nikigrl8883

well my pots was brought out by severe loss of somone i cared for deeply and i was under trmendous stress for along time...i know theres more than that its physical as well...but in my case i have to say i cant deny all the spiritual connections to this ...i have experinced things most of my life and im far from crazy although ive questioned myself at times due to the amazing things that have happend....i feel there is tons of negativity around me and i felt it draining me literally for years with the real world and the unseen too...things have happend to me and people around me that people would have a very hard time beliveing ....i was warned before i got this no word of a lie...i knew i was going to have to suffer.....i have had dreams that came true many times in details too even with names especially about my ex bf who i know is my soulmate...one time a woman came up to me in a book store and told me she had to talk to me i had never seen her in my life and she came in after me older woman mid 30s i was about 21 at the time im now 23....she said i was more open to negative energies and that i have a gift and she gave me a card with angels on it and left she was from boston which is hour away from me she said she was just passing through and was told by her angels i guess to come into that book store and she was guided right to me! and it wasnt to make money from her end becasue when i called the number there was never any answer ever..... and not to mention that day i was really down about things and asked god for a sign like 15 mins before that happened....anyway thats just one example of what i mean....i feel this pots thing in my case is not just physical....i have been told many time my aura is all broken up and open i have no protection now...becasue i have suffered for so long and been hurt so many times throughout my life my energy force has been drained.... im just wondering if anyone in here has wierd things happen like this to them? i dont expect u to belive me and i probablly wouldnt either if i were u and didnt expercience these things infront of my eyes ..

i dont know what this catching breath thing is but ive had it many times and i didnt have anything they could find on an echo or ekg or holter same thing i have pots...thats all i know i have so far like tea rose said we dont really have enough info to determine ourselves what we htink this could be in his case,,,,,,do u think he has pots>

thanks for the input...blah i hate this condition....and tessa i also think i wake up with my heart racing because my hearts stopping or slowing down way to much my hearts obviously over worked

lets see i get worse when my bp drops anywhere from 90/60 and down it has gone to 80/40 before especially at night and my heart rate also drops low at night ...thzts when i feel the worst

every night my heart rate drops low and so does my bp mostly heart rate in the 50s somtimes 40s i take a tiny dose of beta only in the early afternoon like around noon and then by like 8 my heart rate starts getting low...does anyone else get this and know why this occurs:?

well just when i think there may be light at the end of the tunnel i fall back down.....still got tachy and brady still get lightheaded still feel like im being strangled with somthing round my kneck...nausea althought that isnt usually bad

that post falling asleep wierdness reminded me how i hate that symptom the most its so scary it happens to me alot.....what is that! i still dont know why i have pots not a clue besides viral or somthing wierd with my pituitary gland or losing my soulmate lol we were very close my im dying of a broken heart

somtimes at resting i get brady too like in the low 50s even 40s somtimes not daily though...i dont know why that happens im on a very low dose beta once a day in the morning....i think it actually happened before i was onthe beta too

thanks for all your advice//no doctors have mentioned a pacer i was just asking who had them for pots and why and what determines people getting them ....thank you i feel well informed about this topic now...and i dont plan on getting one lol! that would be the end of the road for me only if i absoulutly had to have one

hey i was reading that some people with pots have pascemakers put in .......who is eligable fo that and how do the docs determine if u need one? not that i want one lol....i was just curious...............blah im sick today threw up last night...and still feel sick maybe i have tthe flu or potssss again lol

hello, well i just wanted to ask who in here sleeps but wakes up feeling like they havent slept in a week? yesterday i was so tired i was yawing all day i wake up in the morning and i feel like i havent slept properly...i dont snore so if i have apnea its the kind where u make no noise.....also i have noticed my eye lids seem to jump at times mostly when im trying to sleep its liek i see flash flash flash then it stops its not a constantthing it comes and goes... i feel pressure in the head off and on and sharp pains in the back of my head to the right ive had mris that were normal i havent had a mra but i have had a transcranial doppler that was normal too..............pots?

well from what i know alchohol slows down the heart rate maybe thats why u feel better

ya i know its normal to a point is the catch mine gets exceptionally low like 80/50 somtimes ....now im noticing my bp is either normal or a ltitle high barely it changes all the time when i lay down its low

well i dont know what my norm resting heart rate is i always feel sick all the time so i cant t ell the differnce

thanks sunfish,

yes i check my bp lately its been normal except whn i lay down it goes low other that its normal....

hi i am currently on atenolol 12 mgs which isnt much and it seems to stop the tachy for the most part but lately the heart rate resting has been a little on the low side like 50s when i stand 70s low 80s how do i know whether or not to cut down thee dose ....i mean if i wasnt ont he beta would my heart rate be that low i wonder....maybe im getting better ! just maybe but i doubt it lol...ive only been sick since may its been 7 months....i still feel lightheaded alot especially when i go out or get overstimulated i get cold sweats and i feel faint,... ive never actually fainted....camw close though a few times....ive noticed i feel like im moving alot like slowly moveng not the room around me just me...its not like vertigo where things are spinning....i dont think i have an ear problem so i dont know i think its the dysautomia....thats what disables me...i cant work becasue of that its impossible and if i got nervous it would get ten times worese

thanks for the replies ont his topic ive heard the normal resting heart rate is 60-100 obviously 100 is on the high end but thats what it can go up to...that is from reading about it online from many differnt articles... i know i checked my friends bp and heart rate one day just for fun ,,,hes normal by the way ....and his resting heart rate was about 92 and i thought that was high but he feels fine...so i thnk it varies from person to person and how they feel but i have to say the low heart rate scare me alittle

yes this happens to me alot too....i also have the burning eyes somtimes too i dont know why either ....somtimes myheart is too fast somtimes too slow ..somtimes its too fast one part of the day and too slow the next....i use to throw up when i first got pots, which was in may , so it hasnt been that long...i also use to run low frade temps up until about august now that doesnt happen...i always feel tightning in my throat like there somthing around it bp is somtimes normal somtimes low im all over the charts

today ive noticed my heart rate is in the 50s as the day went out on even into the 40s i took my usual amount of beta this morning which is barely anything like 12mg of atenolol and now my heart is too slow does anyone else have this? my bp is normal for the most part

i had seen 6 doctors before i got diagnosed wit h pots and been to the ER about 10 times.... i dont know why i have pots...my hormones are ok nothing that would casue pots it seems ....suppodly i dont have lyme or anmeia...basically i haver no clue as to why i have it although i agree everyone should try to find the cause but some people cant unfortunatly

yes i had the same exact problem for 3 years too! i had to go to a urolist as well and had a cystoscophy that turned out normal but i was having blood in urine too and some type of infection but when the uroligst look at my culture reports he found that i had normal bacteria even though i had blood in urine.... i dont know to this day why this happened...i had pain so bad i couldnt even work at the time i was always on antibiotics

i have no idea whats casuing my pots ive had it since april and its not goign away i see

ok this is off the usual heath related topic but it is related to having pots so ill just say it.....i havent done much of anything the past 7 months due to pots so ive gained about 14 lbs...before i wieghed 110 now i wiegh like 125 and i hung out with a guy i dated lastnight who thought i was god gift to women before when i dated him....he called me all the time and etc...well he was naggin me to hang out lastnight so i did and today he wasnt calling like usual so i saw him online while he is at work and mentioned that was acting differnt,,, then jokingly i said "what im not hot anymore" and you wouldnt belive what he said to me........he said your still hot but u are too thick now i liked u when u were really skinny... i liked how u looked before...my jaw dropped open...that he said that to me...now he doesnt want to be with me and the funny thing is im now a size 3-4 before i was a size 0....so its not like i went up to an 8 or somthing but i have been paranoid about my wieght gain lately as it was....not knowing if it had somthing to with the pills either....so i have been sobbing for the past hour...its not like im already not at my lowest point

as far as those bp readings to me thats not bad my bp changes like the wind and i get hot and cold too all the time//// i know exactly how u feel about the sleep thing...there were times it happend so much id stay up for days and that just makes it way worse eventually u fall asleep uncomfortably but its better than staying up days at at time becasue it gets worse... i get that same thing and one added component somtimes is i gasp for air for a sec like my body stops! like when u die all the breathing heart everything stops for a sec until i gasp for air..that hasnt happened in awile though but its scary..and this is from a girl whos been through the ringer with testing with no avail..so i dont know how i can help

yes! this is somthing that happens to me almost every night i dont know what it is and i feel like passing out to while trying to sleep and i get startled easily////oh trust me your not alone on this!