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About hilfgirl33

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  1. Sugar in general is an issue for me so I don't touch Gatorade. I would def. be dizzy if I drank that much of any sugary drink. On top of that, I don't do well with chemicals and I believe there are articial dyes and flavorings in Gatorade, except for the Gatorade Ice. I'm pretty sure Poland Springs just came out with a new carbonated water with natural flavorings. My sister in law had one at the pool and it looked like a good water alternative.
  2. Jackie- I'll do my best to explain what he has explained to me and what happens. I am by no means an expert but the way he explained it to me was that there are pulses all throughout the body beyond the hr pulse. He works on the body as a whole to get everything back in motion and rhythm, so things flow the way they should - you get better blood flow and motion throughout the body so things don't hurt, function the way they should, then your body is able to fight disease and work at its best capacity. For example, my tailbone used to bother me tons and he gently applies pressure, it doesn't
  3. Jackie - from what I understand, craniosacral therapy is just the tip of the iceberg in comparison to cranial osteopathy. Craniosacral therapy can be performed by massage therapists who have undergone special training. Cranial osteopathy is actually only performed by D.O.'s, who have undergone more training. I don't know, craniosacral therapy may help as well, but I just wanted to let you know what I have done is cranial osteopathy.
  4. Okay, I see Dr. Goodkin and I see/saw the man he recommends for cranial osteopathy. Has he helped me - yes I believe so. I don't know how or why, but I know when it's been a while since I've seen him my symptoms are worse (like now and I haven't seen him since November). There was one time when I had been really dizzy for like two days and I went in to see him and was worked on and I wasn't dizzy when I left. That is the only time I've had results that I saw immediately. He has also helped with neck and back pain. The thing is, he is so darn expensive and my insurance doesn't cover it,
  5. Count me in for rollover tachycardia and palps!!!
  6. I also get tingling usually in my foot, arm or hands, but sometimes in my neck and head. When I was really bad with POTS I had head chills - very freaky. Don't know what causes them but probably has something to do with blood flow and circulation.
  7. Justin, I have polycystic ovarian syndrome and this is linked very strongly to type II diabetes and hyperinsulinemia. A lot of women who have it have blood sugar issues and do well on low carb diets - and that is true for me too. I have had issues when I was pregnant (I was borderline for gestational diabetes), and once in the doc's office I felt sick and they did a blood sugar on me and it was 63 (I had just had tuna and crackers a few hours before). Many doctors have different schools of thought on hypoglycemia, but I know I have it to varying degrees and if I don't eat protein every 2
  8. I've had numbness in my feet and legs, but not total loss of feeling. The worst I ever experienced it was during my tilt table test when my legs and feet were painfully numb. It most likely has to do with poor blood flow through the legs. The weird thing is, my sister has these symptoms more often than I, and she was diagnosed with MS. We have a lot of similar symptoms, but she doesn't have tachycardia and I have been ruled out for MS.
  9. I had this fear, too, before I finally started seeing a doctor who knew about POTS. He assured me that POTS isn't associated with death, just with a poor quality of life. I still feel that way sometimes, especially as now I'm having problems with my bowels and pelvic pain that is so bad I might consider undergoing a surgical procedure and that does scare the heck out of me. But I try not to think about it and have confidence that my doctor knows what he is doing. If I'm feeling really weird and scared, I just tell myself - this isn't going to kill you, do what you have to do to relieve you
  10. These come and go for me. I am much more symptomatic with palps when I'm ovulating and getting ready for my period, or if I'm tired or ate too much sugar. But they do happen at other times too, but usually much less. Very annoying and frightening at times. I just try and take a deep breath and stay calm when they are really bad cause I think stress prob makes them worse!!!
  11. Thanks Dan, I did read some of the article, but will have to read more later. Very interesting stuff. I take approximately 2 mg of Lorazepam total per day. The only significant thing I feel is sometimes emotionally blunted. But I don't know if this may actually be a good thing in my case because when I get too excited (happy, sad or upset), I feel so sick. I do think I'm going to try cutting down my dose a bit. I don't think I'll switch to Diazepam though. I'm going to try it on my own first by just cutting back little by little. I am often capable of doing this without major withdrawa
  12. Dan, Just curious why you are tapering off? Is there a reason why you can't take lorazepam the rest of your life if it adds quality of life? I often worry about taking the lorazepam long-term, but I don't know if this is a valid worry. It seems to work so well for my symptoms. I am going to take this up with my cardiologist, too.
  13. I find that lorazepam really helps my symptoms and it can actually make me feel more energetic than before taking it (that's not saying much). I also take Toprol, and I think that really helps the most (as before I was dx, I was only taking the anxiety med and I would feel somewhat more relaxed but I was having bad tachycardia). Just wondering if I am the only one. I don't want to be on them long term but they really help my symptoms. Anyone else. Thanks Elaine
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