kjdube

Did they test for gastroparesis? This is common with dysautonomia and with gastro you can have problem with fats as they are harder to digest.

Well mine came back abnormal at 16% so guess I'm going to have it out, going to see the surgeon Tues. Daisy hope you get well soon !

daisy, I also had a HIDA w/cck on Monday and waiting for the results. I had some pain and nausea during the CCK and was told that " they used to think that meant gallbladder disease" but in recent years determined that the nausea, pain can be due to cramping of intestines and stomach from the cck and not always coming from the gallbladder. If I stay off certain foods like CHOCOLATE then its tolerable at best. Really miserable diet now since I already had many food restrictions to live with. Hope you find answers soon ! Keli

Walking brings on my POTS symptoms big time. I can lift weights, do yoga, bike, etc but cannot walk far. For me its the worst exercise that I avoid whenever possible. Yes I get head pressure, dizziness, and eyesight becomes dark.

You deserve so much more than a man who doesn't care if you cry. Great advice here. Get the best legal possible and don't be afraid to ask for help and support from friends and family. He sounds abusive and you may want to contact a women's shelter to see if they offer free counceling. They can also help direct you to legal and give advice to help in other ways, finances, children etc. Take care and be strong!

Yes I've been weightlifting 15yrs. Never thought of checking my BP right after, I will try that. Can't do very much cardio. Even walking at a quick pace makes me dizzy. So I use weights for lower body and my weight bench for upper body. Also do stretching and abs. potsgirl do you feel better when your bp is higher, after your workout?

I force myself to exercise as I always feel better afterwards, primarily I do weightlifting. Decided yesterday to take my BP before and then 15 min. after a 45 minute workout. Before: 84/43 After: 126/74 This must be how normal people feel with good BP. Wish I could have that feeling of energy all the time !

I never have a day without symptoms. Some days are better than others tho.

I also have to limit carbs or I'll become sick. I eat meat, fish and veggies. For breakfast I have (natural no preservative) sausage or some leftover meat along with black coffee, lunch is usually a big salad with tuna, chicken or turkey, and dinner is large serving of meat and veggies. When I eat carbs my POTS symptoms increase, can't think straight, have brain fog and dizziness. If I keep eating carbs then I bloat, gain weight and feel miserable. I love animals also and its conflicting to eat this way, I feel guilty about how we treat the animals we use for food.

I'm able to work full-time and its hard but I want to keep trying. All I can do is work tho, it takes everything I have so I can't do much else.

I'm allergic to everything and I have VitD deficiency also. I take AllergyD by Twinlabs: http://www.vitacost.com/Twinlab-Allergy-D3-Caps Its not made from fish like most vitD and contains NO Tablet binders, coatings, colorings, fish, soy, yeast, barley, wheat, lactose (milk sugar), and all milk, citrus and egg products, added flavorings, sugars, salt, artificial sweeteners, preservatives and salicylates.

I'm going on a weekend trip also and anxious about it. For me I have to pack my own food as eating wrong can set me off. I pray to make it ok in the car 5 hour trip there and then be able to function socially without being too miserable. I'm anxious about the whole thing but DH wants me to go and I'm just doing it to make him happy. I never go anywhere far from home. I don't know if I'll make work Monday. Michelle hope you have a good time and feel good and have some fun! Gentle shove... Keli

Yes I have chiari malformation.

Your daughters symptoms are like my son when he was a teen, he has Chiari Malformation, please look into this. Pain in the back of neck, weakness, POTS, EDS, these are classic symptoms of CM. Please read more about CM and if you suspect it, insist on a brain MRI. Take care and I hope you find help for your daughter soon.

I would bring her to the doctor or ER right away before it gets worse. She probably doesn't want to go but as mom you may have to push her, make her go as these things can get serious. Shes too sick to make this decision even tho shes an adult. Getting pneumonia again could be dangerous. Take care and have strength, hope shes better soon. Keli (son 22yo w/chiari and POTS, son 27yo w/chiari)