jhjd Posted August 11, 2006 Report Share Posted August 11, 2006 So I'm back! Ended up crashing at DH's hotel (also in B'ham) right after tests before I drove back, so that was helpful. Have only good things to say about MVP/Dysautomnia clinic and Dr. Moore- First of all, their TTT is not nearly as bad as some of the ones described on here- no I.V., and fairly short. They told me that "we don't need to see you pass out to know that you could- we're not in the game of trying to see how sick we can get you." They look to see if you start the reaction and how severe it is at the beginning, but don't make you stand there for the ultimate conclusion of you passing out. So that was nice. The stress test sucked, but the nurse was very positive and encouraging throughout it. Basically, everybody was just very accomadating and- for the first time ever at a Dr.- kept asking me if I was dizzy, if I needed water, if I needed to sit down, etc., etc. Just sort of felt 'taken care of.' Plus, everything I said- about blurry vision, about fatigue, etc., etc., they were like 'yep, that's normal.' Had a "classic" response to both the TTT and stress test. Also had a refocused Echo- said I did have mild MVP. What I thought was a little odd was that she said it was part and parcel of the POTS thing (that's not the odd part)- and that if I drank enough fluid, it would probably not show up at all. Something to do with volume of tissues and volume of blood being positively influenced by the hydration so that the valve fit more tightly? Anybody here ever heard about it? They also prescribed a beta blocker (woo-hoo- start it tonight) and gave me a diet they've made up based on sort of a zone/south beach theme- the idea being that you balance proteins, fats, and carbs in a 30/30/40 ratio, focusing on what's good for you in all those areas. Quote Link to comment Share on other sites More sharing options...
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