Guest Julia59 Posted September 12, 2005 Report Share Posted September 12, 2005 WEll this is a bit of a vent-----sorry about this........Kind of graphic so please forgive me........... I noticed when I strained to go #2 I sometimes have pretty bad ANS symptoms following. This has not been a good day for me, as my bowel motility has been pretty bad lately----so this just adds insult to injury----------- AS i'm sure you all know---i'm going through quite a struggle with my cervical spine stenosis with the recently diagnosed mylopathy---weakness in legs---and increasing POTS symptoms. The compression on my brain stem is also a concern, and I think going to the bathroom is a problem with this----thus the ANS symptoms, pain, and so on. I can feel my spine crack from my cervical spine to my lumber spine, just from going #2. How crazy is that? I'm taking cerefolin---half a pill a day, as that is all I can handle. This does help some with the fatigue and cognitive function, and gives me a little more stamina. It does not work all the time---but i'll take what I can get. I can't take a whole dose or I get to jittery. I tested this and put myself through 5 days---until I finally gave up and proved to myself it was too much. It's hard to believe how sensitive I am to meds. I get very self conscience----and sometimes feel like I might be over reacting, but i'm a fairly realistic person, and I know the reactions are NOT in my head.The main complaint for me is the jittery/hyperadrengic feeling----and of course the overwhelming fatigue, pain and weakness. I now know that Dr. Heffez is correct in his recent diagnosis of mylopathy as my ability to get around it getting very difficult. It's getting a little scarey. I'm praying this will pass, and it's not as bad as this----but i'm not so sure with mylopathy because it is progressive. I'm afraid they only way it will go away is with surgery to take the pressure off the spine. I'm am so worried I would not be able to handle the anesthesia, as I would be under for atleast 6 hours for a full cervical spine laminectomy.You were all told I was going to The Cleveland Clinic on the 9th of this month, but we had to change the appointment to the 7th of October. It's Ok---because I didn't expect to get in until Nov. anyway. Hopefully someone there can help me get a handle on this mess, and i'll have a better handle on what I need to do.In a way I figured it might not be that bad as I could still function----meaning get out of bed, take a shower, and handle some mild activity. Then these things started getting more difficult to do, and now I can't even go walk along the side of my husband at the grocery store to help him with the list. This Saturday night I was dizzy and light headed the whole time, and my legs were like rubber. I kept losing my balance, and it felt like someone was trying to push my head down into my shoulders. The pain is getting so much worse, and the worst part is that I can't handle any of the heavy narcotic pain meds which can be so helpful. Yes tylenol helps----for about 5 minutes............ Ice works pretty good, but it's so temporary.I needed to vent a bit as all of this bullroar is taking a toll on me physically and mentally. This continued light headedness is really getting to me, and now I notice when I turn my head in various positions my breathing is affected---mostly when I turn my head to the left. I'm going to quit my moaning and get myself to bed.Thanks for letting me vent----this has helped me through yet another jittery/hyperadrengic attack that I just didn't need. Nothing worse then having that when your too weak and tired to deal with that.Thanks again,Julie :0) Quote Link to comment Share on other sites More sharing options...
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