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DBP4620's Achievements


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  1. I get this as well, does anyone have any ideas as to what may cause this/ how to relive this?
  2. I saw an article online (http://www.nj.com/hunterdon-county-democrat/index.ssf/2014/11/living_with_postural_orthostat.html), and made an appointment with Dr. Rudnick. I was dxed 4 years ago by the Mayo Clinic but Dr. Rudnick is so much closer to home and was fantastic. Very knowledgeable about POTS, has a beat to beat tilt at his hospital and is super down to earth and easy to talk to. I would highly recommend anyone in the area to make an appointment and see Dr. Rudnick.
  3. I just wanted to mention how great Dr. Thomas Ahern at Scripps Clinic in California is! I was diagnosed at Mayo by Dr. G (who is equally great) but am out here in San Diego from Brain Injury treatment and have started treating with Dr. Ahern who is just so wonderful. He's very knowledgeable give you so much time and most importantly thinks out side the box to do his best to help you. He considers everything and is even knowledgeable and treats Mast Cell issues. He's so accessible and has regular follow ups and returns phone calls quickly! I would highly highly recommend him to anyone on the west coast and if anyone has any questions feel free to ask or PM me!
  4. Sorry, I wasn't so clear (brain fog)! my neurologist has prescribed the Ivabradine, I just need a reputable pharmacy to get it at, does anyone know of one either in Canada or overseas?
  5. Does anyone in the US have a way of getting Ivabradine. I know it's not FDA approved yet but know that it is possible to get from a Canadian/overseas pharmacy. Does anyone have recommendations? Thanks In advance!
  6. I occasionally (2-3 times a week on different scales of intensity) get a burning sensation in my outer ear, the ear itself turns fire red and it is hot to the touch and painful (mostly left ear, occasionally right). Nothing much helps (doc suggested ice though he never heard of this himself). Has anyone else had this as a symptom if so any successful treatments?
  7. does anyone know which doctor in Israel is doing the study? Is it Giris Jacob? I was thinking about trying to go overseas to get Ivabradine and do have family in Israel but since the trip is so difficult would want to make sure I see the right doctor and can get enough supply.
  8. Dr Goodman is very knowledgable and up to date on most things related to and involving areas of pots. While I never brought him an article he strikes me as the type of doctor who would gladly look at anything you brought him and give you his opinion. In terms of mast cell mayo az has an amazing allergist who has a strong interest and knowledge about both mast cell and knowledge of pots his name is dr john Lewis and I would strongly reccomended calling ASAP to try to get in with him during your trip as he books up quick his secretary is really great and her name is Terry in the allergy department.
  9. I have the same ear issues and mine are sometimes even very painful.... does anyone have any idea what causes this?
  10. I had autonomic testing today and my hr went up 60 bpm from start to end of tilt but my bp was high in the 160-180/90-100 range during the tilt..... is that normal for POTS or is that hyperadernergic, or something else?
  11. Do you guys tend to get a higher heart rate with the TTT then with just standing or not?
  12. What kind of Autonomic Testing do they offer? How does their lab compare to Arizona?
  13. turns out he only researches doesn't see patients now.... o well
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