WyomingGal

I don't think anything can cure it, but maybe help to alleviate some fatigue. It took awhile to build up to a full dose, but Enzymatic Therapy's Energy Revitalization System (make sure the B-complex is in it) has helped a lot. Also Co-Q10 and Corvalen (D-Ribose) have helped me, too. Make sure you don't take a bunch of supplements at once. You should start with one and wait a couple of weeks to see if your body likes it or not. If you start a ton of supplements at once, then you won't know which one you may be having a reaction to (such as a headache, nausea, etc).

I have seen him too and feel that same you you do. The 10g of salt is a lot, but the thermotabs help. He also gave me hope and some new information. It is nice to have him on your side and know you have his wealth of information and advice just a phone call away. I am glad you had such a great experience!

I have had POTS for about 2 1/2 years. I saw a doctor at Mayo in February who said he expected me to be off my meds by August. It's now September, and I do not think I could function without them. It probably also doesn't help that the summer heat was hard on me this year. I think one of the main reasons it is taking longer is that there are other factors going on that need time to be addressed and supported, such as Epstein Barr virus, and now I am eagerly awaiting my appointment for next week with the endocrinologist, since I know I have nodules on my thyroid and the nurse told me I have a high TSH. I still have hope that I will get back to some sort of 'normal', but it is just going to take some time. Have you and your doctor messed around with your medications at all, maybe there is another combination that would work better for you? Have you noticed any improvement, even a small amount over time? Also, I have found that compression stockings can completely change my life (even though I don't wear them in the summer). Exercise I know is important, too, if possible. This spring got lazy and overconfident on my salt intake, thinking I had things under control and realized I was getting about half of what was recommended for me, so I am trying to be more diligent about that each day.

I find the whole SSRI thing very interesting and I think it plays a really critical role in my health. I have been on and off Zoloft since 2003 for anxiety/depression. Whenever I tried to get off of Zoloft, things seemed to start to go bad, like my health. So I always went back on it. When I really got sick with this POTS stuff, I had been off of Zoloft for about 8 weeks. I really think if I have had dysautonomia symptoms since 2003, then this has kept things at bay. While I do not like having to take it, I have come to accept that it helps me...and so what! Whatever I need to get on with my life.

Dani, I saw Dr. Goodman after seeing two or three doctors who have tried to treat my POTS. Dr. Goodman gave me a lot of hope and I know what information he gave me was based on a lot of experience. For me, I learned some more specifics of my particular case because of their autonomic lab they had there. Also, whenever I have any questions, I call his nurse and usually get a call back within 24 hours. I have a better peace of mind knowing I went to one of the best and it has helped me to move forward in my recovery. For me, that all makes it worth it. Hope you can begin to feel the same!