ajw4790 Posted February 14, 2008 Report Share Posted February 14, 2008 Hi!I was just wondering if anyone knew what Retroflex Syndrome is? Is it a word for another syndrome? I just wasn't sure what the dr. meant by it?Thanks! Quote Link to comment Share on other sites More sharing options...
morgan617 Posted February 14, 2008 Report Share Posted February 14, 2008 It looks like something to do with EDS, but I'm not sure, and I know nothing about EDS. Hopefully someone else knows....morgan Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted February 14, 2008 Report Share Posted February 14, 2008 I believe this has something to do with retroflex odontoid, which comes into play with EDS--and perhaps Maxine will weigh in here b/c she has this.Nina Quote Link to comment Share on other sites More sharing options...
Maxine Posted February 15, 2008 Report Share Posted February 15, 2008 Can you get more information? Do they mean retroflex odontoid, that can be caused from cervical/cranial instability? I have retroflex odontoid-----------(cervical/cranial instability, and I have pannus growth on the odontoid bone.) A neurosurgeon, and an orthopedic surgeon said I have the pannus growth.I assume this mean tissue growth from the friction caused by the instability.Some people with EDS/hypermobile type have cervical/cranial instability and other spine instability, as EDS affects the connective tissue. People with EDS have defective collagen---------- If you would like to know more about it, visit this site below, I posted some links.http://www.ednf.org/http://www.ednf.org/index.php?option=com_c...Itemid=88888988http://www.ednf.org/index.php?option=com_c...Itemid=88888988You don't need have EDS to have retroflex odontoid or cervical/cranial instability---i.e.-------> Rheumatoid arthritis can cause this also, and this can also exist along with chiari malformation related conditions. Here's another link that explains Chiari Malformation. Cranial settling can happen with cervical/cranial instability, and can be very dangerous.http://asap.org/It's important that you have further evaluation to find out exactly what your doctor is talking about, and make sure you see someone who is experienced with retroflex odontoid syndrome-------either a neurosurgeon of orthopedic surgeon if you have this. This does not mean you need surgery. Get more then one opinion, and make sure any surgeon you see is familiar with EDS. Surgery should only be a last resort.I hope this helps--- Maxine :0) Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted February 15, 2008 Author Report Share Posted February 15, 2008 Hi!Thanks for your help! I got a copy of my medical records and in one of the notes it mentioned this as a possibility, and I didn't know what it meant. I guess that was probably what they were talking about. Maybe at my next appointment I will learn more. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.