Lemons2lemonade

Rama high albumin usually means nothing more than that you are dehydrated. Dehydrated, hilarious right?!

Jangle, yes, I changed it to "yardwork" to avoid it

I was totally going to carry a sign saying this to the airport

Jangle, sounds like rama may be doing some yard work over at your place soon keep up the good work!

Just got my blood work bad back from last week. Plasma: High sodium, high chloride, low vitamin d. I am on florinef, is this why my sodium levels are abnormally high in my plasma

Hahaha I love this title. I tried to explain why this was funny to the people around me and they had no clue what I was even talking about. Thanks for making a Monday with pots a little more bearable.

I disagree with you rama. There is more to life and medicine than numbers and letters. I think that having discourse over possibilities evokes a creative approach to the situation. Furthermore, doctors can sit and measure norepinephrine, NO, and angiotensin all day but, as we have seen, these quantitative data reveal little information about the cause in a manner that leads to prevention or a cure. Quantitative data is a static approach to a dynamic problem. As per classification, one would not treat a patient with lung cancer the same way that they would treat a patient with asthma. In the pots mindset, it would be: well they both have breathing problems. Tachycardia is vague and indiscriminate. The reality is that there clearly are mechanisms within each of us that are causing this that are being overlooked. Otherwise, there would be a cure by now. By offering a critique of medical behaviors, it brings to light areas to be improved upon.

Became orthostatic, went to Dr., referred to cardiologist, got 2nd opinion from different cardiologist, referred to electophysiologist, diagnosed.

Okay had my first pots attack in awhile ugh. I hate them so much. Does anyone else's go like this: minding my own biz SITTING. Out of nowhere, bam adrenaline rush, feel cold all over, panic, tachycardia, presyncope, nausea. Also had a bp reading of 65/45 pulse 88 then 125/90 pulse 100 ten minutes later. 15 minutes later, emts took my bp and it was 145/100 pulse 88 ekg normal. I normally run around 106/70. Only reason I cracked and called the emt's was new and extreme radiating chest pain and overwhelming nausea. Bah! I hate this darn thing.

jangle, i'm going to bet it was the bread on the pizza and not the cheese. I can't eat pizza either

Its pretty high, its more a bonus on calories because they are low, and you get fluid with it.

ctd.

bren, me too. It seemed at times like i was a salmon swimming upstream.

try to be as honest as possible, sometimes it requires being honest to yourself

Campbells chunky split pea and ham soup has 1000 mg of potassium and 410 mg of sodium. A nice change of pace from coconut water and bananas.

I eat a lot of cheese, nuts, seeds, beans, fruits, and veggies. I especially like the nuts on tired days just grab and eat- I do this with cans of garbanzo and kidney beans too. I also eat lots of red meat. Love the stuff.

Lilly, goodman is in scottsdale at mayo. I'm seeing him in a couple of weeks, will let you know how it goes

Katy, interesting does it help just gi or also hr/lightheadedness?

Rama, exactly, which is why eating foods in this family could increase symptoms.

Carbs: breads and noodles especially, food with too much salt, boxed meals like hamburger helper or macaroni etc.

Good luck brye, sending love and prayers!

I was just referred to a new internal medicine Dr. And he is fabulous! His name is Dr. Thomas and he works for group health in the Seattle area. My first appointment with him was almost 2 hours. Of which time was spent performing a neurological exam, reading through my medical history reports from other doctors, looking up recent scientific journal articles on pots/autonomic dysfunction, and calling Dr. Goodmans office at the mayoclinic. Literally, he poked his head out the door and said to his nurse, "can you please get Dr. Goodman on the phone for me." Any way, he got a hold of Dr. Goodmans nurse and basically discussed what tests they could do here before my trip. Today was my second appointment with him and he brought up magnesium level testing and possible supplementation. He then went on to say that he thinks it has something to do with connective tissue,and asked me what my medical experience has been like so far with disorder (while smirking). I told him that it kind of stunk as far as diagnosis. And that doctors think they have me pegged when they see a 25 year old female complaining of fainting type episodes--anxiety. We also discussed theories in pots like the nitric oxide, connective tissue, neuropathy, mast cells and autoimmune. Really great Dr.

I saw my internal med doc and asked him about it this morning. He said he could but then got distracted by motivating me to go to med school and getting a gastric emptying study done ASAP. ill have to shoot him a letter about it....

Wahoo! sounds like things are going well for you and that is good to hear!

The patient was having severe heart problems and they were basically waiting for him to code. The effects of it are what I find interesting as far its ability to influence the nervous system/heart.