Bailee Posted September 6, 2022 Report Share Posted September 6, 2022 Went to target today as walked in a my dizziness was non existent but as soon as a started moving around shifting my body moving my head and body I got progressively more dizzier and disoriented/ off. However when on my treadmill or I’m walking straight in one direction I’m not shifting body as much. I’ve noticed this pattern for a while? Any tips ? Should I bring this up to my doctor? Does anyone know what it is. My dad says it is vertigo but it’s constantly happening when my body shifts it doesn’t just come and go. Quote Link to comment Share on other sites More sharing options...
MikeO Posted September 6, 2022 Report Share Posted September 6, 2022 @Baileedo bring this up with your Doc. I also do well on the treadmill until i would turn my head (in cardio rehab) and talk to the person next to me. I would lose it. Few years ago i was in Luke Maryland and the work team took a visit to a top of a mountain. I became very dizzy and had to sit down. My Daughter also has episodes and we both have have cervical spondylosis. If you do look at a Chiro just be careful as to who you see. I have had bad experiences with them. If you do have have a cervical issue i would suggest more PT time (has helped me. Doubt this helps you but the Doc consult IMO and some persistence hopefully will. Best! Quote Link to comment Share on other sites More sharing options...
Bailee Posted September 12, 2022 Author Report Share Posted September 12, 2022 On 9/6/2022 at 1:32 PM, MikeO said: @Baileedo bring this up with your Doc. I also do well on the treadmill until i would turn my head (in cardio rehab) and talk to the person next to me. I would lose it. Few years ago i was in Luke Maryland and the work team took a visit to a top of a mountain. I became very dizzy and had to sit down. My Daughter also has episodes and we both have have cervical spondylosis. If you do look at a Chiro just be careful as to who you see. I have had bad experiences with them. If you do have have a cervical issue i would suggest more PT time (has helped me. Doubt this helps you but the Doc consult IMO and some persistence hopefully will. Best! Thank you for this I’m going for vestibular testing I believe it may have something to do with cervical or spine. I noticed when I get dizzy and disoriented if I don’t stop moving or sit I will eventually drop. I also have this constant pain and tightness in my neck /trapezius I have a massage machine but the pain always is there and gets worse when I get dizzy. Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted September 12, 2022 Report Share Posted September 12, 2022 look up VOR and gaze stabilization exercises! I had bad viruse last August.triggered dizziness from vision input...took me forever to figure it out mYSELF when PT did not help. Found videos on youtube! i would get sick from using a camera to zoom in on flying birds.. Ventricular Optic Reflex. Quote Link to comment Share on other sites More sharing options...
Tomasz Posted September 14, 2022 Report Share Posted September 14, 2022 Hey On 9/6/2022 at 6:08 PM, Bailee said: Went to target today as walked in a my dizziness was non existent but as soon as a started moving around shifting my body moving my head and body I got progressively more dizzier and disoriented/ off. However when on my treadmill or I’m walking straight in one direction I’m not shifting body as much. I’ve noticed this pattern for a while? Any tips ? Should I bring this up to my doctor? Does anyone know what it is. My dad says it is vertigo but it’s constantly happening when my body shifts it doesn’t just come and go. I have exactly what you write about, and it started with me after covid along with POTS and MCAS. I don't get dizzy until I move my head or eyes and look ahead while walking. All it takes is a movement of my head or even my eyes and the dizziness immediately sets in. It's as if my eyes can't stabilize the image, it just makes everything float like that. I've noticed that this dizziness gets much worse when it's dark, so less information for the eyes. It also seems to me that the dizziness worsens when I turn my head as far to the right or left as possible, even if I keep my head stable in this twisted position. Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted September 14, 2022 Report Share Posted September 14, 2022 3 hours ago, Tomasz said: Hey I have exactly what you write about, and it started with me after covid along with POTS and MCAS. I don't get dizzy until I move my head or eyes and look ahead while walking. All it takes is a movement of my head or even my eyes and the dizziness immediately sets in. It's as if my eyes can't stabilize the image, it just makes everything float like that. I've noticed that this dizziness gets much worse when it's dark, so less information for the eyes. It also seems to me that the dizziness worsens when I turn my head as far to the right or left as possible, even if I keep my head stable in this twisted position. I don't know if anybody saw my post about VOR...but I have had POTS since early 90s, dx in 1998 and disabled... Allow me to share my story as I rarely come here anymore or to any support group but this could help somebody.. EDIT if you have Menieres please read this and learn about VOR and gaze stabilization..many are medicated for this but exercises are critical...NOTE if the exercises make you very dizzy, that means you need them and things will get better.. I have had inner ear and balance problems on top of this for over 30 years..(BPPV...everything has long names with what some of us have!)) last August 2021 I got a stomach virus that made me dizzier every time I vomited...and I could not walk to the bathroom....and the dizzy seemed to stay with me...not with just walking or standing but LOOKING at the world..by that I mean I like to photograph birds, especially eagles or osprey..i could not watch birds feed outside my window or the leaves moving on the trees. well it was a busy fishing season for the Osprey and as I tried to follow it through my camera lens I got MOTION sickness feeling, instantly...mild headache mild nausea, felt I might fall over. I was devastated as few people get to witness this bird fishing dives.... Anyway, I saw an "ENT Balance specialist for thi"s...he simply gave me a hearing tests, have some loss in left ear and sent me to Vestibular PT.. told me to take benadryl...sigh....the PT guys got I was dizzy but gave me insane exercises...like sit up 50 times as fast as I can. full blown sit ups..hurt my lower back and I am a small person but also have osteoporosis...not good on my spine. THus I kept reading and NOTHING matched my balance or dizzy surfaces...until I brought it up to a holistic chiropractor (she never crunches bones) she mentioned an eye website where I learned the term "Gaze stabilization exercises" .. then I stumbled onto the VOR system. That was it!! I cancelled the rest of my PT as this woman helped me so very much...for FREE. no email needed, no password she just helps people..I could not believe it. Then there are a few videos online but this woman has 3 exercises... beginners, intermediate and advanced. I started in order..then learned just leaving the house to use my camera and walk was a VOR exercise !! Anyway, read up on it or maybe try this link if I am allowed to post a link..have not been here much in recent years and rules may or may not change..but this is a CRITICAL thing to know for ANYBODY who gets dizzy.. I don't even remember her name but have these links in my email. hahttps://www.youtube.com/watch?v=drRwAdjZ644&ab_channel=Movement%26Function Quote Link to comment Share on other sites More sharing options...
Tomasz Posted September 15, 2022 Report Share Posted September 15, 2022 19 hours ago, Sophia3 said: I don't know if anybody saw my post about VOR...but I have had POTS since early 90s, dx in 1998 and disabled... Allow me to share my story as I rarely come here anymore or to any support group but this could help somebody.. EDIT if you have Menieres please read this and learn about VOR and gaze stabilization..many are medicated for this but exercises are critical...NOTE if the exercises make you very dizzy, that means you need them and things will get better.. I have had inner ear and balance problems on top of this for over 30 years..(BPPV...everything has long names with what some of us have!)) last August 2021 I got a stomach virus that made me dizzier every time I vomited...and I could not walk to the bathroom....and the dizzy seemed to stay with me...not with just walking or standing but LOOKING at the world..by that I mean I like to photograph birds, especially eagles or osprey..i could not watch birds feed outside my window or the leaves moving on the trees. well it was a busy fishing season for the Osprey and as I tried to follow it through my camera lens I got MOTION sickness feeling, instantly...mild headache mild nausea, felt I might fall over. I was devastated as few people get to witness this bird fishing dives.... Anyway, I saw an "ENT Balance specialist for thi"s...he simply gave me a hearing tests, have some loss in left ear and sent me to Vestibular PT.. told me to take benadryl...sigh....the PT guys got I was dizzy but gave me insane exercises...like sit up 50 times as fast as I can. full blown sit ups..hurt my lower back and I am a small person but also have osteoporosis...not good on my spine. THus I kept reading and NOTHING matched my balance or dizzy surfaces...until I brought it up to a holistic chiropractor (she never crunches bones) she mentioned an eye website where I learned the term "Gaze stabilization exercises" .. then I stumbled onto the VOR system. That was it!! I cancelled the rest of my PT as this woman helped me so very much...for FREE. no email needed, no password she just helps people..I could not believe it. Then there are a few videos online but this woman has 3 exercises... beginners, intermediate and advanced. I started in order..then learned just leaving the house to use my camera and walk was a VOR exercise !! Anyway, read up on it or maybe try this link if I am allowed to post a link..have not been here much in recent years and rules may or may not change..but this is a CRITICAL thing to know for ANYBODY who gets dizzy.. I don't even remember her name but have these links in my email. hahttps://www.youtube.com/watch?v=drRwAdjZ644&ab_channel=Movement%26Function Thank you so much for this. I heard about these exercises, but I thought they wouldn't help me. I should give it a try. Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted October 5, 2022 Report Share Posted October 5, 2022 hope you tried some exercises and they helped. Quote Link to comment Share on other sites More sharing options...
Bergbrow Posted October 5, 2022 Report Share Posted October 5, 2022 @Baileeand @TomaszI have had months of gaze stabilization and vestibular rehab related to both triggers you’ve mentioned. Turning my head even once left or right increased my dizziness instantly. Dizziness levels varied depending on my current level of flare, I’m anywhere between loopy to pass out. It wasn’t just the head turn but also eyes tracking that takes me down. This symptom makes watching tv difficult and triggering (sports, forget it), driving, people or animals moving around make me dizzy because I have trouble tracking. My dysautonomia was cause by a brain injury. @TomaszI could have written your post word-for-word. My eyes seem to struggle to focus also in low light as well as changing light and when moving. Takes me a minute to feel like my pupils are cooperating, sometimes they just cannot set. Like a camera constantly trying to focus but still take a crappy picture bc it never set. Or everything else is floating like you said Tomasz and I need things to stop moving. I credit multiple vision and vestibular therapy exercises for getting me to my current state although I’m still truly diminished, I would have been so much more dysfunctional without it. Quote Link to comment Share on other sites More sharing options...
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