ArmyNPots Posted March 3, 2006 Report Share Posted March 3, 2006 Without this forum, I would be lost. This is just a quick post to say thank you to all who post. When I first got diagnosed, I knew nothing about it and I just felt alone. My cardiologist is not as educated on the topic, so i found myself leaving her office and feeling like a hypochondriac with all of the weird symptoms I had. For example, I read a post the other day that talked about the difficulty with putting makeup on. I laughed because in the morning it takes me so long to do my hair (with keeping my arms above my head) and my makeup (with concentrating), I always find myself alternating between two different rooms to get ready, just to give myself a break. I drive my husband crazy with that! I dont really know anyone personally, and sometimes I wish I did. I wish I had that person to email or write that felt EXACTLY as I did, because no one around me does. (im sure we can all relate to that) But I do come here often and just read all the posts and for a split second in time, I feel normal. So heres a raised glass to feeling normal everyone. Quote Link to comment Share on other sites More sharing options...
Poohbear Posted March 3, 2006 Report Share Posted March 3, 2006 Yep!! Around here just about any symptom you could have would be considered "normal"See..."normal" just depends on who you are around Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted March 3, 2006 Report Share Posted March 3, 2006 I have worn a pony tail for more than 2 years now!!!! I know exactly what you are saying about having a hard time getting ready. I throw on makeup and then have my pick of a gigantic display of hair clips and bands. I have big plans- but when it comes down to it- I cannot keep my arms up longer than pony tail time. Once I asked my doctor "what are you doing to me!!! You know I am single right!!! First I have to wear medical hose, have the perpetual pony tail, thanks to POTS now, I have glasses- and now big ankles from the salt?! Just buy me some tweed and fig newtons and I'm set!!!" He said "I'll buy you a cat!" Quote Link to comment Share on other sites More sharing options...
halmad85 Posted March 3, 2006 Report Share Posted March 3, 2006 I second that thanks. I'm sure that it's because of these forums that I was able to comunicate with my doctor and explain why I think this what I have. I am grateful to have gotten a chance to talk to all of you. It's always good to know you're not the only one in the world who feels this way. I've never met anyone else with IC or POTS...so this place is great for making me feel "normal". Thanks alot everyone!Jen Quote Link to comment Share on other sites More sharing options...
yikespanic Posted March 3, 2006 Report Share Posted March 3, 2006 Hi, Just to let you know I had myself almost convinced I was a hypochondriac until I was diagnosed! A couple of "specialist" even suggested it!!! I can tell you when I found this wonderful forum of compassionate friends it has made all the difference for me. I was feeling so alone and lost, with no one who really understood how I was feeling. Everyone kept telling me, You look ok? Why don't you go back to work? Why are you always complaining? I felt like I was physically falling apart and just about everyone thought I was exagerating. My friends and family are finally "educatated" in my condition and are really there for me now. But it was a hard year. I just wanted to welcome you and let you know your not alone. Take Care,Kim Quote Link to comment Share on other sites More sharing options...
flyingmonkey Posted March 3, 2006 Report Share Posted March 3, 2006 Even after being diagnosed, I still worry about being a hypochondriac. And I know there are other people who think I am (example: friends, family). Thank goodness for the internet, allowing us to find some semblance of sanity in connection with others!!!(Hey did you notice my brilliant yet unintentional alliteration?) Quote Link to comment Share on other sites More sharing options...
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