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john redman

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About john redman

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  1. Does dysautonomia cause a loss of bacteria in the gut? Is that why probiotics help? John
  2. What are the side effects of Reglan (metaclopromide) that people have suffered. It looks like I will be taking it the rest of my life for gastroparesis. Thanks. John
  3. Wow, it's nice to hear that people actually get better with time! I thought it was going to get worse with time. I'm still struggling to get a diagnosis and see for sure what is wrong. I'll be traveling to a Dysautonomic clinic next month. And, be seeing other docs as well. Thanks, John
  4. My gastroparesis, epigastric bloating, and constipation are hard to deal with. Lately, I've been eating Activia yogurt and swallowing EPS lactobacillus, Trinity lactobacillus, and Culturelle lactobacillus, each night, before my last meal. This seems to help. I hope it helps someone else. My best, John
  5. I can't sit or stand. I'm down in a Laz-Y-Boy chair, reclining all day, or in bed. That's how I live. When I get up my lightheadedness gets worse and worse and I get a headache. It's like when I stand or sit the water level in my brain drops and my headache is above that waterline. It really really stinks to be me. Why, oh why? John
  6. Melissa, Do you think your neck injury caused your autonomic failure? I have had two neck surgeries! John
  7. I'd like to know if constipation, gastroparesis, and autonomic dysfunction can all go away with one medication. John
  8. Do you need to come off Florinef before having your tilt table test? For how long? I was given the Florinef by a local neurologist in a rural area, but plan to get tilt-tabled at a medical center a month from now. Thanks, John
  9. Where did you catch the Lyme disease at? What part of the USA or world? Thanks, John
  10. Does the headache you can get from Florinef start after the first dose, or after taking it several days? Thanks. John
  11. We all seem to have hyperacusis - loud noise sensitivity. I have hyperacusis and tinnitus - ringing in my ears. I agree loud noise seems to make things worse, like the noise in a restaurant.
  12. My doc never mentioned salt pills or potassium or half a pill or anything. I really glad you posted. Does you son take the thermotabs all at once? John
  13. Thanks for all the Florinef, good, bad, and ugly posts. Do people tend to take it in the morning or at night? Which is better for side effects? Why does Dr. G and others say it is not a long-term medication? Thanks, John
  14. Florinef is a steroid, fludrocortisone Acetate. I was just prescribed to start it, and I have searched and read a bunch of back posts on it. I'd like to hear from those who had GOOD experiences, as well as from those who had BAD experiences with it. From all the old posts, it's hard to tell whether this is a good medicine that is generally well-tolerated and helpful, or if it's a bad medicine that has many side effects. What do people really think about Florinef? Thanks, John
  15. Dear Group, When I lie down and then sit up, my systolic blood pressure drops as much as 39 points, and my pulse increases as much as 50 points. Is it typical of POTS for both blood pressure and pulse to change so much. Some days, the pulse does not go up by 30 or more when standing. But it is true that usually, despite the title of this thread, that the pulse goes up by more than the systolic blood pressure goes down. Thanks, John
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