Vlinder

i get the flu vaccin since i have POTS. my homedoctor advice me to get it, because getting flu is worser with my illness problems. i never had any problems after getting the injection, so its a story that you always get ill after getting this vaccin. and most important, i didnt get the flu.

I use sometimes an antihistamine named Telfast. I don't have problemes with it. I have to say my problem is not orthostatic hypotention but orthostatic tachycardie.

Last year I get the influenza vaccination for the first time. That was because the still were thinking I had a heartproblem. This year we know I have POTS. My question is if the influenza vacination is necesery for me. When you have dysaotonmie/POTS is influenza worser for you. Can you be ill from the vacination or getting an heavier reaction on it. I asked it at the dutch people who makes the vacination, but they dont'know an answer on this question. Hope you can help me, so I can desire what to do.

there was a post on this site for free shirts. I filled in for getting a shirt for two times, but both times no response. the post for free shirts isn't on the site anylonger. how can I get a shirt, because I think it is good to wear it when I go to the fitness. who can help me. thanks.

corina, I send you a message hope you contact me. brye, I did the same as you for getting the free shirt. nice mascot on your high school.

Last week I went to a neuroloog. My cardioloog sent me to him because i have POTS. He wants to do the tilt table test again, now also with making an EEG. He also says that POTS most of the time together comes with ME. I don't know if thats with me to, for now I thinki I have only POTS. Than will i asked if the Dysautonomie shirt are out of order. I fill in fot this free shirt for 2 times, but think that's not for dutch people means. I would like to care it when I go to the fitness. So when somebody have such a tshirt from this site and you do not wear it, may be you can send it to me. I realy would like to have such a shirt. For now greeting to evrybody hear, and thanks for be a guest on this forum. It is great to read your stories about living with POTS. My country is not sso far in it. Jeannette

the link works, I copy it and came to the site. always nice to read information about POTS, so this site I will read tomorrow or so. for me it's sometimes difficult, because I am from the Netherlands. Most of the time I translate english sites. I have made my own blog because there is not so many information written in dutch language. you can read it and there is an translate option. www.ikhebpots.punt.nl when I will respons on forums I have to do it in english because it is not possible to write in dutch en that it been translated on his own. but most of the time people inderstand what I means.

last year I couldn't work my usual hours. since 2 weeks I am back on my work for the 16 hours I also work. I now work 2 days of 6 hours, I begin than at 10.30 h. so I have time enough to make a slow wake up. The other 4 hours I start on 9 o'clock till 13h. so I have the afternoon to take my rest. I work on an information job, phone and administration. some times it is difficult for my concentration, even when it is bussy at the phone. but I am glad I can do this job and that my hours I work me the change give to hold on. sometimes I come home and need rest, but for now I have enough time to do my own things near my job. and I'm lucky that I work parttime.

i've been diagnosed with POTS a few months ago. mij first cardiolog didn't know what was my problem and each time he send met away because evrythings seems all right in his opinie. the last time i walk out his room, saying that he doesn't listen to me. i went to my homedoctor en he send me for a second opinie to a universital hospital. after 1 visiting, listening to mij problems. doing some test and also a tilt table test she comes to the POTS diagnose in 6 weeks. i also have periods that i am verry tired. in mij vacation i had one week of sleeping en feeling tired the hole day. after that week i feel beter. i try to rest (if possible) during the afternoon, sometimes i go to bed for 1 1/2 hour or so. if i don't do that i feel tired the rest of the day but also my concentration will be nihil.at this moment i am happy i found this cardiolog, she will now send me to her college who is a neurlog and he is specialised in POTS. i hope you understand my writing, i am a dutch women. i started an own blog, may be you like to visit it www.ikhebpots.punt.nl it's writing in dutch so you shall have to translate it.

nice to make friends down under. I live not there, I am from the Netherlands. so this is a worldwide forum

I get citalopram, started with a low dosis. In the begin I had problems, but soon it get beter. The dosis I use at this moment is 30 mg, I started with 10 mg. It makes me feel a bit comfortabler in my head, relaxder in my live. Before I used my serotonine for each little thing coming in my life, i always wanted the controle about evrything. So heavy to do that each day. The POTS do not go over with it, but for me it is looking to the way it makes me easier to live with it. Have a nice day. ps: I hope you understand what I write, because I am a dutch girl. This is a great forum about POTS, in Netherland I found nothing about this.

I use Ivabradine for my heartbeat. when I don't take it my heartbeat will go between 140-180, just when I do little movements. Now it's lower, so I can do a little bit more. When my heartbeat now goes arround 120-130 I have specialy heartsymptoms, feeling dizzy, feeling not well at all.

this is mij first post her, sorry if my english have some mistakes, but i am from the netherlands. I use an AD since march of this year. my diagnose of POTS have I get 6 weeks ago after a medical searc of an year. so at me the symptomes of a to high serotine in me was earlier diagnosed than POTS. it is the firts time that I use AD.