Daphne1

Wow fantastic!! I hope you'll stay feeling so well!

I have the same problem. When I'm really tired I'm constantly staring and can't see well. But I also don't know what to do about it. So I'm sorry I can't help you, I hope someone else can!

A few years ago I was taken Equasym (the same as Ritalin, but then in extended release capsules), because they thought that I maybe had ADD (I hadn't ADD, but still had to try those medicins). I had to take a really high dosage (80 mg a day), but I get only more brainfog and couldn't think normal anymore. I don't know if my tachy was better on the Equasym, because at that time I didn't knew yet that I have POTS. But I didn't feel good when I was taken it.

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Hi lisette, I'm also new here and I live in the Netherlands too! And another DINETmember, Corina, is from the Netherlands too! So you're not the only one from the Netherlands here:) Welcome to this forum! Best wishes, Daphne

Sometimes I get the flu, than I feel terrible, but I never have fever. I haven't had fever for years! Is that also a symptom of POTS maybe?

Thank you so much for your warm welcome and all your tips, I really appreciate that! ana_22: In the topic 'Cfs and POTS' you can read exactly wich treatment i'm following. It's mainly antibiotic and probiotics. And I'm almost sure that it is the treatment that is making me worse. So I think I will stop with that treatment very soon. corina: Yes I'm still trying to do some kind of excercising, it's not much, but better dan nothing I think;) I didn't know that it's good to raise your head a little, I'm gonna try that! Thanks! Best wishes to all, Daphne

Hi everyone, My name is Daphne, i'm 18 years old and I live in the Netherlands. I'm having health problems since I was 8 years old, I had almost every day a headache, often pain in my ankles and knees and often hot flushes. Gradually I was getting more fatigue, more problems with sports and more symptoms. Eventuelly I was diagnosed with ME/cfs 2 years ago, because my GP just couldn't find anything else that explained my symptoms. One year ago I also got the diagnose 'sinustachycardia and POTS'. I was treated with Verapamil for the sinustachycardia but I stopped with that because I didn't feel

futurhope, I'm sorry to hear you landed in the emergency room when you tried the treatment of that alternative doctor. Yes it's really difficult to decide what to do, I don't want to quit to soon and that I didn't give it a good try, but I also don't want to damage my body. Yes, I'll let you know what I decide to do! Daphne

According to the hydrogensulphide and d-lacticacidtheory, I know a few probiotics that prof de meirleir regularly prescribes: Enterol, Lacteol, Mutaflor ad VSL-3. So i think that those probiotics don't produce lactic acid. But some of them do contain lactose. I'm diary intolerant, but I don't have problems with those probiotics, I think it's just a really small amount of lactose/milk in the probiotics.

Hi, futurhope, yes it was the treatment that worsen me a lot. I'm trying antibiotics, probiotics and some supplements(vitaminB12-injections, chlorella and lipothion) sallyB, the medicins that prof de Meirleir prescribes are adapted to each individual situation. If you tested positive to the hydrogensulphidetest, you also need to get some other tests done to know of which bacteria you have an overgrowth in your gut and of which bacteria you don't have enough in your gut, based on that the professor gives everyone an individual treatment. In my case the tests showed that I have to much enteroco

Hi everyone, I have POTS and ME/cfs and i'm a patient of prof. K. de Meirleir. But i want to warn you that the hydrogene sulphide test is not a really reliable test. I follow his threatment for almost 6 months now, but i only feel a lot worse than i was before. He told me i have an overgrowth of enterococcus (which produce a lot of h2s) and he gave me antibiotics and probiotics for 6 months but he never let me do the h2s-test. So this morning i did the h2s-test by myself and it was negative!! And i know a lot of other people in the netherlands and in belgium that did the test, and some of them