talk with my councellor the other day because i suffered depression last year still get some here and there .but every thing happens for a reason.I just needed to vent. thanks hx

hey im new here hello everyone.i had the same problem .i was rushed to hospital because i lost the use of my right side 7 months ago .they thought i had a stroke but everything came back ok i had to have physio for a few months.everythings ok now i still have a bit of weakness and decreased sensation .i just wonder is this related to pots often i get a numb left arm aswell very strange.

hey im new here hi everyone.i just like to say that my pots started off with seizures but i didnt think u could have seizures with pots or can u? i was misdiagnosed with epilepsy because i had slow brain waves he he.! well that is true i am abit slow.

ok thanx

thanx for all the information

hey me again yes i am from england.i have had not alot of imformation on pots i saw a cardiologist who has no idea about pots he prescribed beta blockers which are helping a bit but never said anything else as he doesnt no.the only information ive got is from the internet.im supposed to be getting an appointment for someone who specializes in it but ive been waiting and waiting for the appointment to come through maybe il get one sometime this year.my fainting interferes with everything i went out with friends the other day and fainted in the pizza place i find it so embarassing.my one wish is to stand in a queue in a shop.i have to wear those horrible support stockings all the time anyway thanx for replying to my message. H x

hey ive just been diagnosed with pots two months ago dont no much about it im waiting to see a doctor in london england.i wanted to no will i hav it forever or will b it go away.i faint about 8 times a day and i wish it would go away.