nikigrl8883

im just scared becasue i read about gaining weight on betas and it seems to mean you could be having a worsning heart condition didnt seem to good ........

i just weighed myself and i wiegh 126lbs i have gained over 15lbs since ive been sick! for the past few years my steady weight was about 110lbs ....in august i was 117lbs now im 126lbs im a little worried becasue i keep gaining wieght i started the beta blocker in august could that be causing me to gain so much weight? i only take a half of atenolol 25mgs a day....im worried about fluid retention from a heart condition...or somthing else has anyone else gained alot of weight with betas?

if this is going to casue any type of controversy i am sorry i dont want to do that hopefully it wont/// i tend to ask alot of questions becasue i am interested in peoples expericenes with pots since i am new to this....my aunt diane lyme disease as well and she had severe joint pain fevers......i know lyme can cause pots and autonomic problems., my question is for those who actually have lyme disease....what were your main symptoms fromw hen you think you got lyme until you took antibiotics? for example FEVER? JOINT PAIN? TREMORS? i wanna see if they compare at all to the way i felt when i first got ill until now....again please dont think im starting another lyme issue im just curious after reading the recent lyme post

sorry about this post i know theres a similar one on here that alot of people have replied to... i had forgotten about that one until after i posted this topic ill check out the other post sorry

dizzy,

ya thats scary how you can have lyme and be negative on the blood test,,,so in your case did u ever test postive after awile? or you just never tested postive and the doctor is just trying it? im just curious because i was tested 2 times like i said and considering you can have lyme and be neg on a test thats scary can the docs just try the antibiotics or do they need the posittive result s to try that on you i mean in the late stages such as yourself.. if i told my doctor i want antibiotics for lyme he wouldnt do it becasue my lab work was neg...but now i wanna try it if it may help

i have a question ....how can you be treated for lyme if you were tested negative for it? i didnt know doctors can do that if u dont test positive...did the doctor just decided to try it?

hi i dont know why i have pots yet,, i was tested for lyme 2 times and both times it was negative.....i dont htink the docs are up for doing it again

hi my name is nicole

im 23 yrs old

i was diagnosed with pots in august of this year /been sick since late april

i dont know what caused the pots yet

i am taking atenolol 25mg (half) bc pills yamin and bromocriptins for a prolactin thing

my heart rate off pills standing was up to 140 mostly about 120 now its less than 100 with half a pill

my bp gets pretty low now which wasnt a problem at ist

i am from massachusetts

my symptoms since this started

lightheaded all the time sometimes dzzy

feeling very anxious

racing heart when standing and even waking up in the middle of the night with one

tingling in hands and feet//partial numbness in feet

severe head pressure not headache

tired

weakness(new)

low bp

nausea somtimes

i had the runs all the time at ist

lost alot of weight

my symptoms now

lightheaded

tachy while standing with low bp

weakness/tired

gained weight

chest pains..before too

headaches somtimes

nausea somtimes not often and not that severe

LUMP in throat tightning in esphagaus

somtimes numb hands wrists waking up just partial numb like i layed on them

theres probably way more i cant think of

oh hot flushed cold sweats walking around

i have to put this i cant belive i forget it was the scariest symptom i had

somthing like my heart stops and i have to gasp for air i feel like im going to have a seizure but i dont (that happened at ist alot)

i hope i dont sound rude to ask this on this post but i figured i mine as well instead of starting a whole other post....i thought people didnt die from pots,,,,ive never heard of progressive pots whats that? how do doctors know if you have that.....this stuff is quite nerve wracking

thats horrible.... how old was she? did she die from dysautomia or somthing else with it...do people die from masto.....? i didnt know that ....im very sorry for her family too

i have seen people on here with pictures up and i was wondering how you do that on here when i try to put any picture up it says i dont have permission>?

hello, i was curious to know what peoples standing heart rates are when they first get out of bed before there pills and bp too //mine varies daily some days its about 110 others itll be 130 without pills just curious as to se how high other peoples goes

im new to this but once in a great while ill drink a soda or a coffee and it doesnt seem to do too much damage ,,,although i dont drink enough of it to really say how badly it effects me

hey thanks for giving me suggestions i appriceate it...i have seen 2 different neuros since this started in april the last time i had a neuro exam was in august and i passed...this weakness is new i had mono when i was 14 and its similar to that but not as bad/ like today i tried to go with my dad to buy a winter coat and i couldnt even look around i was so weak my legs felt really weak....but then as the day went on i gained a little strength ...somtimes its really bad others its not as bad, but i cant say i ever feel normal...as for the weight, at ist i lost alot of weight i was about 110lbs in the in august i was about 115 now im 124 so ive gained quite a bit of weight i am 5'4 in height/ i havent been active at all im sure thats part of it along with my pills maybe and sitting around all day...maybe i have chronic fatigue syndrome, although im sure sure if that makes you weak i know you are extremly tired,,,im going to my cardio on dec 1st im gonna mention this to him maybe **** do some tests , (lucky me ) lol more blood work i feel like im supplying all of massachsetts with blood .....

about the potassiam, isnt orange juice a good source of potassiam? i drink it alot....2 monthhs ago my potassiam was ok

i tried doing some stretches today and moving alittle but im scared to try to much considering my bp is so low for some reason and i am drinking alot too... how did you get your picture on here? when i try to put mine it says im not allowed to

ive been taking it since sept ...its ateneolol 25 mg but i cut it in half

i looked it up and it doesnt looking to promising! i also have to take into account the fact the i have pots too and how that can be related to the weakness or what kind of things casue pots and weakness that would make sence since this just recently started happening after i got pots.... geez this is depressing....i am also have bp changes and issues as you will read about in my new post (bp problem #2) ugghhh its like a constant issue

oh and im taking atenolol yasim bc pills and bromocriptine for the prolactin thing and a multivitamin/ lat time i was checked my potassium was ok

i thought id add to the bp mix... the past few days ive noticed a change in bp ...before when i stood up my bp wouldnt drop ,,,now its dropping dramitically to the 80s/50s last night laying down it was that low too even 80s/40s..what the heck is happening to me.....seems to be getting worse whatever i have...do beta blockers have that effect? when standing/ this is ridiculous my symptoms are constantly changing //bp wise/ weakness wise/// id didnt have that problem before/ before i jsut had very low bp while laying down,,,,,,,,

hi,

dont feel bad becasue my bp is very low lately even lower than yours 80s/40s mostly laying down or relaxing gets very low dont know why have no clue///but your not alone

dizzy dame,

what is ALS? i doubt ive been tested for either becasue this weakness just started recently in the past few months .. i am defenatly going to mention this to my doctor dec 1st when i see him again... God does it ever end! lol nope never,,,

yes 2 differnt ones since april the last time i saw one was in august and i was ok besides the pots....ive had a brain mri too.....there was no sign of multiple sclerosis or anything but ive just recently been getting liek this

thanks tessa,

i actually feel like i always do though i mean can a person be weak from not doing anything daily even though there still eating and drinking right?i get this thing at night when i sleeping and waking up kinda like little tiny internal spasms or lik e i can feel my blood moving through my veins like a slight shaky feeling i dont know how to explain it in words

hello,

i was just wondering if weakness/loss of strength/ is a pots symptom of if it is somthing worse? I looked on the list of symptoms and didnt see it on there... do people loose strenght from not doing anything? when your dhea level is low what does that mean? could it be from stress? i know from what i read in anotehr post dhea is "up in the air" but what does that mean in someone my age

i havent tried the compression stockings yet i plan on it though... i have been drinking alot yes salt loading no...just regular salt amounts,, the reaason im holding off on that is becasue i want to make sure i dont have any type of heart problem before i do that becasue i know salt in excess is bad for people with a heart issue,,,,as far as the dhea level,, she just mentioned it was low becasue i asked her is i had my estrogen and testosterne tested she said no... she said it was"a little low" but didnt go into details i just figured if it being low was that bad she wouldve said stuff about it to me but of course she didnt....it wasnt until i looked up low dhea that i saw all the lovely things about it/ is it normal to be weak with pots i mean in exams ...? i wasnt weak like this is august this is new...thank you for replying to me