cle1106 Posted April 18, 2006 Report Share Posted April 18, 2006 Hi, I've had intensely paniful facial flushing (lasting anywhere from 5 to 20 hrs., almost every day) for the past year with no diagnosis. Despite being referred to multiple doctors and having tests upon tests performed(for pheochromocytoma, carcinoid, autoimmune diseases, etc.: all negative; the only thing found so far is a deficiency of several B vitamins), no-one really seems to have a clue as to what could be causing this. I'm also suddenly very intolerant to heat as well, despite being only 19 (so obviously hot flashes because of menopause are out of the quesiton). I've tried beta blockers with little success and am currently on clonodine, which controls the flushing to some extent, but isn't enough to stop it from being very debilitating. Recently I had a doctor bring up the possibility of dysautonomia after my heart rate went from 53 to 125bmp upon standing (I haven't had a tilt table test yet). I noticed that flushing was listed as one of the symptoms, but wondered whether or not anyone's flushing with POTS is this severe/recurrent. I'd really appreciate anyone's thoughts/experiences -- Thanks, Courtney Quote Link to comment Share on other sites More sharing options...
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