geneva

Nina, thanks for all the great details. If you would be interested in expanding your sales, I would certainly be interested in ordering the completed product from you!

I just want to say thanks for all the info on medic alert. I had been considering but got a bit overwhelmed when I talked to them trying to decide which of the many choices to detail etc. Your suggestions have been very helpful and I think I will go ahead. Nina, designing your own bracelet sounds great! Is it hard to do? I confess to no creativity and don't do well with things requiring much detail.

I can relate to the problem of trying to figure out what to eat. I have been tracking my food intake for 3 weeks as I think I am showing signs of dairy intolerance. I have also had problems when I was eating pasta all the time. Before I was diagnosed 3 years ago with POTS, I was a vegetarian and lived on pasta dishes (and fish). After POTS I tried to continue eating pasta and EVERY time I did, I became symptomatic within minutes. My doctor said to eat protein at every meal (first)and with pasta only very small portions. That made a big difference! Now, without cheese, I don't really want pasta. It IS frustrating to figure out a good, healthy, POTS-friendly diet but I keep trying. I added chicken and turkey back in my menu (can't handled red meat though) as well as lots of soups high in protein and all types of frozen vegetables which are easy to prepare. I'm am on Florinef also. Often I have to work to keep weight at the level my doctor wants to see me at but what works for me won't for you....pbj sandwiches everyday!

I often get blurred vision and it can last a few hours or days. I have this other problem which I describe as looking through (clear) gelatin. Everything is wavy and jiggly like jello! It is a very weird feeling. Also, I cannot tolerate flourescent lighting at all and this will bring on vision problems immediately, particularly the "jello wavy effect". Too much time on the PC or TV bring on problems and when this happens I can't do any reading for several days. I have learned that I must use my eyes for these things and reading in small sessions.

I too take Lorazepam but not on a daily basis. At first I resisted because of the addictive factor. But, once my doctor explained that many of my POTS symptoms are made much worse because I over-react to ANY stimulation and using it could help me enjoy more things I had stopped doing I decided to try. I now use it when we are going on a car drive, church, when we have company etc and I find that it helps. I have uncontrolled BP and before taking Lorazepam any stimulation from noise, lighting, traffic and other busy environments etc would send my normally low BP up dramatically. It still goes up with Lorazepam but much less. I would be interested in hearing if others find it helps them and/or have concerns with long term use.