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nikigrl8883

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Everything posted by nikigrl8883

  1. i thought of deconditioning too but when i first got pots i was active i mean working everyday so at ist it wasnt becasue of decondtioning ...i mean the reason i got pots wasnt becasue of that becasue i was moving before alot....
  2. since not exercising for 3 days heart rates have been worse than ever pots wise why would that be medically? my bp isnt that low anyway except at night,,,,,i just dont get why when i exercise daily the rates stay level and when i dont there are horrible
  3. ok why is this.....ive been exercising for 2 weeks and my heart rates have been good i didnt exercise yesterday and now there back to pots again! if i dont exercise daily thats happens but if i exercise say in the morning my rates will be good the rest of the day into the night
  4. how many people in here have heart burn almost on a daily basis? stuff just comes dup into my throat out of no where.....i havent been eating bad i dont knowhy this is happening and my tummy is bloated all the time or maybe im just fat int he tummy lol.....
  5. i just made a startling discovery, i was just drifting off into dream land again just now and it happened again this time it was with no anxiety ,,,as soon as i wake up it only last up to a min longer not even and it then the rate goes back to normal...so its only happening when im falling asleep pr asleep when i wake up i still feel it zooming away but it only last a about 40 more secs after...its somthing about the transition into sleep thats doing it i think
  6. i would like peoples experiences with waking up with the heart beating so fast......i dont think i snore which is common in sleep apnea....i probably am not breathing in my sleep i dont know....is this an autonimic issue? my heart doesnt race during the day like this....only when trying to sleep pr waking me up out of sleep....i also dream vividly every single night....i dream alot and i rember at least two dreams i have a night....most peopel i ask dont rember there dreams at all hardly.....i rember in details all of them why is that? is that a sign of somthing else? does anyone else rember there dreams like this? the band type feeling around upper abs only happens when i wake up from sleep as well, it just happend again last night....my problem too is that i often am having a bad dream when my heart takes off and i wake up but maybe im having the bad dream becasue my heart is racing? somtimes it happens for no reason while sleeping i dont know why but it seems bad dreams make it more likely to happen....does this make any sence?
  7. well i woke again last night with a racing heart any time i have a bad dream at all it happens.....i didint get the band feeling right away this morning it occured awile after the heart racing thing....does anyone else get this when there heart isnt racing at the time? and to answer your question yes it feels like pants too tight exactly to a T butits not that low its ont he upper ab
  8. im telling you the exercise is helping the pots tremendously... id advise anyone who is capable of trying this to do it ... at least for a week or so to see if it helps....i am not on any med either and im watching the rates and symptoms closer to see if thats a good idea to continue so far i feel more energised and the heart rates are more even....they arent as low as with the beta but there in the normal range still....70s 80s 90s....thank u for your encouragement
  9. thank you for your replies, the tightness is under my chest though but if thats considered the chest i suppose it could be from anxiety....i have woken up with that quite a few times (the band feeling) it feeling like there is an elastic band tied tightly around my abdomin upper abdomin....its not fun
  10. im worried although this has happened at like 4 times times before in the past since ive gotten sick,,,,,,last night i was having a very bad dream and i woke up with my heart races again but i also felt a tight band type feeling around my upper ab like under my breasts....as my heart slowed down the feeling subsided....i know that band feeling is a common symptom in MS....i have had a brain mri and it didnt show any signs of ms but i didnt have a spinal mri ever....has anyone else ever felt this with pots
  11. for the past week and a half i have been forcing myself to do 2-3 mi walks a day and muscle exersing....before my heart rates were horrible 70 sitting 115 standing without pills with it would be about 70 sitting 85 standing....now i am not on any pills at all and my heart rates are like 80 sitting 90 standing and it even goes down while standing! i am so phyced about this...i still feel wierd when im laying down still but overall i think im improving and i know its from the exercise,....has anyone else seen imporovements liek this after working out?
  12. after i wrote this post the next day i went back to tachy while standing,,,,,so ive learned not to get my hopes too high....im just wondering why for those 4 days my heart was doing good...i have been going for 2 mi walk everyday via tv....so im training myself to move again....but the heart rates were good after that im still doing it but now the heart rates are bad agin...i dont know.....today when i stood my heart rate went from 84 sitting to 115 standing....so it did it this is without pill... i just dont wanna be on that dam pill...i wanna be normal and start working again....ugh
  13. nevermind i just took my pulse a few time sitting standing sitting 70 standing 88 then i stayed standing it was 88 again then 93 then 100 then it went back down to 88 all standing...its like its fighting to go back down
  14. the past 4 days i have stopped taking my beta blocker to see of my heart rates went wild.....i was only taking 12 mgs of atenolol...anyway today i woke up my heart rate was about 60 i stood up it was 72 i was so happy yesterday same type of thing day before same type of thing....the highest its going standing is high 90s maybe 100 ....but thats without the pill.....before it would be 125 without the pill or worse...i noticed at night my heart rates been a little low, 50s somtimes even 40s but then it will go back up of and on to normal....i wonder if i should get a little excited...or if i shouldnt ....i dont wanna think im getting better if im not
  15. hi i had thought i had taken my pill but realised i hadnt this morning....i did an aerobic brisk walk on tv that equals 2 miles ....my heart rate was 140 at the end right after gradually went down to 120 then 110 then arouund 100.......standing the highest its going is about 110 without a pill which for me is good...i took the pill about 20 mins after the work out....strangly during the workout i didnt feel that bad at all just normal for somone doing a workout..should i be excited?
  16. its weird becasue since that day i wrote this post i havent gone for a walk but ive done cardi aerobics in my house and kickboxing just for like 10 mins a day but my heart rate gets high up there and it feel like that should make me feel way worse after than walking but it doesnt....doesn that make anysence? i take atenolol for pots and thats it like 12mg a day or less and when i stand my heart rate will be about 90 somthing for awile after exercising its int he 80s lately i dont know what my heart rate use to be either before i got pots so its kind of hard to tell whats normal for me...also i dont wanna take too much of the beta
  17. no im not still getting the fevers they stopped in august and when i had them at ist there were low grade fevers but all the time off and on so it was wierd..... up to about 100 but usually 99.0 -99.8 ....ive had blood work many times since this started many many times at ist my white count was up slighty but not enough to cause the doctors concern they said......i kept getting blood work after that and i think it was ok as far as infection went and cbc counts white counts,,,, do you know how long a heart virus can be active?
  18. cardiactec, i did have fevers off and on for months and flu like symptoms ...i know i dont have a bacterial heart infection as those are quite obvious but i think i may of had a viral heart infection....a virus that went to myheart....i was not eating right before i got pots and working all the time and under alot fo stress,,,,,everyone at my work was sick eith a flu bug the week before i got sick...i then developed all the symptoms along with pots.......the echo couldve missed the heart damged because it was in august i had that done its been 5 months since then,,,,i ist got sick with a virus type bug in late april id say may.....so it may have developed during that time and turned into this.....thats what im nervous about
  19. hi i was just posting about exercise yesterday....i try to walk around the park near my house which is like half a mile....usually i feel alittle wierd mid way but i make it home ...yesterday was another story i my heart was extremly low afterward and my bp too i felt really really sick.....i just try to do little things and thats exercising to me
  20. wow after exercising my heart rate has been extremly low for hrs now in the 40s and my bp is going up and down even sitting its getting really low then normal then low........does anyone else get this after exercise? has anyone gotten pots after having a heart virus by any chance
  21. today i tried to walk around the park and i started feeling wierd half way around...i made it home and took my bp and it was wierd sitting too and so i tried to lie down and i almost fainted felt like the blood wasnt making it to my head horrible feeling i still feel wierd/////this is what my bp did in a matter of mins/ ist reading-125/88 hr 105 2nd-108/76 hr 79 3rd 89/75 hr 96 4th 94/65 hr 86 5th 116/68/58 79/62 hr 85 ! 81/47 hr 67 and i dont even wanna know what it is now and the last time my hr was like 41! its going all over the place
  22. since ive been sick ive had an echocardiogram ekgs a 24 hr holter and a treadmill stress test but i swear there misisng somthing my heart is either too low ot too high i cant live a normal life at all i get chest pains off and on not too bad of pain but enough/ i wake up with my heart racing at night somtimes but that hasnt happened in a few months last night i felt like i fainted in my sleep but i couldnt tell....im really scared....i had a tilt table too and it showed the upright tachardia but none of the othe autonomic tests showed anything wrong......im scared to do anything,,,to have any kind of life....i dont want to start another job if im gonna have to quit from being sick.....and im not convinced there nothing wrong with my heart.....when this ist started there were times i swear my heart was stopping for a sec laying down too! but no tests ever show somthing wierd besides tachy...all these test were done by my primary doctor who is also a cardiologist and he is very nice....but i feel like ill end up dying of a heart attack or somthing....its been 9 months with this now almsot a year ive been sick
  23. hi this morning i was half asleep in bed and i feel a really wierd sensation throughout my whole body and then it was gone can people faint in bed?
  24. donna, i have had an echocardiogram ekgs heart blood work a holter for 24 hrs and a treadmill stress test all were considered normal besides a little tachy on the treadmill....my primary doctor is a cardiologist and ive seen him many times...he swears my heart itself is ok ....what determined them puttin in a pace maker in you? how low was your low and what the heck is considered normal for at night is like 50 normal at night resting or 45 ive never fainted almost once though....im 23 and i really dont want a pacer if i dont need one!
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