Pistol Posted October 6, 2021 Report Share Posted October 6, 2021 Hi - we are getting ready for the presentation by Dr Blithsheyn about COVID and dysautonomia. If you have any questions regarding this subject to be answered at the end of the session ( see speaker series advertised on top of forum page ) please post them here so they can be used. Thanks! Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted October 6, 2021 Report Share Posted October 6, 2021 Can you help to explain why many of us get longer/better benefits from running IV fluids very slowly versus a "normal" rate of 125-250mL per hour? Link to comment Share on other sites More sharing options...
MikeO Posted October 7, 2021 Report Share Posted October 7, 2021 Hi, Are the symptoms of a breakthru infection (being fully vaccinated) the same as someone that has not been vaccinated? Thanks in advance Mike Link to comment Share on other sites More sharing options...
TCP Posted October 7, 2021 Report Share Posted October 7, 2021 How many people with dysautonomia have had problems with the Covid vaccine? In my case it has affected my vagus nerve. Link to comment Share on other sites More sharing options...
Pistol Posted October 9, 2021 Author Report Share Posted October 9, 2021 I am curious if Longhaul post COVID syndrome is similar to other post-viral conditions, like post-viral malaise? I know of many people that developed tachycardia and orthostatic intolerance after COVID but improved after weeks. Could it simply be due to deconditioning and stress on the body? Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted October 10, 2021 Report Share Posted October 10, 2021 Is there any data yet about the interaction of autonomic dysfunction and COVID? eg, is there higher risk to develop long term symptoms if a patient already had dysautonomia prior to their infection? Is there any data to suggest that dysautonomia is a risk factor for other complications? Link to comment Share on other sites More sharing options...
Nelson G. Posted November 4, 2021 Report Share Posted November 4, 2021 I quote CDC data: Since April 2021, increased cases of myocarditis and pericarditis have been reported in the United States after mRNA COVID-19 vaccination (Pfizer-BioNTech and Moderna), particularly in adolescents and young adults. There has not been a similar reporting pattern observed after receipt of the Janssen COVID-19 Vaccine (Johnson & Johnson). Could this imply a risk to us Dysautonomia/POTS patients? Should we wait a bit more to get the jab? What is the correct way to approach my cardiologist about my concern over the vaccines and the cardiac risk it opposes to young adults? Thanks. Link to comment Share on other sites More sharing options...
Pistol Posted November 4, 2021 Author Report Share Posted November 4, 2021 @Nelson G. - the webinar is over, so we no longer can send these questions to the docs. But IMO the decision to vaccinate should be made by you and your physician, considering all of the factors that may apply to your particular diagnoses. Not even in healthy individuals can the response to any vaccine be predicted, so there is always a risk, no matter what the medication or vaccine. Link to comment Share on other sites More sharing options...
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