Guest Julia59 Posted April 18, 2006 Report Share Posted April 18, 2006 Today I'm going to see Dr. Grubb. I have a list of things to discuss. I hope to cover it all, and get an idea where I'm at POTS wise. My concern has been that my POTS is goin into PAF. My HR has not been compensating---even though my blood pressure drops to very low levels. Last week I recorder tow BPs, one at 64/45 and the other 69/50---the rest average 70/something---average.Another problems has been the leg weakness/numbness. I can not walk fast at all, and feel frail. My legs will start to buckle and then I will lose coordination. I'm not sure if it's my myelopathy form my spine issues, or it's the POTS. I still can not find a good neurologist locally who will take any of this seriously----so I'm always bringing this up to Dr. Grubb. I see my PCP on May 4th---and she seems to have a interest in all this, so I may ask her to coordinate some kind of neurological care---but only after she writes a letter telling any future neurologist this stuff is real---and serious.Another thing we'll discuss is my low HDL cholesterol----I'll ask him---"am I a heart attack waiting to happen"? My triclycerides are high--205----and the LDL is 126. The total is 195. The ratio is bad---and my old PCP put a BIG BAD on the report. I can't take statins. Bev suggested a new drug Omacor---which is a purified form of omega -3. NEW DRUG----?I'll keep you posted.Julie :0) Quote Link to comment Share on other sites More sharing options...
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