giftcreations123

I was wondering what this means and if anyone has this

EMG results says " Evidence for widespread sensorimotor polyneuropathy c/w mononeuritis multiplex/"

Dr. said to take mega sodage of B vitamins and that I have nerve function like a 80 yr old...gee thanks, I am only 35..

Thanks

I just read somewhee, I have to dig it out, that they found an enzye in Tylenol that works on the Central Nervous System...hmm

Thank you

May I ask you at what dose did you try the ginko?

thank you

Thank you

I have dne the cardiac work up and all...just have holter to do. My cardiologist diagnoed me but my primary care doctor wants to run more bloods to make sure, I guess before she officially calles it POTS...

she will do thyroid, adreanls and sugars...anything else?

Thanks

hi

In my quest to find something that makes sense and makes us feel better...I came across Ginko Biloba..its ssaid to thin blood and increase blood flow to the brain..

Anyone take it and recommend it?

Thank you ...

hi

I too was going to ask this question...

I spoke to a nutritionistbyesterday about a natural form of increasing seratonin. He said, he wanted to know, the physiology behind why dr.'s give antidepresants for our condition?

Any thought?

hi..

I comepletly understand how you are feeling. I feel that way alot. My dr. gave me Meclizine and it helps a bit. However, sometimes its hard to distinguish if its true vertigo or if I am feeling whoozy from blood pressure drops and raises...

Sometimes, when my allergies are bad, the vertigo really kicks in so you might want to try a decongestant that you can tolerate. Mucinex works for me because I cant take anything else.

Feel Better...

Hello

Since most of us cant take regular cold and allergy stuff, I take Mucinex when I need it.

I dont seem to get any reactions from it and I think it might help symptoms....Its only ingrediant is guefisien which thins secretions.

Any one can explain this...

Thanks

My internist is sweet and workable but no so failiar with dysautonomia and POTS. She said she will do any necessary blood work but I can tell her what to test for.

Any suggestions on what to ask for, other than thyroid, sugars etc..

My cardio is awaiting the results as well.

Thank you ...

when you crack it, please let us know...

hi..

Last week, I was feeling okay and had literally less than half a cup of wine with dinner...I was dizzy the entire night and by morning, it was gone...

weird, ?

thanks for your reply..

No I dont think so and I think it happens when I am not anxious...

go figure

hi

my husband told me I need to go back to work pt because we cant afford me styaing home anymore. I understand but terrified I will not be able to cope. I can barely get the kids off to school, still not feeling well, and havent been able to find a dr or treatments that make sense for me.

Any suggestions?

Thank you for listening!

hi everyone...

Sometimes I have a funny pulsating on the left side of my temple. If I put my fingers there, you can actual feel it.

Anyone get this..?

Thanks

Hi..

I feel an adrenaline surge right over my kidneys, below my rib cage..

I try to ignore it so that hear rate doesnt go so high, but any thoughts on controlling this.

Thanks

Thanks for your responses..

So, nothing much I guess can be done?

I am trying to eat salt before bedtime, maybe and hoping that getting up in the morning would be easier.

Its just awful not being able to take my kids into school without feeling like my eyes are going to fall out and heart racing..

\thanks again

Hello

Just wondering if anyone knew the connection. My insulin levels are low while glucose are ok.

My doctors dont seem to really know

thank you again

hi..

Mornings are very hard for me. I have kids who need to get off to camp and school. I really force myself to function as I really dont have a choice. In the home I barely lift my feet off the ground to walk. However, they need to be driven. By the time, I get evryone in the car, my heart is racing and head is in a cloud.

I once had to walk them in and thought I was going to pass out..

How do you deal? I cant avoid taking kids to school , my doctors arent sure what to do yet.

Thank you for listening

Hi..

The thought of doing the ttt is to much for me to handle. I know I get tachycardia when I stand, pick something up etc...My dr. had been monitoring bp as wellas heart rate. ..

y bp is usually in the 100's over 50's range with normal hr when sitting. When I get up my heartrate and bp increases. However, when I stand for a while, my bp lowers again.

I feel horrible in the mornings, and often feel dizzy, lightheaded ad woozy.

Thank you

Hi..

My internist feels a beta blocker would help with tachycardia ( I have an appointment with cardiologist soon) but I dot understand something. If it lowers blood pressure and us POTSers get low blood pressure, wont a beta blocker cause it lower more.

cant wait to find this all out..

thanks

hi...

My doctor recommended taking a drug commonly used tfor vertigo called meclizine...its an antihistamine which suppresses the ivestibular symptom.

I was wondering if any one tried it or heard of it

thank you

Thank you very much for the warm welcomes...

I sit here with tears in my eyes as I really realize that I am not crazy...

Hopefully we report only good news..

thanks again!

Hi again..

Its hard to explain, but I find when I eat, I have to deep breathe alot , like I cant get enough air in...maybe its the heartburn, not sure...

add it to the list!!

thanks

I know they have some doctors listed on the web page but was wondering if anypne has any specific recommendations., maybe even on Long island.

thank you

Thank you ..

I am in NY...

Its funny because I complain that the mornngs are worse for me, by afternoon I do feel a little better, and the vision issues . I aso feel like sometimes I dont get enough oxygen.

My internist is not the greatest, she did pick up a small heart murmur though.

Going to meet with her again.

My cardiologist suggested checking heart rate and blood pressure throughout the day which I will do.

Thank you again