Bailee Posted January 25, 2022 Report Share Posted January 25, 2022 Recently diagnosed with pots. My blood pressure was normal I’ll left numbers below however I’m still getting lightheaded. Is there a difference between low blood volume and low blood pressure? I’m on ivabradine so my heart rate doesn’t go up as much but the blood still isn’t reaching my brain I guess. Please help I’ve been miserable the past week and unable to even stand and walk for long . Sitting 5 minutes blood pressure 105/73 Standing for 1 minute: blood pressure 102/72 5 min standing had to sit early Dizzy lightheaded fatigue Blood pressure 109/85 Quote Link to comment Share on other sites More sharing options...
yogini Posted January 25, 2022 Report Share Posted January 25, 2022 3 hours ago, Bailee said: Recently diagnosed with pots. My blood pressure was normal I’ll left numbers below however I’m still getting lightheaded. Is there a difference between low blood volume and low blood pressure? I’m on ivabradine so my heart rate doesn’t go up as much but the blood still isn’t reaching my brain I guess. Please help I’ve been miserable the past week and unable to even stand and walk for long . Sitting 5 minutes blood pressure 105/73 Standing for 1 minute: blood pressure 102/72 5 min standing had to sit early Dizzy lightheaded fatigue Blood pressure 109/85 Is your heart rate normal? A high heart rate can cause lightheadedness. But it’s also extremely common for dysautonomia patients to have normal stats, including blood pressure and blood volume, and still feel dizzy. This is because your autonomic nervous system isn’t working properly and not enough blood is going to your brain. The blood is staying in your lower body. Quote Link to comment Share on other sites More sharing options...
Bailee Posted January 25, 2022 Author Report Share Posted January 25, 2022 Yes I’m on ivabradine so my heart rate peaked at 115 when I stood and quickly went down to 106-109. I take ivabradine but I’ve heard some people also take midrodine to help with there lightheadedness? Maybe I can bring this up to my doctor? Quote Link to comment Share on other sites More sharing options...
CallieAndToby Posted January 26, 2022 Report Share Posted January 26, 2022 17 hours ago, Bailee said: Recently diagnosed with pots. My blood pressure was normal I’ll left numbers below however I’m still getting lightheaded. Is there a difference between low blood volume and low blood pressure? I’m on ivabradine so my heart rate doesn’t go up as much but the blood still isn’t reaching my brain I guess. Please help I’ve been miserable the past week and unable to even stand and walk for long . Sitting 5 minutes blood pressure 105/73 Standing for 1 minute: blood pressure 102/72 5 min standing had to sit early Dizzy lightheaded fatigue Blood pressure 109/85 I have the same issue! I was told by my doctors that once my blood pressure was stabilized and I take the vasoconstrictors I could be upright more and I can't even sit up for long, when standing and I start losing cerebral blood flow and get syncope within minutes. I told them I've blacked out while supine and they blamed it on blood pressure but my mother took my vitals at that time as I felt it coming on and my blood pressure was totally fine. I'm also confused. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 26, 2022 Report Share Posted January 26, 2022 I have the same issues. As yogini said even when BP is normal, things may not be working optimally for us. For me, increasing fluids and salt can help me feel more stable. Quote Link to comment Share on other sites More sharing options...
MikeO Posted January 26, 2022 Report Share Posted January 26, 2022 Count me in as well. Being sure i am up on fluids and the little bit of sodium i am allowed to helps. Have you tried any physical maneuvers at all? Quote Link to comment Share on other sites More sharing options...
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