briarrose Posted December 8, 2007 Report Share Posted December 8, 2007 Check out the story here, woman in Arizona.http://www.cnn.com/2007/HEALTH/12/06/ep.symptoms/index.html Quote Link to comment Share on other sites More sharing options...
Mrs. Burschman Posted December 8, 2007 Report Share Posted December 8, 2007 The doctors didn't seem to be all that helpful, however.SEND HER TO AN AUTONOMIC SPECIALIST!Amy Quote Link to comment Share on other sites More sharing options...
briarrose Posted December 8, 2007 Author Report Share Posted December 8, 2007 I noticed that too and was trying to find a way to communicate that to CNN, Dr. Gazelle, Elizabeth Cohen; anyone that can help push that poor woman into the right direction for help. Quote Link to comment Share on other sites More sharing options...
lalalisa Posted December 8, 2007 Report Share Posted December 8, 2007 Briarrose,Hello! Thanks for posting this. It's GREAT to see you!! Take care,Lisa Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted December 8, 2007 Report Share Posted December 8, 2007 I actually saw that article a few days ago when looking for a health article for health class, read through it and said to myself...I kinda feel like she has alot of what I do, perhaps she needs to go to a dysautonomia doctor.... Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted December 9, 2007 Report Share Posted December 9, 2007 no offense but I was disappointed in this article. HELLO saying it' anxiety or even ALLUDING to that sets us back.you mean NOBODY at CNN could do a short google search and discover Vanderbilt or Mayo or Dr. Grubb Articles?? They could NOT contact the experts about ANS issues. Dopes!Really not informing the public but just left folks hanging. SHAMEI want to write the folks in this article and say it's GRAVITY problems you idiots. :P Just my three coins. Quote Link to comment Share on other sites More sharing options...
Eli6596 Posted December 10, 2007 Report Share Posted December 10, 2007 It is too bad that one of us did not have a chance to post a comment before the opportunity for comments closed. I would have loved to send a comment. I felt like screaming that neck pain can trigger migraines. Migraines and syncope ARE comorbid conditions. At least florinef and pindolol were very reasonable drug choices. I am appalled that the neurologists did not have a clue that neck pain, migraines and syncope are related! Karyn Quote Link to comment Share on other sites More sharing options...
mkoven Posted December 10, 2007 Report Share Posted December 10, 2007 Interesting, Karyn. Neither my pcp nor my neurologist thought there was any connection between my migraines and ncs-- though even intuitively it makes tons of sense. and I started having trouble with both at the same time. Can you recommend an easy link that discusses the connection. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 10, 2007 Report Share Posted December 10, 2007 What a shame that the two consulting docs kind of missed the opportunity to really provide help to the woman... and to thousands of readers who share similar symptoms and are still foundering in the muck dished out by so many doctors (the good guys excepted...who are way to far and few between).Oy. Reading that transcript made me cringe.Nina Quote Link to comment Share on other sites More sharing options...
briarrose Posted December 10, 2007 Author Report Share Posted December 10, 2007 Wondering if there is something more we can do here, seriously. Karyn is right, I tried to post a comment too but they weren't accepting anymore. I did send an email to the editor but you never know if they are read. Nina you're pretty could at brainstorming, isn't there a way we can get them to continue this story and even help that poor woman out, not to mention all the other readers that probably could relate to those problems.LisaGood to drop in again, thx for noticing me Sophia I doubt those doctor's are aware of Dysautonomia, Orthostatic Hypotension, POTS, Neurocardiogenic syncope, etc. If you don't know what you're looking at, how do you know to google it?I really hope that more of you guys think about writing in to the editors, doctor's, etc. give your 2 cents.Thx Steph Quote Link to comment Share on other sites More sharing options...
Eli6596 Posted December 11, 2007 Report Share Posted December 11, 2007 Hi,There is thought to be autonomic nervous system dysfunction in BOTH migraines and POTS. Dr. Low at Mayo told me that himself. I know that I have read that in at least one migraine research article recently. It made so much sense to me that I did not save the article. I know that the book written by Dr. Low about the autonomic nervous system lists migraines as having a high incidence in POTS patients.Whenever my POTS is bad, my migraines are bad too. THey go hand and hand.Karyn Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted December 11, 2007 Report Share Posted December 11, 2007 Thanks for posting! I have to read it later! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 11, 2007 Report Share Posted December 11, 2007 Briar, you could send them a letter --via email if you like-- or, what gets more attention is a large envelope such as the ones you find at the post office for priority mail (same as 1st class mail). You might want to write a cover letter, print out this thread with it, along with, perhaps the article from American Family Physician describing ID and treatment.Nina Quote Link to comment Share on other sites More sharing options...
Eli6596 Posted December 11, 2007 Report Share Posted December 11, 2007 I found an article about migraines and autonomic nervous system function. The article is:Migraine and autonomic nervous system function, Neurology, 2002:58;422-427. I have never learned how to provide a link for an article in an email. Sorry to admit that I am not computer gifted. I will have to ask my 11 year old to teach me someday.Karyn Quote Link to comment Share on other sites More sharing options...
briarrose Posted September 29, 2008 Author Report Share Posted September 29, 2008 Karynsorry, been away for awhile.When you want to add a link, you can highlight the www. address, copy and paste it.http://www.neurology.org/cgi/eletters/58/3/422?ck=nck Quote Link to comment Share on other sites More sharing options...
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