Jump to content

Retroflex Syndrome


ajw4790
 Share

Recommended Posts

I believe this has something to do with retroflex odontoid, which comes into play with EDS--and perhaps Maxine will weigh in here b/c she has this.

Nina

Link to comment
Share on other sites

Can you get more information? Do they mean retroflex odontoid, that can be caused from cervical/cranial instability? I have retroflex odontoid-----------(cervical/cranial instability, and I have pannus growth on the odontoid bone.) A neurosurgeon, and an orthopedic surgeon said I have the pannus growth.

I assume this mean tissue growth from the friction caused by the instability.

Some people with EDS/hypermobile type have cervical/cranial instability and other spine instability, as EDS affects the connective tissue. People with EDS have defective collagen---------- If you would like to know more about it, visit this site below, I posted some links.

http://www.ednf.org/

http://www.ednf.org/index.php?option=com_c...Itemid=88888988

http://www.ednf.org/index.php?option=com_c...Itemid=88888988

You don't need have EDS to have retroflex odontoid or cervical/cranial instability---i.e.-------> Rheumatoid arthritis can cause this also, and this can also exist along with chiari malformation related conditions. Here's another link that explains Chiari Malformation. Cranial settling can happen with cervical/cranial instability, and can be very dangerous.

http://asap.org/

It's important that you have further evaluation to find out exactly what your doctor is talking about, and make sure you see someone who is experienced with retroflex odontoid syndrome-------either a neurosurgeon of orthopedic surgeon if you have this. This does not mean you need surgery. Get more then one opinion, and make sure any surgeon you see is familiar with EDS. Surgery should only be a last resort.

I hope this helps--- B)

Maxine :0)

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...