Hi everyone, My name is Daphne, i'm 18 years old and I live in the Netherlands. I'm having health problems since I was 8 years old, I had almost every day a headache, often pain in my ankles and knees and often hot flushes. Gradually I was getting more fatigue, more problems with sports and more symptoms. Eventuelly I was diagnosed with ME/cfs 2 years ago, because my GP just couldn't find anything else that explained my symptoms. One year ago I also got the diagnose 'sinustachycardia and POTS'. I was treated with Verapamil for the sinustachycardia but I stopped with that because I didn't feel better. The cardiologist never did more tests for the POTS and he never gives me medicines for it. Now I'm following a treatment for my ME/cfs in Belgium by professor de Meirleir, but it makes me only much worse. Before I started with the treatment I already laid in my bed each day, but sometimes I could sit in the livingroom for a while and about once a week I could do something outdoors. But now I'm fully bedbound and can't do anything anymore. The professor says that POTS is just a secondary result of ME/cfs and he don't want to hear anything about my heart-troubles. But I think that I maybe always have had POTS and not ME/cfs. Soon I'll make an appointment by dr. Lenders, I read at DINET that he is a POTS-specialist in the netherlands. My main symptom is my heart rate. When I'm having a bad day my hr is around 100 bpm when I'm lying and goes up to 170 bpm within one minute while I'm standing and when I lie down again it drops to 55 bpm. When I'm having a good day, my hr is between 80 and 100bpm when I'm lying, and when I'm standing it is between 120 and 150 bpm. Other symptoms that I have: fatigue, lightheadedness, near fainting, palpitations, shortness of breath, excessive sweating, nausea (sometimes vomiting), blurred vision, tunnel vision, dizziness, exercise intolerance, blood pooling in legs, intolerance to heat, cold hands and feet, feeling cold all over, cognitive impairment, hyperventilation, polydipsia (I drink about 4 liters water per day), foodintolerances(diary, sugar, fructose and wheat), ear, gut and bladder inflammation, malaise, headaches, pain in legs, hypoglycemia, abdominal pain, chestpain and difficulties to fall asleep. I hope that I'll find a lot of recognition on this forum and that I can learn of your stories and experiences. Daphne