RichGotsPots

"Osmotic diuresis is increased urination caused by the presence of certain substances in the small tubes of the kidneys.[1] The excretion occurs when substances such as glucose enter the kidney tubules and cannot be reabsorbed (due to a pathological state or the normal nature of the substance). The substances cause an increase in the osmotic pressure within the tubule, causing retention of water within the lumen, and thus reduces the reabsorption of water, increasing urine output (ie. diuresis). The same effect can be seen in therapeutics such as mannitol, which is used to increase urine output and decrease extracellular fluid volume. Substances in the circulation can also increase the amount of circulating fluid by increasing the osmolarity of the blood. This has the effect of pulling water from the interstitial space, making more water available in the blood and causing the kidney to compensate by removing it as urine. In hypotension, often colloids are used intravenously to increase circulating volume in themselves, but as they exert a certain amount of osmotic pressure, water is therefore also moved, further increasing circulating volume. As blood pressure increases, the kidney removes the excess fluid as urine. Sodium, chloride, potassium are excreted in Osmotic diuresis, originating from Diabetes Mellitus (DM). Osmotic diuresis results in dehydration frompolyuria and the classic polydipsia (excessive thirst) associated"

still feeling awful. Now my breathing is worse. I drank 3 liters of water so far. Getting tired but too weak to sleep of move. I took 500mg of tylenol 3 hours ago. Body still hot and shaky...

"A vicious circle. To make the circle even more vicious, when you have high blood sugars, you urinate—and of course what happens then is that you get even more dehydrated and more insulin-resistant and your blood sugar goes even higher. Now your peripheral cells have a choice—either die from lack of glucose and insulin or metabolize fat. They’ll choose the latter. But ketones are created by fat metabolism, causing you to urinate even more to rid yourself of the ketones, taking you to a whole new level of dehydration." "Ketones and ketoacids are toxic in large amounts. More important, your kidneys will try to eliminate them with even more urine, thereby causing further dehydration. Some of the hallmarks of severe ketoacidosis are large amounts of ketones in the urine, extreme thirst, dry mouth, nausea, frequent urination, deep labored breathing, and high blood sugar (usually over 350 mg/dl)."

I did not know this. Has anyone been tested for this?

I dont have a local dr. because I just moved a little over a month ago. I can barely stand so going out will be impossible unless by ambulance.. HR is still 135 bpm

so far I took 225 mg of tylenol 2 hours apart..

I can't take warm showers, it makes my breathing worse. Maybe I'm try to inhale a steam pot if I feel better later..

I can't I over sweat all the time and i think it makes me more dehydrated.. I went from chills for feeling hot and sweaty 25 minutes ago..

just took half a max strength tylenol (225mg) and I took 2 full strength musinex (1200 mg)

just took 225 mg of tylenol

I'm wondering if these will help. Wondering if the herbs in airborne make POTS symptoms worse.

anyone have hyperthyroidism or addsion syndrome? Is this a sign of them?

Now I feel very hot, lowered the heat. My hands are warm but my feet have a little chill...

feel like its due to dehydration maybe going to take airborn..

Yesterday I felt like a cold or something might be coming on. I had a little phelm and my right ear started aching. Today i got laryngitis and felt weak. I took musicnex to help the phelm and drank slippery elm tea, I also drank yogi tea-breathing aid tea tonight. I never had a probelm with yogi but never tried slippery elm in tea, had sucking candies before POTS, no problem. i also took burtsbees honey throat lozengers. At 11pm I started feeling weak all over. Then I tried to go sleep at 2am. I got adreniline surges and freezing hands and feet. I tried to ignore it but then I started having spasms all over. After an hour I went to go to the bathroom and could barely walk I so weak. My heart reat was 170 bpm laying down which is very high my usual is 90-100 bpm I took my mouth temp and it was 96.5 F then I took my arm pit temp and 5 min later it was 99.8 F. My body feels so weak and my other body parts feel so hot. I took 2000iu of b12 for energy it's not helping. I've been drinking tons of water but not helping yet. My heart rate is now 145 bpm still high. My legs are so sore especially my knees. If I strech or move I feel weak

anyone try this?

The Hyperventilation Dr. Stewart points to is called Hyperpnea (normal rate ,deep breathing) he actually didn't see any fast breathing increases...

well I had to cancel two doctors now because they said they were covered but then when i probed further they said they might not be for my particular plan so now i have no POTS specialists, great!

I just tested my HR and O2 level with my pulseOX (which I haven't used in a few weeks) and while I do the above mentioned breathing exercise my O2 level stays constant but my HR drops for 3-5 seconds while I exhale. It drops from 93 to 77 bpm.... Maybe that's normal just thought I'd mention it..

Yes, both a CT scan without contrast and VQ/perfusion lung scan both came back normal.. I'm really surprised by the normal perfusion scan, but I was laying down for it and I think I should have also taken it standing up...

You're welcome :-) You are just one of many people who have mentioned Cpap helping their daytime breathing and do think it helping with perfusion. I don't know the mechanism exactly yet. It might be the pressure, the retraining, oxygenation, the increase in CO2.... it may be the hypocapnia (Low CO2) causes an increase in vasodilation of pulmonary vascular blood vessels leading to hypervolemia in the lungs rather than hypovolemia (pooling) int he lungs. Possibly the increase in CO2 and O2 leads to better pulmonary vascular resistance. If we had pooling I think there might be an edema in lungs from it that would show up on scans or xrays.. But my leg pooling experience is that I don't get edema's in my legs even when pooling. I can only guess it is because my whole body has less volume to pooling just fills my legs from their reduced volume to a normal volume. And when I pool my feet ache, so maybe I get that same ache in my chest. Just wish there was somewhere I could go to figure this out, it's frustrating..

I really don't think the clinics are taking this problem seriously enough if there is no specialized tests that people here can point to besides their local Pulmonary function testing... I've talked to many people with POTS and breathing issues who attribute their issues to POTS. The only POTS research I've found that mentions breathing is Dr. Stewart's study on Postural (tiltiing) Hyperpnea/Hypocapnia (deep breathing/low end tidal CO2 levels), but unfortunately his research focuses on the fainting aspect of these patients and not breathing difficulties. So I was really hoping there are centers out there who people had experience with that could explain or at least was studying POTS related breathing issues. Since idiopathic breathing problems are quit dangerous...

Has anyone been tested for breathing complaints at one of the big autonomic labs (ie.. Mayo, Vandy, Dr. Grubb, or Cleveland Clinic)? If so what type of breathing tests did they run? And did they diagnose anything for breathing issues and/or prescribe any medicine or treatment? Rich

That makes sense because Hypocapnia is the opposite of the COPD and Emphysema which presents as Hypercapnia. Hypocapnia usually happens because of hyperventilation. The respiratory rate in Dr. Stewart's testing stayed the same during tilt for none hypocapnia POTS patients, the control group and hypocapnia POTS patients so Dr. Stewart says it's hyperpnea. "Hyperpnea is increased depth of breathing when required to meet metabolic demand of body tissues, such as during or following exercise, or when the body lacks oxygen (hypoxia), for instance in high altitude or as a result of anemia." (wikipedia) So if it's not hyperventilation that is rapid breathing but more of a deep breathing, I'm not sure why my breathing technique unless it just helps with the pressure and with changing the hypocapnia increasing the CO2... More studying needs to be done on our breathing..

Thank everyone, it's too late now, didn't feel like pushing the doctor on the tests plus she had a student in there observing. Just annoyed because I waited 2 months for this appt and my endo said she would do that testing :-( I brought a whole bunch of literature with me but everything I mentioned she said it's for a neuro... She wouldn't even test for Lyme. Meanwhile I was supposed to see a Lyme specialist who was a rheumy, but he had an emergency and canceled all his patients for the day.. but still he was also a Rheumy, so I was hoping this other Rheumy would test me instead...