nikigrl8883

ya ive seen 2 neuroligists a heart doctor and a hormone doctor the neuros the one who diagnosed me with pots but i dont know why i have it yet not a clue

thank you so much for the list...i realised i forgot all the other symptoms i had after reading that list i have like every single one! i didnt think pots could do all this its amazing,,, and its maddening to try and figure out how you got the pots int he first place and if it can be treated and fixed... ive alreay had alot of tests so i dont think there gonna find the reason

dizzyness lightheadedness nausea increase on heart rate from laying standing low blood pressure especially while laying down i mean it goes as low as 80/50 lunp is throat/tightning in throat loosing wieght then gaining then loosing again cold sweats while trying to do things extreme fatigue feeling like im on some kind of drug all day in the middle of the night waking up with a racing heart feeling flu like at times pee alot just plain feeling sick all the time do these symptoms coincide with pots syndrome or somthing more

hi i was reading about shy dragger and im petrified i have it how does one tell the differnce between dysautomia such as pots with all the symptoms we have (which theres tons) or shy dragger arent they similar?

thank you for your replies and to answer you yes i have been tested for lyme disease twice and lupus i dont know about the spinal thing i havent had an mri of the spine yet i have been to neurolgists and had basic neuroligical exam and passed everytime i did have someone come up behind me without me knowing lift me up and cracked my back later that night i was in awful pain and was in pain for a few weeks but not bad enough to have me not do anything or go to the hosptial so i didnt think that was related that happened about a month before i got sick as well...ive mentioned that to my neuroligists and they dont think it has to do with the pots but who the heck knows at this point i mean i pass all the blood work and theyve done alot no brain tumors no blockages int he heart i mean could a regualr virus get into the blood and casue pots ? becasue alot of the people at work were sick with a virus....i am going nuts here i feel like im dying yes! and i feel like my life is over ...how do u find out if you have shy drager syndrome whats the differne between that and pots? i actually went to the doctor today my cardiologist and asked him how i was to find out whats casuing the pots, and he said once the major things are ruled out its very difficult to tell and i may never what what caused it:( i mean if its somthing i can fix i want too geez..........its been 5 months almost 6 o by the way i dont have diabetes either and whats EDS? i almost forgot as far as my treatment all it is for pots right now is atenolol cut in half once a day and the other stuff like drinlking alot of water

well after 6 months of torture going from doctor to doctor with no answers i finally saw a neurologist who gave me a tilt table test and sure enough i have pots syndrome... i am so discouraged because theres no cure for this i am sick every single day and have been since the last week in april...these are my smptoms from the begining some are still here some arent some are new sighhhhhh....the obvious elevated heart rate from laying to standing...nausea tired all the time weakness feeling like i have a lump in my throat all the time dizzyness lightheadedness like all day long cold sweats when moving around pains here and there/ the ist night i knew somthing was wrong i woke up with my right arm completly numb i thought i had a stroke every since then ive been sick...ive had tons of tests mris ct scans eeg ekgs echocardiogram blood work a transcranial doppler tilt table test stress test the only thing i didnt pass so far is the tilt table test...and yes everyone said it was anxiety at ist no one bleived me especially becasue im only 23...but i know my body and i knew somthing was horribly wrong i was a manger of a beauty store now i cant work at all i can barely do anything its that bad...some days are worse than others of course but i never ever feel good so to speak...... i even went to an endocrineologist to have my hormones tested in depth,,, the only thing i found out was i had a slighty elevated prolactin level so then of course it was suspected i have a pituitary tumor i had to have a special mri of that gland... they found it was borderline slighty enlarged but barely there was no evidence of a tumor at all and all the doctors said that wasnt what was casuing the pots unless it was my hormones which all my other hormones were int he normal range besides the prolactin one so i am taking a pill for that too ive had pelvic pain and period changes for a long time ive had ultra sounds and every few months i get an ovarian cyst that goes away then one will come back so i have to take birthcontrol pills now too! so now i take atenaol once a day for the heart rate thing and yasmin and also bromocriptine which i know cab make pots worse but i have to take it anyway its hard to tell whats the root cause of my pots as im sure u all know! all i know is everyone at my work was sick with a virus right before i got sick and i caught a cold soon after next thing i know im like this ///the first time i went to the doctor my blood ssugar was 35! i was tested of course for diabetes and i dont have it ever since then ive been taking my blood sugar daily and its always normal so i dont know.....help me! dpes anyone ever get better from pots!? i also read people can die from it in ten yrs!