McBlonde

I had an upside down sleep cycle for a loooooong time. In February, I stopped taking Effexor and around the same time I started to going to sleep around 12:00 and wake up around 7:00. I don't know if the Effexor had anything to do with it or not. I took it in the AM. Maybe it had the reverse affect on me (shocking i know!

Also, way back when I first got sick and had fibro symptoms, the rheum. prescribed a small dose of Trazodone. He said it made you go into the "good" deep sleep. Also, 1 mg of Klonopin at night. The combo seems to give me 7 or 8 hours of good sleep.

Well.... back from the ER! LOL leave it to me!! After 5 months of slooooowly building up my walking, getting to the 30 minutes a day finally.... and BOOM... 15mg of Adderall caused such a crash when it wore off that I ended up having to get IV fluids today for the 1st time. It's too bad. It certainly helped me think clearly. Maybe Ritalin or Provigil will work better for me. At least I felt happy for 4 days!!

Mercy! I can't believe how crazy the side effects of medicine are after POTS! I wonder if Adderall constricts too since I responded well to the constrictor Midodrine?

Please excuse the bad writing. What a day!

Nobody has had a crash when the Adderall wears off?

Rich, I took 1/4 of the 30 mg pill for 4 days. It was great. I could sat up for 4 hours at one time!! I could read again, too. BUT, today when I took half, well.... see the above post. I "think" it was crashing from the Adderal but I'm not sure.

Well.... 7:28 .... and the palpitations are gone and heart rate is down to 79. That was so weird.

Holy Moly..... I took 15mg of the generic Adderal at 9:30 this am... I felt great and could READ again..... but not at 5:49, my heart feels like it's pounding very hard. Is that the crash after it wears off?

Yes. With a CSF leak usually, you have fluid that comes out of one side of your nose or your ear....also the dramatic headache

A spontaneous CSF leak is pretty rare. My symptoms were a crushing orthostatic headache that went away when I laid down and nausea. Turned out to be from POTS, not a CSF leak. I'm confused though, because I don't think an MRI with contrast alone will diagnosis a CSF leak.

The definitive test for a CSF leak is a lumbar puncture (spinal tap). The type of headache from POTS feels like a CSF leak headache which is why the diagnoses get confused. Before I was dx'd with POTS, they thought I had a CSF leak. I had a lumbar puncture and they ruled a CSF leak out. I had no problems with the lumbar puncture. In fact, I felt fabulous in the recovery room (turns out because of all the IV fluid I was getting, lol)

Congratulations Jangle! We are all so proud of you!!

Libby and Wendy.....

I had never had any vertigo before. It started on about the 6th day of Midodrine. It was positional vertigo. IE when I rolled over in bed in the AM it felt like I was on a boat and even when I stood up, it continued for a few minutes and then would go away completely. The Midodrine was so great because I could be up and functioning again, but I was afraid if I continued the Midodrine, it might cause permanent vertigo. After I dc'd the Midodrine, the positional vertigo very gradually disappeared. It's bee 6 weeks now and it's almost completely gone. That part doesn't make any sense to either because Midodrine has a short half life is is supposedly out of your body very fast. I also never took it past 1:00 PM, yet it took six weeks for the side effect to go away. I don't understand that.

Has anyone else experienced positional vertigo from Midodrine or am I the only one?

Not being able to sit, even in a recliner for over an hour without the nausea and headache starting.

Now being able to read much, balance my checkbook ....simple tasks

I've tried every single SSRI and gained weight all of them.

75mg of Effexor worked for me...and lost weight on it. I couldn't any higher dose. I went off of it in February just in case I had testing this summer. I can really tell a difference. If I see my husband coming at me with a piece of mail in his hand I panic... A neighbor asked me how I was today and said she was praying for me and the tears came. ......obviously wacko over-responses, lol... My guess is that the Effexor kept me even before and I just didn't know it.

I tried Dexedrine and it knocked me out like a sleeping pill (how crazy is that!!) I'd like to try Adderall to see if I could get my concentration and ability to read back.

Is there any kind of exercise that helps with the blood pooling in the abdomen?

I am SO SORRY!! I don't know what else to say except to extend a big (((((hug)))))).. I've forgotten now. Does the company you work for now have short and long term disability and is that an option you have? xoxoxo

Anoj,

I am so glad this thread was bumped because this AM I was thinking of you and wondering how that interview went and how you were doing!!

xoxoxo

That was very interesting. Thanks. So..... if Midodrine made me feel "normal" (until the side effects got me) is that any indication of what sub-type I am?

Sorry to hear that! There is no way you can just "suck it up" with POTS.... I know that 1st hand. Do you have a good doctor?

Low Vitamin D3 or potassium can cause leg pain. Have you had those checked?

Sounds like vertigo! I had never experienced it until I took Midodrine. Midodrine gave me my life back but then suddenly caused me to have vertigo. Mine was positional vertigo though... I only experience when I turned over in bed or right when I got up... kind of felt like I was on a boat hit with waves! It took about 2 months to go away after I stopped taking the Midodrine.

Thank you for posting that for us Arizona girl!

Dr. Thompson is in Pensacola. That's only a hour or 2 away right?

I love both my heart rate app & my bp tracking app! I agree StephL, I have been testing like crazy now!

I don't have the BP tracking one! Do you have a link? Thanks!!

I should have added... this is one of the things that confuses me most. I see people that know their sub-types, but they are still sick.... Does that makes sense? I have a lot of brain fog today #Sorry