deucykub Posted September 14, 2007 Report Share Posted September 14, 2007 My husband noticed last night for the second time that my eyes were moving quickly from side to side on their own. As he put it, "You look like the guy in Identity," and I knew exactly who he meant.If you're interested, this clip on YouTube shows the actor my husband was referring to, but if you haven't seen the movie this part is a very big SPOILER moment! http://www.youtube.com/watch?v=9SVT4Y2BMnI at 3:40.I've never heard of this symptom with POTS, and I will definitely be asking my autonomic neurologist about this. Does anyone else experience this or have any insight? Oh, too funny, this emoticon is perfect! -> Quote Link to comment Share on other sites More sharing options...
maryfw Posted September 14, 2007 Report Share Posted September 14, 2007 My eyes do the jerky quick subtle movements. Have for years. Not sure why.Mary Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted September 14, 2007 Report Share Posted September 14, 2007 I actually can shake my eyes back and forth really quickly, however i have to make them do it, so i dont think that is the same thing, and it doesnt look the same as that guy's, its qutie a bit quicker. Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 15, 2007 Report Share Posted September 15, 2007 Hi,I have this symptom also. Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted September 15, 2007 Report Share Posted September 15, 2007 It's called Nystagmus and I get it too. Quote Link to comment Share on other sites More sharing options...
lmbutare Posted September 15, 2007 Report Share Posted September 15, 2007 I have it too. Mine used to be a lot worse, but I went through vestibular rehabilitation for my dizziness and that helped a lot...basically they give you exercises that significantly increase your dizziness and you eventually get accustomed to it and it decreases the dizziness overall. I didn't used to be able to walk in a straight line at all but after about 6 months of the rehab my balance got a lot better (it didn't make the dizziness go away by any means, but now I'm able to deal with it better). I'm not sure if you're having that kind of difficulty, but usually the nystagmus goes along with inner ear/balance issues... Quote Link to comment Share on other sites More sharing options...
thejohnsongang Posted September 15, 2007 Report Share Posted September 15, 2007 I have issues with my eyes and have for years. Not the same that is mentioned here, but similar. When I first wake up and for about 15 minutes to 1/2 hour my eyes keep going to the out side. My left goes to the left and my right goes to the right. My husband and I laugh about it, but we have never found out what causes it. My doctors haven't been able to find out either. I can't get up and move around until they settle down. I also get eye twitches all the time. Not sure if its related in anyway to my disorders or just my eyes trying to adjust to light. Quote Link to comment Share on other sites More sharing options...
doctorguest Posted September 16, 2007 Report Share Posted September 16, 2007 Nystagmus has many causes, including medication side effect. It is NOT caused by or associated with POTS or any other autonomic disorders. If this is a new finding for you, it may be wise to see a neuro-ophthalmologist. Quote Link to comment Share on other sites More sharing options...
kjdube Posted September 17, 2007 Report Share Posted September 17, 2007 Nystagmus and POTS can be associated with chiari malformation. I have both also. Quote Link to comment Share on other sites More sharing options...
deucykub Posted October 3, 2007 Author Report Share Posted October 3, 2007 Thanks everyone for your replies. I guess I'll run this by my PCP. I mentioned it to my Autonomic-Neurologist, and he said the same thing as you, DoctorGuest, "not POTS." He didn't seem too concerned by it, though.I've finally whittled the number of doctors I see down to three from about eight at the start of my illness, so if at all possible, I want to avoid that number going back up again!Wishing you all the best, Quote Link to comment Share on other sites More sharing options...
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