preacherswife Posted October 1, 2007 Report Share Posted October 1, 2007 Just wondering if this is just me or what. When I go to bed at night, I am always EXTREMELY cold!!! No matter what the thermostat is set on, when I get in my bed, I shiver violently and uncontrollably for probably 10-15 minutes, sometimes more, before I start to feel warm and can relax. It's horrible, and it's getting worse. I'm not sweating at all when I do this; I just shiver. I'm wondering if I should mention this to my neurologist at my next appointment. Maybe it's just me.... Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted October 1, 2007 Report Share Posted October 1, 2007 hmm that does sound a bit odd. I always have my fan on, because if i dont i get really really warm and sweat alot at night, however when i do have it on, i then in turn am quite cold some nights and will wake up shivering, but it isnt nearly as bad as what you have described. I guess it cant hurt to mention it to the neuro next time.Good luck, hope it gets better soon, that would be annoying.Mary Quote Link to comment Share on other sites More sharing options...
delphicdragon Posted October 1, 2007 Report Share Posted October 1, 2007 Do you eat right before you go to bed? Many times for me I get this type of reaction after I eat. If I don't get warm, then various unpleasant gastrointestinal symptoms start. I'm wondering if it's a similar mechanism, where blood flow is being rerouted, in your case back to your extremities, in my case to my abdomen to digest food. Just a thought. I'd mention it to the neurologist, hopefully he/she will be able to help you.Sara Quote Link to comment Share on other sites More sharing options...
doctorguest Posted October 1, 2007 Report Share Posted October 1, 2007 Shivering can be a manifestation of the autonomic dysfunction. There are medications - like Klonopin and Clonidine - that can help, and you should discuss this with your neurologist as you planned. Quote Link to comment Share on other sites More sharing options...
MNsue Posted October 3, 2007 Report Share Posted October 3, 2007 When I am overly tired I will shake and get very cold. I have found that a heating pad on my chest when I am going to bed helps to warm me up and calm down my nervous system. Florinif also helps to calm things down. Good Luck. I hope you can find some relief. Rhonda Quote Link to comment Share on other sites More sharing options...
preacherswife Posted October 3, 2007 Author Report Share Posted October 3, 2007 A heating pad on your chest!!! What a good idea. I had always kind of put it under me, but that messes with a herniated disk in my back and makes my back feel worse. I'm going to have to try it on my chest! You're a genius! Quote Link to comment Share on other sites More sharing options...
Mrs. Burschman Posted October 3, 2007 Report Share Posted October 3, 2007 In the winter, I take a hot-water bottle to bed. I like to lay on my stomach with it under my chest. Might be another option.Amy Quote Link to comment Share on other sites More sharing options...
maryfw Posted October 3, 2007 Report Share Posted October 3, 2007 I have slept with a heating pad for years. First for back pain and then because I am always cold and my husband needs a fan. Also when my chest hurts and feels like someone is sitting on it, I use the heating pad on my chest.mary Quote Link to comment Share on other sites More sharing options...
Darlene Posted October 22, 2007 Report Share Posted October 22, 2007 Before I was diagnosed with POTS I had chills frequently, but I had hot flashes too. I would be cold, shaking, needed tons of blankets, then a few hours later, burning up, sweating, throwing the covers off. Dysautonomia is a dysregulation of the nervous system, your nervous system controls things like body temperature. Your chills is probably just a side effect of your dyautonomia. Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 22, 2007 Report Share Posted October 22, 2007 Hi,I use an electric blanket to warm up my bed. Quote Link to comment Share on other sites More sharing options...
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